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Topic: Diagnostic Dilemmas and Testing

Created By: Jodie Powell | 2012-01-27 22:26 | 161 Views | 0 Comments

If you have been just diagnosed, eeg's and other tests are all normal, not responding to medications, have extreme fatigue, digestive issues that cannot be explained, joint pain, and other...

Created By: columbia.epilepsy.study | 2012-01-25 16:01 | 123 Views | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

Created By: caandahl | 2012-01-19 10:19 | 238 Views | 0 Comments

I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said he had frequent discharges that increased...

Created By: krc90 | 2012-01-15 13:22 | 378 Views | 1 Comment

Hello..

I am writing to you all today because I am very nervous about something. It may seem funny, or stupid, or crazy, I don't know. But I feel like I can't ever find an answer that will...

Created By: topbanana | 2012-01-14 09:26 | 149 Views | 0 Comments

Hi,

I am just wondering what "phase reversal" means on my child's abnormal EEGs. She has complex partial seizures always with spikes and sharp waves and phase reversal over P2-P4. I know...

Created By: allegroismyhorse | 2012-01-11 17:05 | 342 Views | 1 Comment

Okay, so I recently got diagnosed with the autism spectrum disorder, Aspergers. I already have epilepsy but I'm trying to more understand the link between epilepsy and autism. Could you please...

Created By: rosemarycmi | 2012-01-10 17:29 | 159 Views | 0 Comments

Hi, I don't know if anyone can help me but here goes.  In August of last year I woke up with a headach on the right side of my head.  I went and got myself a glass of juice and when I finished it...

Created By: Motsy802 | 2012-01-06 15:12 | 209 Views | 0 Comments

Hi, I'm new to this website, and I could really use some insight if you don't mind. My son is 4 years old, and two years ago he had a febrile seizure. It was a grand mal, and he had been running a...

Created By: Dori | 2012-01-04 15:40 | 475 Views | 3 Comments

My 13 year old daughter is a candidate for surgery. She has complex partial seizures that at times generalize into hours long status seizures that are life threatening. She's already undergone...

Created By: admin1 | 2012-01-04 10:09 | 130 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: crystal blackmon | 2012-01-03 17:02 | 225 Views | 1 Comment

i have a 10 year old .we now live in montana but to months before we moved here she started telling me she felt funny . we didnt think much about it .well we moved to montana things got worse . we...

Created By: rkapoor94 | 2012-01-02 21:46 | 242 Views | 2 Comments

Hello,

My sister recently had a seizure. She is 13. She just fell unconscious and she made these weird breathing sounds. I think mucus was coming out of her nose and mouth. She bit her...

Created By: djneogi | 2011-12-30 15:47 | 179 Views | 0 Comments

Hi,
This is Deb from Bangalore, India. Straight to the point - I have recently encountered three cases of epileptic seizures (one of my cousin sister, one of my sister-in-law and on e of my...

Created By: flgal2011 | 2011-12-27 15:10 | 149 Views | 1 Comment

Hi there! I have been struggling with neurological issues for a year and a half now. It's taken a while to figure out what's going on- numerous tests, thousands of dollars, and several different...

Created By: bwinter | 2011-12-15 05:36 | 330 Views | 2 Comments

I am a 19 year old female, since I was about 14/15 I have been suffering from something a bit strange and difficult to describe.
The episodes come on completely randomly - yesterday I had...

Created By: jenruns | 2011-12-14 21:13 | 146 Views | 0 Comments

I hope someone can help....Im a 30 year old female and have been
dealing with these episodes for four years now and looking for some
answers.  They usually happen in the morning and...

Created By: AlexG | 2011-12-07 00:12 | 497 Views | 5 Comments

 

Last week thursday i aparently had a siezure at college walking towards the classroom door i fell to the ground classmates say i turned purple and blue and started shaking. I have no...

Created By: djraymx | 2011-11-30 02:14 | 182 Views | 0 Comments

anyone that can help me out with any information about Dravet Syndrome alternative ways of treating would be greatly appreciate it.  7 Years old daughter just got diagnosed.  she has been on all...

Created By: malnwah04259 | 2011-11-29 16:50 | 661 Views | 6 Comments

I am in a strange situation with doctors. I have been seeing my Neurologist for almost 2 years now and we have conducted batteries of tests to rule out diseases such as Multiple Sclerosis,...

Created By: Krs107 | 2011-11-22 20:33 | 226 Views | 1 Comment

My son is 20 months old, and has had two grand mal seizures recently. When he was a baby (well I guess he's still kind of a baby lol) he used to have these staring spells. His eyes would open...

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