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Topic: New to Epilepsy.com

Created By: radiosmom | 2013-11-08 11:54 | 1104 Views | 6 Comments

Hi Community,

I just responded to another person's question with my story, but I decided to reach a larger group by posting myself.

I had a major gran mal a little more than a...

Created By: jldavissmith80 | 2013-11-08 10:11 | 746 Views | 5 Comments

Let me start by saying I am not sure that I should even be here but I am at a loss for what to do and I am seeking advice.

Background:

I started having strange extremely vivid...

Created By: Kyanna02 | 2013-11-06 15:58 | 499 Views | 3 Comments

I am new on this site so i dont really know what to do..I have seizures at night when im sleeping. My leg always gives out when im asleep and it wakes me up then i go into a seizure. does anyone...

Created By: epihelp | 2013-11-05 10:50 | 221 Views | 0 Comments

Ever wonder what it takes to manage your epilepsy? For people with easy to control seizures, taking medicines may be the main part of your seizure management. But for others, treatment can be more...

Created By: epihelp | 2013-11-04 07:42 | 192 Views | 0 Comments

Hi everyone,

A new tool called a widget has been developed by people from many different epilepsy groups. The widget is called My Seizures, Know More. We are testing it for a few days to...

Created By: rosanna1980 | 2013-11-01 18:18 | 405 Views | 2 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have...

Created By: joanneph | 2013-10-31 14:20 | 463 Views | 2 Comments

I was diagnosed two weeks ago with Epilepsy and had my license taken and took back my car (rent to own) but have not met with a doctor yet to even ask questions about this?? I am not on medication...

Created By: kaykunkel | 2013-10-28 17:35 | 310 Views | 2 Comments

Hello,

 

I am a wife of a great man who started experiencing nocturnal tonic-clonic seizures approximately 3 years ago.  Since this started happening, it has completely turned...

Created By: emma coquet | 2013-10-26 11:57 | 1038 Views | 6 Comments

My partner is nocturnal epileptic and though infrequently, he does still suffer night-time seizures occasionally. The last but one time this happened I heard the initial stages of the seizure (...

Created By: Mollz | 2013-10-26 01:29 | 344 Views | 2 Comments

Why do I get so tired after I have an aura but no seizure? I have so many questions about everything. Where should I begin. I'm still unsure about what kind of seizures I'm having. Can keppra...

Created By: juggler63 | 2013-10-24 23:37 | 1011 Views | 7 Comments

I was diagnosed with having a seizure in July. I am 50 years old. I had seen my psychiatrist and he told me later that I had been "acting odd", although he really couldn't define why he felt that...

Created By: JJMontana4 | 2013-10-24 05:30 | 653 Views | 5 Comments

Hi my name is Judy Johnson. I have been epileptic since 1975. Still can't get under control. now they want to try Gabapentin. I heard there's bad side effects. Any one know about this one?

Created By: UH_Warrior13 | 2013-10-23 14:01 | 140 Views | 0 Comments

hello,

I live in Hawaii and go to UH--Univeristy of Hawaii.

I live on O'ahu in W. Honolulu.

 eash island right now have different temps.  the nig Iland has in the 70s...

Created By: SeizureSavior | 2013-10-21 10:13 | 150 Views | 0 Comments

i have started a indigogo campaign to try and save my sister Ambers Life and My families life..
the story is on the Site..
my sister has 10-20 seizures a day and needs surgery please...

Created By: Soumya Holla K S | 2013-10-21 01:35 | 1108 Views | 8 Comments

My daughter was diagnosed for seizures when she was 45 days old. Since then she is under medication. Doctors have tried Topomac, Sabriel, Levipil, Larpose, Gardenal, Valparin and various other...

Created By: rohr28 | 2013-10-19 01:27 | 619 Views | 4 Comments

I am very new to the world of JME.  My son was diagnosed in early September with JME after 3 months of 10-20 times a day of him experiencing dizziness, loss of sight, can hear but unable to...

Created By: Chris H | 2013-10-18 18:34 | 196 Views | 0 Comments

Hi I'm new to all this. I had my 2nd craniotomy to clip the last of 3 MCA aneurysms 6 weeks ago. On the day I was released from hospital I began with seizures. I cannot remember the journey home...

Created By: Meco | 2013-10-16 09:55 | 731 Views | 7 Comments

Good Morning,

I am new to forum use so please feel free to direct me.

My 12 year old son was...

Created By: Coulter123 | 2013-10-15 14:56 | 326 Views | 2 Comments

I am currently going thru testing process to be considered a surgical candidate. I've had seizures since the age of 4 and been on tons of meds. I am 29 and am having seizures or seizure related...

Created By: jumpwhat | 2013-10-13 23:16 | 603 Views | 4 Comments

Soooo I've been through just about everything and feeling hopeless. Comlex PTSD, undiagnosed seizures, etc. Recently what I thought were just strange anxiety attacks got worse and the ER doc...

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