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Topic: Surgery and Devices

Created By: cedar | 2005-03-20 10:56 | 26 Views | 1 Comment

I am looking to connect with any one who has intractable seizures , had a VNS (with success) put in and is sensitive to the settings. I had one put in last September 04. Following I lost my voice...

Created By: cedar | 2005-03-20 10:21 | 51 Views | 2 Comments

Well I know I have a pretty sensitive body and it will tell me when something is working or not. So I have intractable epilepsy, I do not have many more options and so had the VNS put in. After...

Created By: mrdavids | 2005-03-01 10:25 | 33 Views | 0 Comments

Hi,I have been suffering from partial complex seizures for 7 years (Jackson syndrome) and have tried most medications and am currently on 600mg's Topomax and 1800 mg's Tegretol a day.My seizures...

Created By: spenserman | 2005-02-21 20:03 | 312 Views | 9 Comments

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago.  He has been very sick since the surgery.  His temp goes up to 103 or higher every day.  He...

Created By: rhona | 2005-02-07 11:06 | 58 Views | 2 Comments

Hello.....ok, where to begin!  My daughter is 13 years old, her name is Caylan.  When she was 5 years old her first ever (that we knew about anyway) seizure was Status.  I went into her room one...

Created By: nicey | 2005-02-06 15:58 | 28 Views | 0 Comments

 Hello!  I have been having seizures since 199, the doctors still have no idea where they are coming from.  From what I know I was never in an accident or had any kind of head enjury.  Just way...

Created By: alexa | 2005-02-02 16:08 | 612 Views | 29 Comments

could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth...

Created By: aprilmay | 2005-02-01 13:46 | 128 Views | 8 Comments

 I have recently been diagnosed with temporal lobe epilepsy.  I have had these "spells" for about 3 years and never in a million years would I have imagined epilepsy!  When I would have the spells...

Created By: jdurrua | 2005-02-01 09:38 | 4362 Views | 121 Comments

Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Created By: rburford | 2005-02-01 00:45 | 25488 Views | 39 Comments

I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure...

Created By: pmason | 2005-01-28 11:46 | 184 Views | 8 Comments

Does anybody know if there is ANY kind of a device out there for people with epilepsy that can give off a warning when they are about to have a seizure? I know that there are dogs that are...

Created By: jackieoh | 2005-01-21 12:13 | 70 Views | 0 Comments

Hi! My husband had surgery in September, we live on the East Coast and are experiencing very cold weather and since it got cold my husbands head is hurting him so bad he cannot function at all. A...

Created By: aw14187 | 2005-01-17 11:30 | 377 Views | 21 Comments

My 15 year old son's neurologists want to send him to an epilepsy clinic (UCLA) to evaluate him as a candidate for surgery. Right now I am very against him having any surgery and so I am not in...

Created By: karencps | 2004-12-20 17:32 | 149 Views | 5 Comments

Has anyone heard of or had gamma knife surgery for epilepsy? It's laser.

Created By: johnnyt | 2004-12-14 16:20 | 105 Views | 2 Comments

Hi, I'm new to the discussion and I'm considering having the RTL surgery.  If I do opt to have the surgery, I would like to know "what is the duration of time that I can expect to being out of...

Created By: michaelow | 2004-12-13 16:30 | 136 Views | 3 Comments

-Hi my name is Michael              I had brain surgery 5 years ago and have remained    seizure free for this period of time and I am still taking two 400 C tegretol.  I do not have to see my...

Created By: fairylover63 | 2004-12-07 01:55 | 1045 Views | 50 Comments

I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for...

Created By: jani | 2004-11-27 11:19 | 90 Views | 0 Comments

Hi everyone. Found your site by accident as I was searching for information on a surgery that I might be having.I was diagnosed with a seizure disorder after a car accident I was in 4 1/2 yrs ago...

Created By: pennyhickey | 2004-11-22 22:17 | 249 Views | 1 Comment

Hi everyone,I got so much help before when I posted, I have another  question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG?  When my son was in the...

Created By: jenniferej | 2004-09-01 21:51 | 133 Views | 1 Comment

Hi my name is Jennifer Johnson and I am 39 years old with 4 children, 1 bio son of my own and 3 stepchildren, my husband and I have been married 9 years. I started having seizures 17 years ago 3...

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