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Topic: Surgery and Devices

Created By: melayton | 2010-10-11 00:05 | 1249 Views | 12 Comments

 Our 16 year old son has a benign tumor in his left temporal lobe. We have been through a barrage of tests (FMRI's, EEG's Video monitoring, etc etc) to identify seizure activity and location etc...

Created By: rosegirl | 2010-10-03 20:00 | 99 Views | 4 Comments

Has anyone and I mean anyone had or has contact with someone with frontal lobe epilepsy? I am one of the few, it seems that exist on this site. I only ask because I am considering surgery and I'd...

Created By: happygirl | 2010-09-27 05:39 | 301 Views | 5 Comments

Hi,

Had surgery 2 months ago - and meeting with my neurosurgeon and neurologist today.  These people are impossible to speak to on the phone, so intend taking full advantage of this...

Created By: mmmMatto | 2010-09-21 21:43 | 32 Views | 0 Comments

Hi, I'm new here and this is my first post.

I'm 29, and I've had right temporal lobe epilepsy my whole life. I've been through pretty much all the different meds and my seizures still...

Created By: vigga60@hotmail.com | 2010-09-15 18:57 | 82 Views | 1 Comment

Isn´t somebody who has had surgery twice for Temporal lobe - left side who could tell me how it did come out, did it make good results to get surgery twice or not ? Should I dear to have surgery...

Created By: jebachman | 2010-09-14 16:48 | 174 Views | 0 Comments

My daughter is on the penultimate attempted treatment before her doctors (at Mayo Clinic) move to recommending a hemispherectomy. Does anyone have any ideas for specialists in CSWS, so that I can...

Created By: happygirl | 2010-09-02 02:05 | 268 Views | 10 Comments

 

Hi All,

I had left temporal lobe surgery on the 12th July this year.  The first month was great - nothing really to complain about and I spent most of my days going for walks...

Created By: Kaylin | 2010-08-22 16:11 | 565 Views | 8 Comments

My 11 year old son had epilepsy surgery 4 weeks ago, following partial complex seizures that were being triggered by scar tissue in the parietal lobe.  Specifically a parietal lob resection. I...

Created By: fxdlnow | 2010-08-02 11:17 | 75 Views | 0 Comments

my son had brain surgery on the 20th of july 2010 to remove part of his right front temporal lobe. the surgery seems to be a success..... 2 seixures in 10 days versus several a day... docs blame...

Created By: peterm | 2010-08-02 02:30 | 113 Views | 1 Comment

Hi,

I am about to undertake the video monitoring at Austin melbourne then hopefully surgery .

I am wondering if anyone has had the surgery with children. My wife and I have a...

Created By: gails90 | 2010-07-30 22:51 | 117 Views | 1 Comment
Hi
I had a temporal lobe lobectomy operation (left) about a month ago.   I have very frizzy hair...
Created By: mzholley | 2010-07-27 12:05 | 828 Views | 5 Comments

I was wondering if anyone out there has been diagnosed with seizure disorder sometime after major surgery??  My husband was completely normal other than his major back problems.  Finally got to...

Created By: gails90 | 2010-07-24 20:50 | 93 Views | 1 Comment

Hi,

Had surgery two weeks ago.  I am trying to get around via public transport to a location about 3 miles away via public transport, but some people are telling me that I should not be...

Created By: gails90 | 2010-07-23 19:12 | 120 Views | 1 Comment

Hi,

I had left temporal lobe epilepsy surgery 12 days ago and have now discovered that my hearing on the right hand side of by brain is distorted.  It is difficult to understand...

Created By: ericjn | 2010-07-19 14:28 | 245 Views | 0 Comments

 

My son was admitted 4 weeks ago to have the phase 2 grid inserted.  He is still waiting to have enough seizures to see if surgery is an option.  When he started through this process,...

Created By: tiffinaz | 2010-07-09 23:38 | 271 Views | 6 Comments

Two weeks (6-23-10) ago I had my right hippocampus, right amygdala, and a developmental abnormality removed. Before that I had the depth wires and a grid electrode on the right. Now I am at home...

Created By: tiffinaz | 2010-07-07 22:51 | 570 Views | 4 Comments

Hi everyone, I had my right hippocampus, right amygdala, and a devolopmental abnormality removed 3 weeks ago and I am still having REALLY BAD headaches. Nothing seems to work for them. I have...

Created By: tiffinaz | 2010-06-30 01:08 | 1165 Views | 3 Comments

Hi everyone, I just had my right hippocampus, amygdala, and a heterotopia removed a week ago to hopefully stop my seizures. I had the depth wires/grid for a week and then the big surgery. the mri...

Created By: mark_88 | 2010-06-25 22:35 | 192 Views | 3 Comments

Well this forum is more towards people who have had the surgery done or anyone who has had medication withdrawls/reduction. My issue being now that I have been seizure free since october and...

Created By: tiffinaz | 2010-06-22 17:59 | 202 Views | 2 Comments

I have bi-lateral periventricular heteropia and I am having surgery tomorrow-6-23-10!! They are going to remove my right hippocampus, amygdala, and heteroptopia. I have the depth wires/grid in...

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