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Topic: Surgery and Devices

Created By: babble | 2015-01-25 15:05 | 20 Views | 0 Comments

Within the last month I've had 2 left temporal lobectomys, I've been home for one week today.   My medicines are the same plus a few new meds for post surgery.  I'm having several symptoms,  If...

Created By: jackie_lh | 2015-01-25 12:57 | 17 Views | 1 Comment

Very similar story. Initial VNS in 2007 was a miracle--reduced my use of Topomax to 300mg and within 18 months stopped seizures. Formerly they had been intractable. Also told whole system was...

Created By: 5girls | 2015-01-24 20:28 | 28 Views | 0 Comments
Created By: tongsampah111 | 2015-01-16 08:23 | 20 Views | 0 Comments

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Created By: SunsetGazer | 2015-01-14 19:53 | 84 Views | 0 Comments

<p>Hello, Several years ago I underwent a temporal lobectomy due to seizures that worsened after a car accident. My medications were increased in the time between the accident, where the...

Created By: afodey | 2015-01-14 15:28 | 54 Views | 0 Comments

My neurologist just recommended the VNS to me so, really I'm not to informed on it yet. I've had seizures my whole life and was diagnosed as epileptic when I was about 10, so I'm honestly use to...

Created By: anzella_1267 | 2015-01-14 05:50 | 114 Views | 0 Comments

Hi there,
Just looking for some advice and people's experiences with left temporal lobe surgery.
Specifically if it stopped seizures completely and if medication was no longer...

Created By: harrietfsmith22 | 2015-01-12 09:05 | 55 Views | 0 Comments

Anyone know any information on VNS for Peti-Mal seizures or has had this surgery? Tried all medication and seems like VNS is the only option left.

Any advice/ information would be...

Created By: jehobiewan | 2014-12-30 23:11 | 81 Views | 0 Comments

I recently had my VNS replaced (first one was damaged). I am having difficulty with my new VNS and the neurosurgeon does not know what to do except turn it off.  It is helping me so that is not...

Created By: Anahi | 2014-12-18 19:37 | 214 Views | 0 Comments

HI everyone my name is Anahi, 

I was recently told by my neurologist that he recommends I get brain surgery for my seizures that are localized on my right temporal lobe. It being brain...

Created By: ahurse1 | 2014-12-17 11:17 | 99 Views | 0 Comments

I am searching for a solution for my wife who was diagnosed with Epilepsy at age 18.  Seizure frequency was 1 per year.  In late 2013 she underwent a right frontal lobe resection.  The pathology...

Created By: jfurrer | 2014-12-16 11:20 | 118 Views | 0 Comments

Our son Joseph has a "Congenital Migratory Anomaly" which makes his left temporal lobe non-functional.  He has learning delays and 4-5 seizures per day while on medication.  We are seeking...

Created By: jehobiewan | 2014-12-13 02:03 | 111 Views | 0 Comments

I am hoping there is someone else out there that has heard of this.  I had my first VNS in March of 2007.  Aside from swelling and difficulty talking, the surgery went well.  I had to have a...

Created By: sfc10orio@gmail.com | 2014-12-03 08:03 | 148 Views | 2 Comments

Hello,

My daughter has had surgery on her Left Temporal Lobe that controls her right arm on 19 Nov 14. The surgery was successful but she lost control of her entire right arm which requires...

Vns
Created By: Jademunoz | 2014-11-20 15:23 | 154 Views | 1 Comment

Hi, this is my first post so I'm new to this. I'm a 28 yr old female with partial seizures who just got the vns surgery on the 14th. Of this month. Know I can barely talk and sometimes when I take...

Created By: maxi4rudy | 2014-11-14 01:18 | 170 Views | 1 Comment

I'm scheduled to have VNS surgery and I'm just curious about others experiences who have had the surgery. Did it has help in reducing generalized seizures? Also recovery time from the surgery and...

Created By: telisha.necole@gmail.com | 2014-11-10 09:56 | 131 Views | 0 Comments

Hi, I'm new to using this site so I hope I'm doing it correctly. I had my vns implanted at the age of 14 in 2003. On Thursday Nov 6th 2014 I got a battery replacement. About 3 years ago I started...

Created By: photoguy | 2014-11-03 07:57 | 259 Views | 0 Comments

I just completed my path to surgery. Thought I would start a "blog" to help put some information out there for others that have questions (tests, timing, what to expect, etc...)

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Created By: Dpayne | 2014-11-02 14:49 | 302 Views | 2 Comments

I am a 44 year old male who has had seizures for about 25 years.  Up until a year ago my seizures were nothing more than simple partial seizures that occurred about every 30 days, upon which I...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 195 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

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