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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: sylvia627 | 2004-04-14 10:08 | 47 Views | 0 Comments

I am a 17 year old girl who started a unique program that allows kids to inrease awareness and raise money for epilepsy from their paid chores, part-time jobs, summer jobs. Over one year, I was...

Created By: annessister | 2004-04-12 12:05 | 84 Views | 2 Comments

My 23 year old sister was diagnosed with epilepsy when she was 8 years old. It is controlled by medication. For some reason, on occasion she will stop taking her meds and then within a week she...

Created By: picnupthepcs | 2004-04-10 02:07 | 65 Views | 1 Comment

My Dr. stopped allowing me to drive sence September of last year and in Michigan you have to be seizure free for 6 months on or off of medication. Needless to say I have been doing very well on...

Created By: aubertjmd | 2004-04-09 12:33 | 838 Views | 14 Comments

I am a 25 year old woman with JME. Can any mothers can tell me about the types of medications they have taken while pregnant? Any discussion I have with my husband about having children is...

Created By: gonzalo_del_bono | 2004-04-06 13:01 | 70 Views | 1 Comment

Hi groupBeen with you all for a while now, its good to know there is support out there. Right better explain myself,I have experienced using Ambulatory EEG devices twice. Thats the kind of EEG...

Created By: ashar1 | 2004-04-05 16:08 | 90 Views | 2 Comments

Our second child, a girl, started having seizures in the third week after birth. Our pediatrician noticed it similar to a seizure and subsequent follow up by the pediatric neurologist with video...

Created By: seeker2 | 2004-04-02 22:30 | 48 Views | 0 Comments

FIND AN EPILEPSY DOCTORThe Epilepsy Foundation and the American Epilepsy Society have teamed up to create an online database for website visitors to find physicians with a special interest in the...

Created By: aubertjmd | 2004-04-02 14:59 | 50 Views | 1 Comment

I am a 25 year old woman and was diagnosed with JME when I had a grand mal seizure at the age of 15. I have a mild form of JME that is controlled with a 500 mg/daily dose of Depakote and a strict...

Created By: robo321 | 2004-04-01 10:26 | 106 Views | 3 Comments

hey. I know absolutly nothing abbout epilepsy, but i have a girlfriend who had quite a bad seizure today. Now she won't/can't (?) talk. I was just wondering if this was a recognised thing...couldn...

Created By: djanee0711 | 2004-03-24 07:35 | 52 Views | 0 Comments

my seven year old son just had stimulator inserted. He hasnt had a siezure in six weeks and doing really good.It has changed our lives.

Created By: kimmie34 | 2004-03-22 12:38 | 126 Views | 3 Comments

yes i not good at this so here goes i have a son that is 11 yrs old he has had seizures since he was 3 mths old dont know why no family history or nothing...we took phenbarbatal..now were on...

Created By: momof1 | 2004-03-21 09:30 | 360 Views | 13 Comments

I recently had a seizure while driving. I had not had one while awake for 3 years before this. I felt it coming and then woke up in the back of a police car. I am still fighting this. My...

Created By: mom1980 | 2004-03-21 00:34 | 99 Views | 2 Comments

I need a forum to speak openly about frustrations concerning my relationship with my son age 23 who has had epilepsy ADHD since he was 14. Does anyone have an idea ?

Created By: picnupthepcs | 2004-03-18 12:59 | 97 Views | 3 Comments

Well I have finally started seeing a new Neurologyst, and have new hope. I was very surprissed at the questions he asked and the history he wanted from me as none of the others seemed to be as...

Created By: mbunce220 | 2004-03-09 21:42 | 106 Views | 4 Comments

He started having grand mal seizures at age 16. He is now 24 & is taking Carbatrol, 5 pills per day. He is not allowed to drive, he can't keep a job (he lost 3 in the past year due to...

Created By: cinci | 2004-03-03 23:56 | 91 Views | 2 Comments

I work for Market Inquiry, a research company in Cincinnati, OH. We are conducting a highly confidential study in the field of epilepsy. This research project provides an opportunity for sufferers...

Created By: ghostmatrix35 | 2004-02-26 21:48 | 52 Views | 0 Comments

was on a chatroom... and they laugh cuz i have epilepsy.. maybe they think im psychological impaired..or maybe im a moron.. which really hurt .. i had epilepsy for 18 years now first time... i had...

Created By: mandismom | 2004-02-25 18:31 | 55 Views | 0 Comments

posting a little wonderful news, my mandi is 13 and she has been diagnosed and living with epilepsy for 8 years now. She has partial/compley intractable seizures . she is currently very controlled...

Created By: momof1 | 2004-02-22 14:08 | 221 Views | 6 Comments

Has this ever happened to anyone?2 months ago I had a seizure while driving. I hadn't had one while awake for over a year. I woke up in the back of a police car. Asked where I was and was told...

Created By: dawesberry | 2004-02-22 00:09 | 126 Views | 5 Comments

I'm not clear on this point, but I think I remember my daughter's neurologist saying, when I asked what the harm of having a seizure is, that each seizure "widens the pathway for more seizures to...

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