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Topic: Surgery and Devices

Created By: Kenny782 | 2011-04-19 03:58 | 285 Views | 4 Comments

I'm 28, I've had epilepsy since 13 or 14 for no good reason.

I've been going to NYU for the last 3 years (doctor #3) and they've run me through the last few pills I hadn't been on. I don...

Created By: cannas | 2011-04-15 16:40 | 163 Views | 2 Comments

Dull week in general, no seizures, although my veeg throughout the week was again abnormal. Took me off my meds and remembered what I used to feel like (I respond very well to meds but I guess not...

Created By: mandyjane | 2011-04-13 12:07 | 115 Views | 0 Comments

I had surgery for my epilepsy after 40 yearsof suffering with it, six months ago. Yet still regularlyget goosepimples which always used to be the beginnings of my fits do others have this and is...

Created By: susan57 | 2011-04-07 16:41 | 589 Views | 5 Comments

Our son Sean had surgery Jan 26, 2010. He is down syndrome. It has cut his seizures in half. He woke up after a week and was paralazyed, couldn't not speak, eat . He couldn't not breathe on his...

Created By: rnlora | 2011-04-06 17:26 | 112 Views | 0 Comments

I am a RN that was diagnosed with epilepsy in 2007 at the age of 32. All testing normal, EEG, MRI, CT....but witnessed seizure activity by fellow nurses and doctors. After trying to control my...

Created By: porterhouse | 2011-04-04 20:22 | 259 Views | 6 Comments

I am trying to decide whether or not to have surgery.  I have a question for those that have had surgery.  Are you able to take care of yourself after surgery or do you need assistance?  I am not...

Created By: GodivaGirl | 2011-04-02 22:39 | 218 Views | 3 Comments

Hi,
I'm not sure if it is life that is overwhelming, or what, but I thought I'd ask.
Right now, I'm on Topomax 200mg 2 x day, Keppra 750 3 x day, Clobazam 20mg 2 x day, as some time...

Created By: Massey | 2011-03-15 11:32 | 271 Views | 6 Comments

Can you recommend one for a 22 year old?

 We're out of hope with the numerous delays at the facility that is 'treating' his epilepsy now.

Created By: msuldan | 2011-03-12 20:44 | 164 Views | 1 Comment

Has anyone had surgery at Johns Hopkins? I would be interested in hearing about the inpatient stay, the care received, the post-surgery care, etc. ( and does the surgeon insist on shaving your...

Created By: msuldan | 2011-03-07 14:48 | 243 Views | 5 Comments

Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion about surgery.

Created By: walktall | 2011-03-03 15:00 | 215 Views | 7 Comments

Hi everybody,

I have had epilepsy since I was 15, never been able to control it so my neurologist sent me to Rush University Medical Center in Chicago Il where a team of amazing...

Created By: stephanieev | 2011-02-18 13:17 | 300 Views | 0 Comments

My husband  Bryan was diagnosed with a Ganglioglioma Tumor two months ago.  He is choosing to remove the tumor and is scheduled for the 8th of March for a Awake Brain...

Created By: phylisfjohnson | 2011-02-18 10:56 | 184 Views | 0 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it...

Created By: sjsh93 | 2011-02-15 17:47 | 218 Views | 4 Comments

I was diagnosed with epilepsy in 2001 and had a corrective surgery in 2007. I've been seizure free since, and I was wondering, does this mean I don't have epilepsy anymore?

I've come...

Created By: msuldan | 2011-02-12 20:17 | 193 Views | 3 Comments

Is there anyone who has had surgery (temporal lobe surgery) who can speak to effects on ability to read music / play an instrument? I am terribly afraid of losing my ability to read music...

Created By: lisaritten | 2011-02-10 16:54 | 189 Views | 4 Comments

My 11 year old son has had complex partial seizures for 3 1/2 years that have not been controlled by meds.  He is on medication #5 and #6 (Keppra and Trileptal) but still has 1-3 seizures in his...

VNS
Created By: dennis100 | 2011-02-09 14:15 | 128 Views | 1 Comment

I was nearly killed by the VNS. My story was told in the British Medical Journal and Reader's Digest. If you have the implant, lost a loved one with device or if you are contemplating VNS surgery...

Created By: jyhprice | 2011-02-07 13:47 | 2465 Views | 20 Comments

I am scheduled for left temporal lobe surgery in about 2 months and was wondering if it would be better to just shave my head and let it start scratch from the beginning, or just let them shave...

Created By: peytonwelch | 2011-02-07 12:06 | 232 Views | 0 Comments

I have posted a few...

Created By: Jolrat | 2011-02-02 13:50 | 920 Views | 4 Comments

     I finally gave into having this surgery in Oct of 2010 after numerous seizures and many different medications. It has helped me very much!  I have not come off of any of my medication yet...

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