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Topic: Surgery and Devices

Created By: sophie3272 | 2005-07-31 13:04 | 193 Views | 7 Comments

I have reflex reading epilepsy, which has been extremely difficult to treat since I was diagnosed 3 years ago.  Have gone through drug after drug.  Have myoclonic, GTC, and partial complex...

Created By: EHammarstrom | 2005-07-14 15:15 | 118 Views | 6 Comments

Hello All,I am a 40 year old male who has had E all of my life. I am dealing with it well, sometimes (like all of us), I wish I didnt have E. I know that is selfish for there are people worse off...

Created By: Anonymous | 2005-07-10 23:20 | 117 Views | 0 Comments

Several years after my seizures started in 1987, I started believing that it had something to do with my digestive system. Ever since July 1994, I know it does. With my problems always starting...

Created By: adam | 2005-07-10 07:50 | 658 Views | 8 Comments

I am afraid of cataract surgery if I have a seizure. How can I protect myself and is injury inevitable or not?

Created By: dfriedman | 2005-06-24 01:10 | 41 Views | 1 Comment

Hello everyone,Thank you for your kind words and support.  Here is what happened.   A couple of weeks before the surgery date a group of people came over to my house and prayed over me.  They...

Created By: suten | 2005-06-11 16:54 | 1524 Views | 36 Comments

Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?

Created By: lovinlife78 | 2005-06-09 21:03 | 75 Views | 2 Comments

After years of adjusting his medicine, my boyfriend's neurologist referred him to a specialist (who was outside of his insurance network). His insurance honored the referral and approved a...

Created By: dfriedman | 2005-06-06 08:04 | 562 Views | 26 Comments

Hello everyone,I am having a temproal lobectomy on June 14.  Anyone out there have this surgery?  Please share.Diana

Created By: chic | 2005-05-24 17:11 | 115 Views | 2 Comments

Our daughter has just done a video eeg. We thought the seizures were comming from the temporal lobe, but have now found they are originating in the parietal lobe. She goes for MRI tomorrow to see...

Created By: kja326 | 2005-05-21 16:52 | 463 Views | 17 Comments

Hi, my name is Kathy and my twin sister has had epilepsy for 30 + yrs.  She has been ok'd for left temporal lobe brain surgery in the near future. Is there anyone out there who has had the surgery...

Created By: meningiomamommakelli | 2005-05-12 22:28 | 220 Views | 16 Comments

hello there,I have posted many times here and thought I would update all of you on my progress. A week ago yesterday I had brain surgery to have a right temporal lobe meninigoma brain tumor...

Created By: Belinda | 2005-05-03 08:56 | 346 Views | 24 Comments

Hi I'm going through more again and again.Brain surgery I've had they won't operate on my left side .Right Side was operated on scar tissue was removed.Seizures coming from other side now.VNS...

Created By: mak1123 | 2005-04-27 00:08 | 138 Views | 7 Comments

my seizures are left temporals, my MRI s show nothing abnormal.  I have smaller seizures once a week, and a few gran mals a year.  my meds are having control of my life.  my memory is slowly...

Created By: cedar | 2005-04-25 10:34 | 59 Views | 1 Comment

I have just returned from seeing my Epileptologist and reported how once the VNS was turned off I felt so much better and that my Seizures went from alot while it was on, to only a few. She wants...

Created By: cedar | 2005-04-19 18:10 | 718 Views | 38 Comments

I had to post this here as I posted in the General Folder but I find this a good place this. I had the VNS implanted last Fall, lost my voice for 8 weeks due to vocal cord paralysis, once back I...

Created By: saffr0n | 2005-04-14 01:44 | 105 Views | 3 Comments

Hi there, my husband and I just visited the surgeon last week and he informed us that the only real option now is surgery. Tabs haven't been working and are unlikely to after a period of 5 yrs sz...

Created By: sgbintx | 2005-04-12 08:55 | 45 Views | 0 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: sgbintx | 2005-04-12 08:54 | 95 Views | 4 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after" surgery recovery. His memory is still not...

Created By: marylg | 2005-04-08 14:29 | 106 Views | 3 Comments

Hi, my name is Mary and I began having epileptic seizures at age 2, and I went through so many obstacles.  My mom thought they were night terrors, but EEG and MRI testing proved wrong spring 2000...

Created By: jason31 | 2005-03-25 11:19 | 57 Views | 1 Comment

 My Son, Collin, Has parietal epilepsy and he has been on 5 or 6 meds but, they are uncontrollable.Do you know of anyone who has had this type of epilepsy surgery?Thank You,Jason...

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