ADVERTISEMENT
ADVERTISEMENT

Topic: Surgery and Devices

Created By: cedar | 2005-04-19 18:10 | 604 Views | 38 Comments

I had to post this here as I posted in the General Folder but I find this a good place this. I had the VNS implanted last Fall, lost my voice for 8 weeks due to vocal cord paralysis, once back I...

Created By: saffr0n | 2005-04-14 01:44 | 84 Views | 3 Comments

Hi there, my husband and I just visited the surgeon last week and he informed us that the only real option now is surgery. Tabs haven't been working and are unlikely to after a period of 5 yrs sz...

Created By: sgbintx | 2005-04-12 08:55 | 29 Views | 0 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: sgbintx | 2005-04-12 08:54 | 67 Views | 4 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: marylg | 2005-04-08 14:29 | 78 Views | 3 Comments

Hi, my name is Mary and I began having epileptic seizures at age 2, and I went through so many obstacles.  My mom thought they were night terrors, but EEG and MRI testing proved wrong spring 2000...

Created By: jason31 | 2005-03-25 11:19 | 36 Views | 1 Comment

 My Son, Collin, Has parietal epilepsy and he has been on 5 or 6 meds but, they are uncontrollable.Do you know of anyone who has had this type of epilepsy surgery?Thank You,Jason...

Created By: karencps | 2005-03-25 09:06 | 183 Views | 11 Comments

Has anyone attended the Andrews-Reiter Epilepsy Treatment Program?

Created By: cedar | 2005-03-24 18:51 | 77 Views | 4 Comments

Hi there, I am new to the vns in that I had it put in last September, Then had complications with loosing my voice for a long time. Thought I would remove the VNS. Now 6 months later I still have...

Created By: cedar | 2005-03-20 10:56 | 36 Views | 1 Comment

I am looking to connect with any one who has intractable seizures , had a VNS (with success) put in and is sensitive to the settings. I had one put in last September 04. Following I lost my voice...

Created By: cedar | 2005-03-20 10:21 | 55 Views | 2 Comments

Well I know I have a pretty sensitive body and it will tell me when something is working or not. So I have intractable epilepsy, I do not have many more options and so had the VNS put in. After...

Created By: mrdavids | 2005-03-01 10:25 | 41 Views | 0 Comments

Hi,I have been suffering from partial complex seizures for 7 years (Jackson syndrome) and have tried most medications and am currently on 600mg's Topomax and 1800 mg's Tegretol a day.My seizures...

Created By: spenserman | 2005-02-21 20:03 | 350 Views | 9 Comments

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago.  He has been very sick since the surgery.  His temp goes up to 103 or higher every day.  He...

Created By: rhona | 2005-02-07 11:06 | 71 Views | 2 Comments

Hello.....ok, where to begin!  My daughter is 13 years old, her name is Caylan.  When she was 5 years old her first ever (that we knew about anyway) seizure was Status.  I went into her room one...

Created By: nicey | 2005-02-06 15:58 | 33 Views | 0 Comments

 Hello!  I have been having seizures since 199, the doctors still have no idea where they are coming from.  From what I know I was never in an accident or had any kind of head enjury.  Just way...

Created By: alexa | 2005-02-02 16:08 | 720 Views | 29 Comments

could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth...

Created By: aprilmay | 2005-02-01 13:46 | 145 Views | 8 Comments

 I have recently been diagnosed with temporal lobe epilepsy.  I have had these "spells" for about 3 years and never in a million years would I have imagined epilepsy!  When I would have the spells...

Created By: jdurrua | 2005-02-01 09:38 | 5255 Views | 122 Comments

Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Created By: rburford | 2005-02-01 00:45 | 26153 Views | 39 Comments

I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure...

Created By: pmason | 2005-01-28 11:46 | 205 Views | 8 Comments

Does anybody know if there is ANY kind of a device out there for people with epilepsy that can give off a warning when they are about to have a seizure? I know that there are dogs that are...

Created By: jackieoh | 2005-01-21 12:13 | 79 Views | 0 Comments

Hi! My husband had surgery in September, we live on the East Coast and are experiencing very cold weather and since it got cold my husbands head is hurting him so bad he cannot function at all. A...

Pages