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Topic: Surgery and Devices

Created By: phylisfjohnson | 2011-02-18 10:56 | 204 Views | 0 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it...

Created By: sjsh93 | 2011-02-15 17:47 | 248 Views | 4 Comments

I was diagnosed with epilepsy in 2001 and had a corrective surgery in 2007. I've been seizure free since, and I was wondering, does this mean I don't have epilepsy anymore?

I've come...

Created By: msuldan | 2011-02-12 20:17 | 216 Views | 3 Comments

Is there anyone who has had surgery (temporal lobe surgery) who can speak to effects on ability to read music / play an instrument? I am terribly afraid of losing my ability to read music...

Created By: lisaritten | 2011-02-10 16:54 | 217 Views | 4 Comments

My 11 year old son has had complex partial seizures for 3 1/2 years that have not been controlled by meds.  He is on medication #5 and #6 (Keppra and Trileptal) but still has 1-3 seizures in his...

VNS
Created By: dennis100 | 2011-02-09 14:15 | 147 Views | 1 Comment

I was nearly killed by the VNS. My story was told in the British Medical Journal and Reader's Digest. If you have the implant, lost a loved one with device or if you are contemplating VNS surgery...

Created By: jyhprice | 2011-02-07 13:47 | 2726 Views | 20 Comments

I am scheduled for left temporal lobe surgery in about 2 months and was wondering if it would be better to just shave my head and let it start scratch from the beginning, or just let them shave...

Created By: peytonwelch | 2011-02-07 12:06 | 264 Views | 0 Comments

I have posted a few...

Created By: Jolrat | 2011-02-02 13:50 | 947 Views | 4 Comments

     I finally gave into having this surgery in Oct of 2010 after numerous seizures and many different medications. It has helped me very much!  I have not come off of any of my medication yet...

Created By: shrikesriya | 2011-01-29 04:41 | 130 Views | 0 Comments

Hello Friends ,

 

i am new here. so hiiiiiiiiiiiiiiiii to everyone.  i am ankit jain. my mom is patient of epilepsy. and i want to know about best epilepsy treatment center in...

Created By: bsiphavong | 2011-01-26 00:57 | 145 Views | 1 Comment

Hi everyone,
My name is Beron from Atlanta, Ga. I have a younger brother who has suffered with seizures since he was about 6 years old. He is now 18 and just went through...

Created By: luv_night_life | 2011-01-25 02:18 | 165 Views | 1 Comment

I have already had a Right Temporal Lobectomy three years ago. I did have some bad complications though after the surgery. Even though there were complications I feel like it did reduce my...

Created By: yellow821 | 2011-01-24 08:40 | 127 Views | 0 Comments

I'm on 3000 mg of generic Keppra since July and increasing my generic Topamax 100 mg (up to 400 mg) for migraines and seizures.  I have partials. My neuro has recommended the VNS.  I don't know...

Created By: dalyru215 | 2011-01-21 16:20 | 410 Views | 12 Comments

Hello-

My neurologist has recommended that at temporal lobectomy is the next logical step for me. Can anyone recommend --or NOT recommend-- a neurosurgeon in the Philadelphia area?...

Created By: happygirl | 2011-01-17 04:00 | 174 Views | 3 Comments

Hi Everyone,

I am thinking of changing my name to sad gir!!

I saw my neurologist today. 6 months after my operation, and I think that I have had two seizures (absence seizures...

Created By: susan57 | 2011-01-14 08:50 | 259 Views | 5 Comments

Our son is 37 years old and down syndrome. He has had seizures since he was 21 years old. Medications are not working,he has tried all. I mean all!!  He is schedule for a corpus colostomy at...

Created By: rose25 | 2011-01-11 22:26 | 184 Views | 4 Comments

My one year old daughter is on her second medication and the seizures are still not controlled.  Our doctor wants to do surgery to remove the abnormal area of her brain that is causing the...

Created By: happygirl | 2011-01-09 00:55 | 128 Views | 0 Comments

It is now the 6 month mark since surgery, and I am still finding things hard. I have been advised of two seizures in the last 6 weeks (not aware of any before then).

  • Do you think...
Created By: peytonwelch | 2011-01-06 11:28 | 1341 Views | 28 Comments

May have brain surgery...Need advice!!!!

This is the first time I have ever used this website, so please forgive me if I miss something.  So, here's my story...I am 31 years old.  I was...

Created By: Spike. | 2010-12-30 19:39 | 163 Views | 0 Comments

While watching ABC news this evening (Thursday, December 30, 2010) the news anchor gave some brief information about a baby that had half of his...

Created By: savm | 2010-12-17 13:41 | 168 Views | 1 Comment

I am having many side effects from meds, lack of seizure control and running out of ideas.  Dr suggested VNS and would like some feedback from people that considered or had this done. All input...

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