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Topic: Surgery and Devices

Created By: GodivaGirl | 2011-04-02 22:39 | 268 Views | 3 Comments

Hi,
I'm not sure if it is life that is overwhelming, or what, but I thought I'd ask.
Right now, I'm on Topomax 200mg 2 x day, Keppra 750 3 x day, Clobazam 20mg 2 x day, as some time...

Created By: Massey | 2011-03-15 11:32 | 370 Views | 6 Comments

Can you recommend one for a 22 year old?

 We're out of hope with the numerous delays at the facility that is 'treating' his epilepsy now.

Created By: msuldan | 2011-03-12 20:44 | 210 Views | 1 Comment

Has anyone had surgery at Johns Hopkins? I would be interested in hearing about the inpatient stay, the care received, the post-surgery care, etc. ( and does the surgeon insist on shaving your...

Created By: msuldan | 2011-03-07 14:48 | 341 Views | 5 Comments

Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion about surgery.

Created By: walktall | 2011-03-03 15:00 | 313 Views | 7 Comments

Hi everybody,

I have had epilepsy since I was 15, never been able to control it so my neurologist sent me to Rush University Medical Center in Chicago Il where a team of amazing...

Created By: stephanieev | 2011-02-18 13:17 | 365 Views | 0 Comments

My husband  Bryan was diagnosed with a Ganglioglioma Tumor two months ago.  He is choosing to remove the tumor and is scheduled for the 8th of March for a Awake Brain...

Created By: phylisfjohnson | 2011-02-18 10:56 | 217 Views | 0 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it...

Created By: sjsh93 | 2011-02-15 17:47 | 280 Views | 4 Comments

I was diagnosed with epilepsy in 2001 and had a corrective surgery in 2007. I've been seizure free since, and I was wondering, does this mean I don't have epilepsy anymore?

I've come...

Created By: msuldan | 2011-02-12 20:17 | 250 Views | 3 Comments

Is there anyone who has had surgery (temporal lobe surgery) who can speak to effects on ability to read music / play an instrument? I am terribly afraid of losing my ability to read music...

Created By: lisaritten | 2011-02-10 16:54 | 245 Views | 4 Comments

My 11 year old son has had complex partial seizures for 3 1/2 years that have not been controlled by meds.  He is on medication #5 and #6 (Keppra and Trileptal) but still has 1-3 seizures in his...

VNS
Created By: dennis100 | 2011-02-09 14:15 | 161 Views | 1 Comment

I was nearly killed by the VNS. My story was told in the British Medical Journal and Reader's Digest. If you have the implant, lost a loved one with device or if you are contemplating VNS surgery...

Created By: jyhprice | 2011-02-07 13:47 | 3025 Views | 20 Comments

I am scheduled for left temporal lobe surgery in about 2 months and was wondering if it would be better to just shave my head and let it start scratch from the beginning, or just let them shave...

Created By: peytonwelch | 2011-02-07 12:06 | 288 Views | 0 Comments

I have posted a few...

Created By: Jolrat | 2011-02-02 13:50 | 980 Views | 4 Comments

     I finally gave into having this surgery in Oct of 2010 after numerous seizures and many different medications. It has helped me very much!  I have not come off of any of my medication yet...

Created By: shrikesriya | 2011-01-29 04:41 | 139 Views | 0 Comments

Hello Friends ,

 

i am new here. so hiiiiiiiiiiiiiiiii to everyone.  i am ankit jain. my mom is patient of epilepsy. and i want to know about best epilepsy treatment center in...

Created By: bsiphavong | 2011-01-26 00:57 | 155 Views | 1 Comment

Hi everyone,
My name is Beron from Atlanta, Ga. I have a younger brother who has suffered with seizures since he was about 6 years old. He is now 18 and just went through...

Created By: luv_night_life | 2011-01-25 02:18 | 186 Views | 1 Comment

I have already had a Right Temporal Lobectomy three years ago. I did have some bad complications though after the surgery. Even though there were complications I feel like it did reduce my...

Created By: yellow821 | 2011-01-24 08:40 | 133 Views | 0 Comments

I'm on 3000 mg of generic Keppra since July and increasing my generic Topamax 100 mg (up to 400 mg) for migraines and seizures.  I have partials. My neuro has recommended the VNS.  I don't know...

Created By: dalyru215 | 2011-01-21 16:20 | 474 Views | 12 Comments

Hello-

My neurologist has recommended that at temporal lobectomy is the next logical step for me. Can anyone recommend --or NOT recommend-- a neurosurgeon in the Philadelphia area?...

Created By: happygirl | 2011-01-17 04:00 | 198 Views | 3 Comments

Hi Everyone,

I am thinking of changing my name to sad gir!!

I saw my neurologist today. 6 months after my operation, and I think that I have had two seizures (absence seizures...

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