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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: sokpuppit | 2004-04-28 20:31 | 169 Views | 5 Comments

Hello, my name is Kristin and this my first time here. My 5 year old daughter has been diagnosed with childhood absence epilepsy, and yesterday was her first day on klonopin. She is a giggly...

Created By: ethansdad | 2004-04-27 14:46 | 52 Views | 0 Comments

How many of you have kids with extreme behavior changes that you believe are related to actual seizures or are true behaviors (i.e. head banging and slapping, agression) All we see with our...

Created By: shea30 | 2004-04-19 20:50 | 139 Views | 2 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to...

Created By: sylvia627 | 2004-04-14 10:08 | 64 Views | 0 Comments

I am a 17 year old girl who started a unique program that allows kids to inrease awareness and raise money for epilepsy from their paid chores, part-time jobs, summer jobs. Over one year, I was...

Created By: annessister | 2004-04-12 12:05 | 106 Views | 2 Comments

My 23 year old sister was diagnosed with epilepsy when she was 8 years old. It is controlled by medication. For some reason, on occasion she will stop taking her meds and then within a week she...

Created By: picnupthepcs | 2004-04-10 02:07 | 83 Views | 1 Comment

My Dr. stopped allowing me to drive sence September of last year and in Michigan you have to be seizure free for 6 months on or off of medication. Needless to say I have been doing very well on...

Created By: aubertjmd | 2004-04-09 12:33 | 947 Views | 14 Comments

I am a 25 year old woman with JME. Can any mothers can tell me about the types of medications they have taken while pregnant? Any discussion I have with my husband about having children is...

Created By: gonzalo_del_bono | 2004-04-06 13:01 | 92 Views | 1 Comment

Hi groupBeen with you all for a while now, its good to know there is support out there. Right better explain myself,I have experienced using Ambulatory EEG devices twice. Thats the kind of EEG...

Created By: ashar1 | 2004-04-05 16:08 | 115 Views | 2 Comments

Our second child, a girl, started having seizures in the third week after birth. Our pediatrician noticed it similar to a seizure and subsequent follow up by the pediatric neurologist with video...

Created By: seeker2 | 2004-04-02 22:30 | 65 Views | 0 Comments

FIND AN EPILEPSY DOCTORThe Epilepsy Foundation and the American Epilepsy Society have teamed up to create an online database for website visitors to find physicians with a special interest in the...

Created By: aubertjmd | 2004-04-02 14:59 | 68 Views | 1 Comment

I am a 25 year old woman and was diagnosed with JME when I had a grand mal seizure at the age of 15. I have a mild form of JME that is controlled with a 500 mg/daily dose of Depakote and a strict...

Created By: robo321 | 2004-04-01 10:26 | 129 Views | 3 Comments

hey. I know absolutly nothing abbout epilepsy, but i have a girlfriend who had quite a bad seizure today. Now she won't/can't (?) talk. I was just wondering if this was a recognised thing...couldn...

Created By: djanee0711 | 2004-03-24 07:35 | 69 Views | 0 Comments

my seven year old son just had stimulator inserted. He hasnt had a siezure in six weeks and doing really good.It has changed our lives.

Created By: kimmie34 | 2004-03-22 12:38 | 151 Views | 3 Comments

yes i not good at this so here goes i have a son that is 11 yrs old he has had seizures since he was 3 mths old dont know why no family history or nothing...we took phenbarbatal..now were on...

Created By: momof1 | 2004-03-21 09:30 | 445 Views | 13 Comments

I recently had a seizure while driving. I had not had one while awake for 3 years before this. I felt it coming and then woke up in the back of a police car. I am still fighting this. My...

Created By: mom1980 | 2004-03-21 00:34 | 119 Views | 2 Comments

I need a forum to speak openly about frustrations concerning my relationship with my son age 23 who has had epilepsy ADHD since he was 14. Does anyone have an idea ?

Created By: picnupthepcs | 2004-03-18 12:59 | 117 Views | 3 Comments

Well I have finally started seeing a new Neurologyst, and have new hope. I was very surprissed at the questions he asked and the history he wanted from me as none of the others seemed to be as...

Created By: mbunce220 | 2004-03-09 21:42 | 128 Views | 4 Comments

He started having grand mal seizures at age 16. He is now 24 & is taking Carbatrol, 5 pills per day. He is not allowed to drive, he can't keep a job (he lost 3 in the past year due to...

Created By: cinci | 2004-03-03 23:56 | 115 Views | 2 Comments

I work for Market Inquiry, a research company in Cincinnati, OH. We are conducting a highly confidential study in the field of epilepsy. This research project provides an opportunity for sufferers...

Created By: ghostmatrix35 | 2004-02-26 21:48 | 77 Views | 0 Comments

was on a chatroom... and they laugh cuz i have epilepsy.. maybe they think im psychological impaired..or maybe im a moron.. which really hurt .. i had epilepsy for 18 years now first time... i had...

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