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Topic: New to Epilepsy.com

Created By: humility | 2013-11-17 22:49 | 427 Views | 1 Comment

Had an mri and eeg done. Mri found venous angioma on frontal lobe. The eeg had abnormal electrical activity. I was diagnosed with epilepsy. Has anyone her heard of any connection between the 2...

Created By: Fairy20 | 2013-11-15 11:02 | 526 Views | 3 Comments

Hello,

I'm Sanne and I'm diagnosted with epileptic since 2011.

Maybe you can read that my Englisch is'nt verry good.

Because in my opinion there isn't a good forum...

Created By: ticha4200 | 2013-11-12 05:24 | 322 Views | 1 Comment

Hi, my name's Patrícia Santos. I'm 18, I'm portuguese and I have epilepsy ever since I can remember. The problem is that my kind of epilepsy is very weird and my doctors don't know what to do...

Created By: littlenaitch | 2013-11-10 22:07 | 374 Views | 2 Comments

I first noticed a major issue in 2007 when I was in work, I spent about 10mins wandering around the office floor, having no clue where I was or who anyone was. From there incidents would happen,...

Created By: radiosmom | 2013-11-08 11:54 | 950 Views | 6 Comments

Hi Community,

I just responded to another person's question with my story, but I decided to reach a larger group by posting myself.

I had a major gran mal a little more than a...

Created By: jldavissmith80 | 2013-11-08 10:11 | 643 Views | 5 Comments

Let me start by saying I am not sure that I should even be here but I am at a loss for what to do and I am seeking advice.

Background:

I started having strange extremely vivid...

Created By: Kyanna02 | 2013-11-06 15:58 | 421 Views | 3 Comments

I am new on this site so i dont really know what to do..I have seizures at night when im sleeping. My leg always gives out when im asleep and it wakes me up then i go into a seizure. does anyone...

Created By: epihelp | 2013-11-05 10:50 | 194 Views | 0 Comments

Ever wonder what it takes to manage your epilepsy? For people with easy to control seizures, taking medicines may be the main part of your seizure management. But for others, treatment can be more...

Created By: epihelp | 2013-11-04 07:42 | 171 Views | 0 Comments

Hi everyone,

A new tool called a widget has been developed by people from many different epilepsy groups. The widget is called My Seizures, Know More. We are testing it for a few days to...

Created By: rosanna1980 | 2013-11-01 18:18 | 349 Views | 2 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have...

Created By: joanneph | 2013-10-31 14:20 | 407 Views | 2 Comments

I was diagnosed two weeks ago with Epilepsy and had my license taken and took back my car (rent to own) but have not met with a doctor yet to even ask questions about this?? I am not on medication...

Created By: kaykunkel | 2013-10-28 17:35 | 263 Views | 2 Comments

Hello,

 

I am a wife of a great man who started experiencing nocturnal tonic-clonic seizures approximately 3 years ago.  Since this started happening, it has completely turned...

Created By: emma coquet | 2013-10-26 11:57 | 885 Views | 6 Comments

My partner is nocturnal epileptic and though infrequently, he does still suffer night-time seizures occasionally. The last but one time this happened I heard the initial stages of the seizure (...

Created By: Mollz | 2013-10-26 01:29 | 291 Views | 2 Comments

Why do I get so tired after I have an aura but no seizure? I have so many questions about everything. Where should I begin. I'm still unsure about what kind of seizures I'm having. Can keppra...

Created By: juggler63 | 2013-10-24 23:37 | 849 Views | 7 Comments

I was diagnosed with having a seizure in July. I am 50 years old. I had seen my psychiatrist and he told me later that I had been "acting odd", although he really couldn't define why he felt that...

Created By: JJMontana4 | 2013-10-24 05:30 | 539 Views | 5 Comments

Hi my name is Judy Johnson. I have been epileptic since 1975. Still can't get under control. now they want to try Gabapentin. I heard there's bad side effects. Any one know about this one?

Created By: UH_Warrior13 | 2013-10-23 14:01 | 119 Views | 0 Comments

hello,

I live in Hawaii and go to UH--Univeristy of Hawaii.

I live on O'ahu in W. Honolulu.

 eash island right now have different temps.  the nig Iland has in the 70s...

Created By: SeizureSavior | 2013-10-21 10:13 | 128 Views | 0 Comments

i have started a indigogo campaign to try and save my sister Ambers Life and My families life..
the story is on the Site..
my sister has 10-20 seizures a day and needs surgery please...

Created By: Soumya Holla K S | 2013-10-21 01:35 | 917 Views | 8 Comments

My daughter was diagnosed for seizures when she was 45 days old. Since then she is under medication. Doctors have tried Topomac, Sabriel, Levipil, Larpose, Gardenal, Valparin and various other...

Created By: rohr28 | 2013-10-19 01:27 | 519 Views | 4 Comments

I am very new to the world of JME.  My son was diagnosed in early September with JME after 3 months of 10-20 times a day of him experiencing dizziness, loss of sight, can hear but unable to...

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