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Topic: Surgery and Devices

Created By: spenserman | 2005-02-21 20:03 | 274 Views | 9 Comments

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago.  He has been very sick since the surgery.  His temp goes up to 103 or higher every day.  He...

Created By: rhona | 2005-02-07 11:06 | 54 Views | 2 Comments

Hello.....ok, where to begin!  My daughter is 13 years old, her name is Caylan.  When she was 5 years old her first ever (that we knew about anyway) seizure was Status.  I went into her room one...

Created By: nicey | 2005-02-06 15:58 | 24 Views | 0 Comments

 Hello!  I have been having seizures since 199, the doctors still have no idea where they are coming from.  From what I know I was never in an accident or had any kind of head enjury.  Just way...

Created By: alexa | 2005-02-02 16:08 | 570 Views | 29 Comments

could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth...

Created By: aprilmay | 2005-02-01 13:46 | 120 Views | 8 Comments

 I have recently been diagnosed with temporal lobe epilepsy.  I have had these "spells" for about 3 years and never in a million years would I have imagined epilepsy!  When I would have the spells...

Created By: jdurrua | 2005-02-01 09:38 | 3801 Views | 121 Comments

Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Created By: rburford | 2005-02-01 00:45 | 24751 Views | 39 Comments

I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure...

Created By: pmason | 2005-01-28 11:46 | 175 Views | 8 Comments

Does anybody know if there is ANY kind of a device out there for people with epilepsy that can give off a warning when they are about to have a seizure? I know that there are dogs that are...

Created By: jackieoh | 2005-01-21 12:13 | 63 Views | 0 Comments

Hi! My husband had surgery in September, we live on the East Coast and are experiencing very cold weather and since it got cold my husbands head is hurting him so bad he cannot function at all. A...

Created By: aw14187 | 2005-01-17 11:30 | 365 Views | 21 Comments

My 15 year old son's neurologists want to send him to an epilepsy clinic (UCLA) to evaluate him as a candidate for surgery. Right now I am very against him having any surgery and so I am not in...

Created By: karencps | 2004-12-20 17:32 | 140 Views | 5 Comments

Has anyone heard of or had gamma knife surgery for epilepsy? It's laser.

Created By: johnnyt | 2004-12-14 16:20 | 97 Views | 2 Comments

Hi, I'm new to the discussion and I'm considering having the RTL surgery.  If I do opt to have the surgery, I would like to know "what is the duration of time that I can expect to being out of...

Created By: michaelow | 2004-12-13 16:30 | 131 Views | 3 Comments

-Hi my name is Michael              I had brain surgery 5 years ago and have remained    seizure free for this period of time and I am still taking two 400 C tegretol.  I do not have to see my...

Created By: fairylover63 | 2004-12-07 01:55 | 1002 Views | 50 Comments

I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for...

Created By: jani | 2004-11-27 11:19 | 84 Views | 0 Comments

Hi everyone. Found your site by accident as I was searching for information on a surgery that I might be having.I was diagnosed with a seizure disorder after a car accident I was in 4 1/2 yrs ago...

Created By: pennyhickey | 2004-11-22 22:17 | 236 Views | 1 Comment

Hi everyone,I got so much help before when I posted, I have another  question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG?  When my son was in the...

Created By: jenniferej | 2004-09-01 21:51 | 127 Views | 1 Comment

Hi my name is Jennifer Johnson and I am 39 years old with 4 children, 1 bio son of my own and 3 stepchildren, my husband and I have been married 9 years. I started having seizures 17 years ago 3...

Created By: pennyhickey | 2004-09-01 12:10 | 80 Views | 0 Comments

I wonder if someone else has ever had this problem. Bald spots from long term EEG?  When my son was in the hospital they did the long term EEG. Its been 2 months since he's been out and he still...

VNS
Created By: sadierosegray | 2004-07-30 14:14 | 241 Views | 7 Comments

DOES ANYONE HAD ANY BAD EXPERIENCES WITH THE VNS?I AM PLANNING ON HAVING IT DONE AROUND MARCH 16TH IN INDIANAPOLIS,INDIANA AT ST.VINCENTSHOSPITAL.MY SURGEON CLAIMS HE DOES AT LEAST 2 AWEEK.I WOULD...

Created By: bandcheryl | 2004-07-27 14:18 | 82 Views | 0 Comments

Hi, I've already had the right temporal lobe lobectomy last Sept. and it has lessoned my seizures, but I want them gone for good.  I'll take any info, about the surgery of the VNS or...

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