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Topic: Surgery and Devices

Created By: rnlora | 2011-04-06 17:26 | 92 Views | 0 Comments

I am a RN that was diagnosed with epilepsy in 2007 at the age of 32. All testing normal, EEG, MRI, CT....but witnessed seizure activity by fellow nurses and doctors. After trying to control my...

Created By: porterhouse | 2011-04-04 20:22 | 232 Views | 6 Comments

I am trying to decide whether or not to have surgery.  I have a question for those that have had surgery.  Are you able to take care of yourself after surgery or do you need assistance?  I am not...

Created By: GodivaGirl | 2011-04-02 22:39 | 191 Views | 3 Comments

Hi,
I'm not sure if it is life that is overwhelming, or what, but I thought I'd ask.
Right now, I'm on Topomax 200mg 2 x day, Keppra 750 3 x day, Clobazam 20mg 2 x day, as some time...

Created By: Massey | 2011-03-15 11:32 | 230 Views | 6 Comments

Can you recommend one for a 22 year old?

 We're out of hope with the numerous delays at the facility that is 'treating' his epilepsy now.

Created By: msuldan | 2011-03-12 20:44 | 137 Views | 1 Comment

Has anyone had surgery at Johns Hopkins? I would be interested in hearing about the inpatient stay, the care received, the post-surgery care, etc. ( and does the surgeon insist on shaving your...

Created By: msuldan | 2011-03-07 14:48 | 206 Views | 5 Comments

Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion about surgery.

Created By: walktall | 2011-03-03 15:00 | 178 Views | 7 Comments

Hi everybody,

I have had epilepsy since I was 15, never been able to control it so my neurologist sent me to Rush University Medical Center in Chicago Il where a team of amazing...

Created By: stephanieev | 2011-02-18 13:17 | 259 Views | 0 Comments

My husband  Bryan was diagnosed with a Ganglioglioma Tumor two months ago.  He is choosing to remove the tumor and is scheduled for the 8th of March for a Awake Brain...

Created By: phylisfjohnson | 2011-02-18 10:56 | 167 Views | 0 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it...

Created By: sjsh93 | 2011-02-15 17:47 | 192 Views | 4 Comments

I was diagnosed with epilepsy in 2001 and had a corrective surgery in 2007. I've been seizure free since, and I was wondering, does this mean I don't have epilepsy anymore?

I've come...

Created By: msuldan | 2011-02-12 20:17 | 169 Views | 3 Comments

Is there anyone who has had surgery (temporal lobe surgery) who can speak to effects on ability to read music / play an instrument? I am terribly afraid of losing my ability to read music...

Created By: lisaritten | 2011-02-10 16:54 | 170 Views | 4 Comments

My 11 year old son has had complex partial seizures for 3 1/2 years that have not been controlled by meds.  He is on medication #5 and #6 (Keppra and Trileptal) but still has 1-3 seizures in his...

VNS
Created By: dennis100 | 2011-02-09 14:15 | 109 Views | 1 Comment

I was nearly killed by the VNS. My story was told in the British Medical Journal and Reader's Digest. If you have the implant, lost a loved one with device or if you are contemplating VNS surgery...

Created By: jyhprice | 2011-02-07 13:47 | 2252 Views | 20 Comments

I am scheduled for left temporal lobe surgery in about 2 months and was wondering if it would be better to just shave my head and let it start scratch from the beginning, or just let them shave...

Created By: peytonwelch | 2011-02-07 12:06 | 192 Views | 0 Comments

I have posted a few...

Created By: Jolrat | 2011-02-02 13:50 | 901 Views | 4 Comments

     I finally gave into having this surgery in Oct of 2010 after numerous seizures and many different medications. It has helped me very much!  I have not come off of any of my medication yet...

Created By: shrikesriya | 2011-01-29 04:41 | 102 Views | 0 Comments

Hello Friends ,

 

i am new here. so hiiiiiiiiiiiiiiiii to everyone.  i am ankit jain. my mom is patient of epilepsy. and i want to know about best epilepsy treatment center in...

Created By: bsiphavong | 2011-01-26 00:57 | 105 Views | 1 Comment

Hi everyone,
My name is Beron from Atlanta, Ga. I have a younger brother who has suffered with seizures since he was about 6 years old. He is now 18 and just went through...

Created By: luv_night_life | 2011-01-25 02:18 | 128 Views | 1 Comment

I have already had a Right Temporal Lobectomy three years ago. I did have some bad complications though after the surgery. Even though there were complications I feel like it did reduce my...

Created By: yellow821 | 2011-01-24 08:40 | 96 Views | 0 Comments

I'm on 3000 mg of generic Keppra since July and increasing my generic Topamax 100 mg (up to 400 mg) for migraines and seizures.  I have partials. My neuro has recommended the VNS.  I don't know...

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