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Topic: Surgery and Devices

Created By: chic | 2005-05-24 17:11 | 99 Views | 2 Comments

Our daughter has just done a video eeg. We thought the seizures were comming from the temporal lobe, but have now found they are originating in the parietal lobe. She goes for MRI tomorrow to see...

Created By: kja326 | 2005-05-21 16:52 | 414 Views | 17 Comments

Hi, my name is Kathy and my twin sister has had epilepsy for 30 + yrs.  She has been ok'd for left temporal lobe brain surgery in the near future. Is there anyone out there who has had the surgery...

Created By: meningiomamommakelli | 2005-05-12 22:28 | 208 Views | 16 Comments

hello there,I have posted many times here and thought I would update all of you on my progress. A week ago yesterday I had brain surgery to have a right temporal lobe meninigoma brain tumor...

Created By: Belinda | 2005-05-03 08:56 | 289 Views | 24 Comments

Hi I'm going through more again and again.Brain surgery I've had they won't operate on my left side .Right Side was operated on scar tissue was removed.Seizures coming from other side now.VNS...

Created By: mak1123 | 2005-04-27 00:08 | 129 Views | 7 Comments

my seizures are left temporals, my MRI s show nothing abnormal.  I have smaller seizures once a week, and a few gran mals a year.  my meds are having control of my life.  my memory is slowly...

Created By: cedar | 2005-04-25 10:34 | 52 Views | 1 Comment

I have just returned from seeing my Epileptologist and reported how once the VNS was turned off I felt so much better and that my Seizures went from alot while it was on, to only a few. She wants...

Created By: cedar | 2005-04-19 18:10 | 653 Views | 38 Comments

I had to post this here as I posted in the General Folder but I find this a good place this. I had the VNS implanted last Fall, lost my voice for 8 weeks due to vocal cord paralysis, once back I...

Created By: saffr0n | 2005-04-14 01:44 | 93 Views | 3 Comments

Hi there, my husband and I just visited the surgeon last week and he informed us that the only real option now is surgery. Tabs haven't been working and are unlikely to after a period of 5 yrs sz...

Created By: sgbintx | 2005-04-12 08:55 | 36 Views | 0 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: sgbintx | 2005-04-12 08:54 | 79 Views | 4 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: marylg | 2005-04-08 14:29 | 93 Views | 3 Comments

Hi, my name is Mary and I began having epileptic seizures at age 2, and I went through so many obstacles.  My mom thought they were night terrors, but EEG and MRI testing proved wrong spring 2000...

Created By: jason31 | 2005-03-25 11:19 | 43 Views | 1 Comment

 My Son, Collin, Has parietal epilepsy and he has been on 5 or 6 meds but, they are uncontrollable.Do you know of anyone who has had this type of epilepsy surgery?Thank You,Jason...

Created By: karencps | 2005-03-25 09:06 | 209 Views | 11 Comments

Has anyone attended the Andrews-Reiter Epilepsy Treatment Program?

Created By: cedar | 2005-03-24 18:51 | 90 Views | 4 Comments

Hi there, I am new to the vns in that I had it put in last September, Then had complications with loosing my voice for a long time. Thought I would remove the VNS. Now 6 months later I still have...

Created By: cedar | 2005-03-20 10:56 | 48 Views | 1 Comment

I am looking to connect with any one who has intractable seizures , had a VNS (with success) put in and is sensitive to the settings. I had one put in last September 04. Following I lost my voice...

Created By: cedar | 2005-03-20 10:21 | 63 Views | 2 Comments

Well I know I have a pretty sensitive body and it will tell me when something is working or not. So I have intractable epilepsy, I do not have many more options and so had the VNS put in. After...

Created By: mrdavids | 2005-03-01 10:25 | 47 Views | 0 Comments

Hi,I have been suffering from partial complex seizures for 7 years (Jackson syndrome) and have tried most medications and am currently on 600mg's Topomax and 1800 mg's Tegretol a day.My seizures...

Created By: spenserman | 2005-02-21 20:03 | 394 Views | 9 Comments

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago.  He has been very sick since the surgery.  His temp goes up to 103 or higher every day.  He...

Created By: rhona | 2005-02-07 11:06 | 80 Views | 2 Comments

Hello.....ok, where to begin!  My daughter is 13 years old, her name is Caylan.  When she was 5 years old her first ever (that we knew about anyway) seizure was Status.  I went into her room one...

Created By: nicey | 2005-02-06 15:58 | 43 Views | 0 Comments

 Hello!  I have been having seizures since 199, the doctors still have no idea where they are coming from.  From what I know I was never in an accident or had any kind of head enjury.  Just way...

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