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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: mom1980 | 2004-03-21 00:34 | 154 Views | 2 Comments

I need a forum to speak openly about frustrations concerning my relationship with my son age 23 who has had epilepsy ADHD since he was 14. Does anyone have an idea ?

Created By: picnupthepcs | 2004-03-18 12:59 | 155 Views | 3 Comments

Well I have finally started seeing a new Neurologyst, and have new hope. I was very surprissed at the questions he asked and the history he wanted from me as none of the others seemed to be as...

Created By: mbunce220 | 2004-03-09 21:42 | 179 Views | 4 Comments

He started having grand mal seizures at age 16. He is now 24 & is taking Carbatrol, 5 pills per day. He is not allowed to drive, he can't keep a job (he lost 3 in the past year due to...

Created By: cinci | 2004-03-03 23:56 | 153 Views | 2 Comments

I work for Market Inquiry, a research company in Cincinnati, OH. We are conducting a highly confidential study in the field of epilepsy. This research project provides an opportunity for sufferers...

Created By: ghostmatrix35 | 2004-02-26 21:48 | 101 Views | 0 Comments

was on a chatroom... and they laugh cuz i have epilepsy.. maybe they think im psychological impaired..or maybe im a moron.. which really hurt .. i had epilepsy for 18 years now first time... i had...

Created By: mandismom | 2004-02-25 18:31 | 96 Views | 0 Comments

posting a little wonderful news, my mandi is 13 and she has been diagnosed and living with epilepsy for 8 years now. She has partial/compley intractable seizures . she is currently very controlled...

Created By: momof1 | 2004-02-22 14:08 | 388 Views | 6 Comments

Has this ever happened to anyone?2 months ago I had a seizure while driving. I hadn't had one while awake for over a year. I woke up in the back of a police car. Asked where I was and was told...

Created By: dawesberry | 2004-02-22 00:09 | 228 Views | 5 Comments

I'm not clear on this point, but I think I remember my daughter's neurologist saying, when I asked what the harm of having a seizure is, that each seizure "widens the pathway for more seizures to...

Created By: momof1 | 2004-02-21 08:44 | 187 Views | 3 Comments

I generally have seizures in my sleep. When I do have them during the day I can feel it coming. I believe that this is an aura. I can't describe it, but the feeling terrifies me. I have had a...

Created By: swoina | 2004-02-20 21:06 | 213 Views | 4 Comments

My name is Shawn, and my daughter Emily has been diagnosed with Frontal Lobal Epilepsy. The scary thing is they put her on medication and the seizures didn't get any better. She out of the blue...

Created By: gypsi | 2004-02-19 19:31 | 134 Views | 1 Comment

I posted in October when my daughters ped. said that she had "absence seizures" and we were waiting to see the neurologist. Well, according to her EEG he told us that she has frontal lobe complex...

Created By: maureenspencer | 2004-02-13 16:46 | 86 Views | 0 Comments

I am currently undergoing tests for epilepsy surgery, I am very apprehensive about surgery if all the tests prove to be in favour of having surgery. I have been having seizures for about 7 years...

Created By: tracul2004 | 2004-02-11 21:12 | 178 Views | 0 Comments

Well...now that's what I say,,,(wewillow. who wrote this to begin with & I'm sure you know who you are,"BRO".)I completely agree with you,,& I have "ALSO" had that done to me,,& it's "...

Created By: grabenhofers6 | 2004-02-05 14:10 | 153 Views | 1 Comment

Hi- my name is amanda and I just joined. I have 15month old BGG triplets and we just found out that one of my Girls, Abigail, has Benin Partial Epilepsy with the tendancy towards focal seizures...

Created By: sassygoose | 2004-01-28 14:16 | 1364 Views | 5 Comments

My 2 year old son has been having seizures that occur mostly before he falls asleep or he is awakened 4-6 hours into sleep. They have also occurred briefly during the day; when he is in a relaxed...

Created By: mumoft | 2004-01-27 15:39 | 328 Views | 2 Comments

Wondering if there are any other parents or epileptics that have experience with sibling epilepsy? Both my kids started seizuring at 18 months old and both have intractable epilepsy. Any support...

Created By: sylvia627 | 2004-01-26 19:08 | 136 Views | 0 Comments

my daughter started a community service program, www.choresforcharity.com to help create awareness and fundraise for about epilepsy organizations.......

Created By: mandismom | 2004-01-22 16:33 | 276 Views | 3 Comments

my daughter mandi has frequent intreverted times and it is making me nervous. she is on topamax and adderall xr and she has not had a grand mal since april. she however has been told that we will...

Created By: jalbert | 2004-01-22 15:37 | 183 Views | 1 Comment

Hi,My name is Jackie I have had JME since I was 13 years. I have had only 7 or 8 grand mals during my life, however I have been having myoclonic jerks most mornings for the last 15 years. These...

Created By: angesext | 2004-01-17 07:37 | 255 Views | 4 Comments

My husband had a seizure about two months ago all his test came back fine we decided to go ahead and for him to be put on Dilantin because his job requires driving. My question is will this...

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