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Topic: Diagnostic Dilemmas and Testing

Created By: rayraykay | 2012-02-07 23:49 | 120 Views | 0 Comments

Anyone have experience with nonconvulsive status epilepticus? My sister in law has had epilepsy for 20 yrs since she was 13 no known cause 4 days ago my crazy mother in law took her off her meds...

Created By: BendyPianist | 2012-02-07 17:06 | 133 Views | 0 Comments

I recently had an ambulatory EEG. The doctor told me that my seizures were Psychogenic Non-Epileptic Seizures (stress-induced). I asked for a copy of the report because I did not feel that it was...

Created By: fleamcgee | 2012-02-07 08:42 | 252 Views | 2 Comments

Hi All,

I have a 23 year old daughter who has been diagnosed with Rolandic Epilepsy, has had 3 mris with normal reports but EEG with the expected spiking and...

Created By: aj85 | 2012-02-03 13:35 | 181 Views | 0 Comments

Hi, everyone! My first time posting here. I've had seizures for about 6 months. Started as a once a month type of thing. But now in January it's been a couple of times a week. They happened...

Created By: 414NZA | 2012-01-29 02:27 | 187 Views | 1 Comment

I was reading an old forum from '08 about someone having seizures from smoking marijuana. A lot of people seemed to believe that weed stops seizures, so I thought I'd join and post a forum based...

Created By: Jodie Powell | 2012-01-27 22:26 | 132 Views | 0 Comments

If you have been just diagnosed, eeg's and other tests are all normal, not responding to medications, have extreme fatigue, digestive issues that cannot be explained, joint pain, and other...

Created By: columbia.epilepsy.study | 2012-01-25 16:01 | 104 Views | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

Created By: caandahl | 2012-01-19 10:19 | 193 Views | 0 Comments

I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said he had frequent discharges that increased...

Created By: krc90 | 2012-01-15 13:22 | 335 Views | 1 Comment

Hello..

I am writing to you all today because I am very nervous about something. It may seem funny, or stupid, or crazy, I don't know. But I feel like I can't ever find an answer that will...

Created By: topbanana | 2012-01-14 09:26 | 127 Views | 0 Comments

Hi,

I am just wondering what "phase reversal" means on my child's abnormal EEGs. She has complex partial seizures always with spikes and sharp waves and phase reversal over P2-P4. I know...

Created By: allegroismyhorse | 2012-01-11 17:05 | 285 Views | 1 Comment

Okay, so I recently got diagnosed with the autism spectrum disorder, Aspergers. I already have epilepsy but I'm trying to more understand the link between epilepsy and autism. Could you please...

Created By: rosemarycmi | 2012-01-10 17:29 | 133 Views | 0 Comments

Hi, I don't know if anyone can help me but here goes.  In August of last year I woke up with a headach on the right side of my head.  I went and got myself a glass of juice and when I finished it...

Created By: Motsy802 | 2012-01-06 15:12 | 177 Views | 0 Comments

Hi, I'm new to this website, and I could really use some insight if you don't mind. My son is 4 years old, and two years ago he had a febrile seizure. It was a grand mal, and he had been running a...

Created By: Dori | 2012-01-04 15:40 | 413 Views | 3 Comments

My 13 year old daughter is a candidate for surgery. She has complex partial seizures that at times generalize into hours long status seizures that are life threatening. She's already undergone...

Created By: admin1 | 2012-01-04 10:09 | 112 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: crystal blackmon | 2012-01-03 17:02 | 184 Views | 1 Comment

i have a 10 year old .we now live in montana but to months before we moved here she started telling me she felt funny . we didnt think much about it .well we moved to montana things got worse . we...

Created By: rkapoor94 | 2012-01-02 21:46 | 204 Views | 2 Comments

Hello,

My sister recently had a seizure. She is 13. She just fell unconscious and she made these weird breathing sounds. I think mucus was coming out of her nose and mouth. She bit her...

Created By: djneogi | 2011-12-30 15:47 | 154 Views | 0 Comments

Hi,
This is Deb from Bangalore, India. Straight to the point - I have recently encountered three cases of epileptic seizures (one of my cousin sister, one of my sister-in-law and on e of my...

Created By: flgal2011 | 2011-12-27 15:10 | 121 Views | 1 Comment

Hi there! I have been struggling with neurological issues for a year and a half now. It's taken a while to figure out what's going on- numerous tests, thousands of dollars, and several different...

Created By: bwinter | 2011-12-15 05:36 | 284 Views | 2 Comments

I am a 19 year old female, since I was about 14/15 I have been suffering from something a bit strange and difficult to describe.
The episodes come on completely randomly - yesterday I had...

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