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Topic: Diagnostic Dilemmas and Testing

Created By: Amyamy | 2012-04-18 12:03 | 202 Views | 0 Comments

Hi,

 

Our son has been homebound with 20-25 tonic seziures daily.  He is twelve and has had E for 5 years.  He had atypical sbsence seizures for nearly 4 1/2 years.  Just this...

Created By: scytale | 2012-04-17 14:50 | 490 Views | 3 Comments

Hi,

As the subject line states I suffer from constant right sided numbness/sensory loss since August 2010. I also suffer from severe cramps about once a week. The problems started with a...

Created By: Ashleygordon82 | 2012-04-17 11:29 | 183 Views | 3 Comments

We are trying to get my two year old daughter diagnosed w possible absence seizures. The pediatric neurologist we saw in Greensboro, NC was not helpful at all. I told him I felt crazy because at...

Created By: Bharatt | 2012-04-16 03:49 | 127 Views | 1 Comment

Hi! One of my relatives was diagnosed with a cyst on his brain. He had had one tonic-clonic seizure and, perhaps, one partial seizure. A few months later his cyst disappeared and all MRIs and EEGs...

Created By: ajameghan | 2012-04-10 16:43 | 150 Views | 2 Comments

hi, i have just been told that the dr. thinks my 8yr old son has JMepilepsy. my son's grandfather has grand mal epilepsy. it doesn't feel real yet. i'm so overwhelmed and feel kind of confused. we...

Created By: kloser2fine | 2012-04-05 23:45 | 365 Views | 0 Comments

Hi there, so I should preface everything by saying that I have not yet been diagnosed with epilepsy, and quite honestly, hope that I never will. But what's going on is that I'm having these...

Created By: JenSpendlove | 2012-04-03 18:27 | 81 Views | 0 Comments

I was told by my neurologist today that I need to have a video eeg. After researching exactly what that is, I feel I cannot possible do it. I am a survivor of extreme childhood abuse (likely the...

Created By: aggy84 | 2012-04-03 04:26 | 560 Views | 8 Comments

Hi all!

 Wow, to say I've been on a journey is an understatement.  I've suffered from what I thought was panic/anxiety attacks for coming on 7 years.  I'm 27 years old and this has...

Created By: lewellyn1 | 2012-03-08 10:31 | 60 Views | 0 Comments

Hi,

I have had tonic-clonic seizures about every 6-8 months for the last four years.  I am currently on Lamictal (just switched from the generic lamotrigine).  I recently had another EEG...

Created By: Masterjen | 2012-03-01 13:25 | 181 Views | 2 Comments

Hi, I am hoping someone can explain to me the difference between MRI with contrast and an MRS, and how they relate to seizure diagnosis. And, why are these considered more diagnostically helpful...

Created By: beautifulgirl71 | 2012-02-18 12:18 | 191 Views | 3 Comments

I need help finding a clinical diagnosis for my son who I believe has absent/petit mal siezures. He has had EEG's and MRIs that have been 'normal', or 'not significant'. I do know that not all...

Created By: micncar | 2012-02-10 14:29 | 161 Views | 1 Comment

Hello Everyone,

I just had an EEG to r/o seizures. I looked at the cd and throughout the entire 72hr eeg there were XL spikes and XL events. The report states normal eeg. It doesn't look...

Created By: rayraykay | 2012-02-07 23:49 | 78 Views | 0 Comments

Anyone have experience with nonconvulsive status epilepticus? My sister in law has had epilepsy for 20 yrs since she was 13 no known cause 4 days ago my crazy mother in law took her off her meds...

Created By: BendyPianist | 2012-02-07 17:06 | 84 Views | 0 Comments

I recently had an ambulatory EEG. The doctor told me that my seizures were Psychogenic Non-Epileptic Seizures (stress-induced). I asked for a copy of the report because I did not feel that it was...

Created By: fleamcgee | 2012-02-07 08:42 | 155 Views | 2 Comments

Hi All,

I have a 23 year old daughter who has been diagnosed with Rolandic Epilepsy, has had 3 mris with normal reports but EEG with the expected spiking and...

Created By: aj85 | 2012-02-03 13:35 | 112 Views | 0 Comments

Hi, everyone! My first time posting here. I've had seizures for about 6 months. Started as a once a month type of thing. But now in January it's been a couple of times a week. They happened...

Created By: 414NZA | 2012-01-29 02:27 | 114 Views | 1 Comment

I was reading an old forum from '08 about someone having seizures from smoking marijuana. A lot of people seemed to believe that weed stops seizures, so I thought I'd join and post a forum based...

Created By: Jodie Powell | 2012-01-27 22:26 | 78 Views | 0 Comments

If you have been just diagnosed, eeg's and other tests are all normal, not responding to medications, have extreme fatigue, digestive issues that cannot be explained, joint pain, and other...

Created By: columbia.epilepsy.study | 2012-01-25 16:01 | 65 Views | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

Created By: caandahl | 2012-01-19 10:19 | 113 Views | 0 Comments

I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said he had frequent discharges that increased...

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