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Topic: Epilepsy.com Help

Created By: kdredske | 2008-10-10 17:21 | 1039 Views | 19 Comments

If you could make one change to epilepsy.com, what would it be?

  • Is there a new function that you wish was here that isn't?
  • Is there some special...
Created By: epihelp | 2008-10-07 22:13 | 129 Views | 5 Comments

Hi everyone!

I'd like you all to help me welcome two new mentors to my.epilepsy.com - Sassy and KrayonsRmine. Both have been users of the chat and the...

Created By: epihelp | 2008-10-07 22:10 | 35 Views | 0 Comments

Hi everyone!

I'd like you all to help me welcome two new mentors to my.epilepsy.com - Sassy and KrayonsRmine. Both have been users of the chat and the...

Created By: kdredske | 2008-10-02 14:46 | 94 Views | 1 Comment

Have you heard of Firstgiving fundraising pages or widgets and have
questions? This is the place to get the answers.
Hi. I'm Karen, the epilepsy.com webmaster. I'm here to help you out...

Created By: tatiana | 2008-08-22 18:49 | 1330 Views | 16 Comments

I wasn't diagnoised with epilepsy until I was 20 and I'm only 21 now. Before I had my first and only seizure I use to experiment with different halluncinogens like acid and shrooms. Since I have...

Created By: epihelp | 2008-08-21 15:11 | 120 Views | 2 Comments

Hi everyone!

Thanks to all who joined our first Epilepsy Talk Radio using www.blogtalkradio.com last week. You'll find an archived session on...

Created By: George R | 2008-08-08 13:10 | 152 Views | 8 Comments

I'm delighted to find that the Chat Room is up and running again. I had trouble for many weeks even getting in there, or keeping it on screen. However, when I got a computer system organization...

Created By: joshnrosie | 2008-08-07 22:56 | 52 Views | 2 Comments

I am 31 years old and had my first seizure the other day firs I started makeing nosies then slid down to the floor and startd skakeing when I came around i was confused and I had...

Created By: George R | 2008-08-05 19:29 | 67 Views | 4 Comments

No, I'm not a new member, and yes, I've contributed financially. However, for the past several months there seems to have been no way that I am permitted to participate in the Chat Room. And I'd...

Created By: laughlove3 | 2008-08-05 11:01 | 39 Views | 0 Comments

 Hello:) I am looking to discuss sensory issues with children with epilepsy. Has any parents dealt with this and their child?

Created By: laughlove3 | 2008-08-05 11:00 | 21 Views | 0 Comments

 Hello:) I am looking to discuss sensory issues with children with epilepsy. Has any parents dealt with this and their child?

Created By: laughlove3 | 2008-08-05 11:00 | 26 Views | 0 Comments

 Hello:) I am looking to discuss sensory issues with children with epilepsy. Has any parents dealt with this and their child?

Created By: mike2boys | 2008-07-15 09:22 | 36 Views | 0 Comments

I wanted to invite all those with VNS to join this group 

Stimulator-subscribe@yahoogroups.com  this group was...

Created By: abluv | 2008-07-11 15:56 | 75 Views | 4 Comments

I saw a neuro guy yesterday.  Told him my symptoms.  He says I'm not having seizures because I do not lose consciousness.  He's going to give me an EEG but he says that these seizure like...

Created By: epihelp | 2008-07-06 09:33 | 57 Views | 0 Comments

Hi everyone,

Hope everyone's getting around the site easily and finding funs things to do! Anyone interested in adding to the ecom Wiki? Spiz has been helping us get this going by...

Created By: tamalajones4 | 2008-06-20 09:11 | 75 Views | 6 Comments

i would like to contact a neurologist  about a certain man alfrd nobel which he had epilepsy and worked closely with tnt. i have worked in this field as well and i have epilepsy.so can it be...

Created By: lorelama | 2008-06-11 08:50 | 203 Views | 0 Comments

This is directed to all but mostly to those that are running information and advocacy groups for those of us with epilepsy like epilepsy.com, epilepsy foundation, and others. I have been asked...

Created By: Liezl | 2008-06-03 08:31 | 25 Views | 3 Comments

Hi all

a seizure that makes you violent, psychotic, aggressive,  abusive?!?!?!?

No memory of the seizure whatsoever! please help me!...

Created By: susangibson | 2008-05-20 08:54 | 25 Views | 2 Comments

when is someone going to change the VNS poll? how long do they stay up? i love polls:) would like a new one.

Created By: epihelp | 2008-05-18 21:05 | 61 Views | 0 Comments

HI everyone!

I hope you've all seen the new search bars on the community pages to make finding this easier and faster. Now you can just search blogs by using the blog search bar in the...

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