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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: concernedmom | 2004-06-23 15:03 | 141 Views | 6 Comments

i have a 10 yr old daughter that has uncontrolled epilepsy for the most part we have been able to subside them but she has night time grand mal tonic clonic seisures now.she had 3 within 3 hours...

Created By: lrt131 | 2004-06-23 14:37 | 44 Views | 0 Comments

i was diagnosed just this past week with epilepsy and i told my nieces and now they act like i'm contagious and won't listen to me or act like they're scared of me

Created By: spc_rick009 | 2004-06-23 14:08 | 162 Views | 6 Comments

Hi All, i too am new to seizures, i have had them knowingly for 6 months, but now that i look back i've had them for years. but the doctors don't know which kind they are yet and this worries me....

Created By: grandma8 | 2004-06-20 22:25 | 108 Views | 3 Comments

MY GRANDSON HAS LENNOX GAUSTAUT SYNDROME. EVERYTHING HAS BEEN TRIED INCLUDING COMPLETE SPLIT OF THE BRAIN AND NOTHING HAS HELPED. THE DOCTORS ARE NOW SUGGESTING THAT WE TRY FELBAMATE. WE WOULD...

Created By: djarchaic | 2004-06-19 14:30 | 114 Views | 4 Comments

About 5 years ago i was a heavy drug abuser. Ecstacy (MDMA), LSD, Marijuana and LOTS of Crystal Meth. On 2 seperate meth binges i remember taking so much that i developed a form of psycosis for...

Created By: jods | 2004-06-18 17:02 | 148 Views | 3 Comments

Hi. My 6 year old son was recently diagnosed with epilepsy. I feel confused and alone because I don't know anyone else with a child with epilepsy. My son used to take febrile convolutions when he...

Created By: anneellis | 2004-06-18 11:27 | 310 Views | 19 Comments

Hi,I,m a new member neurotic mom of a seven yr old girl.I was falling asllep one night, she was nest to me, I hada "normal Jerk". when this happened, she informed me that she gets jerks and shakes...

Created By: momof1 | 2004-06-16 17:57 | 519 Views | 3 Comments

If I am concentrating hard or stressed out I tend to make noises. Deep in my throat. I am not even aware of them. My husband will ask if I am ok. Now I am told that I clench my jaw and have...

Created By: jenstrom | 2004-06-15 11:28 | 74 Views | 1 Comment

Hello! My husband is epileptic as a result of a bout with encephelitus (excuse the spelling). He never misses his medication (carbemezapine) yet once a year he has a seizure. Is there a specific...

Created By: sky826 | 2004-06-14 10:55 | 40 Views | 0 Comments

i an new here and i had a question. my husband has edopathis seizures and we tried to claim disability but because he worked they won't give it to him. he has lost may jobs because of this and i...

vns
Created By: evatt | 2004-06-05 22:06 | 56 Views | 1 Comment

Is there anyone with vns implant? what are the side effects that you have had and how are you doing?

Created By: amyj105 | 2004-06-03 06:58 | 95 Views | 2 Comments

My son now has pnemonia in the right lung. It went away with antibiotics, but now, 1 week later he has it again. not in the same place, but on the same lung. He was running a fever of 105.4, it...

Created By: stacie4171 | 2004-06-01 08:36 | 76 Views | 1 Comment

My 9-year old was diagnoised with Epilepsy in Dec. 2003. I am new to watching for more seizures because it is the staring kind. I was wondering if this sounds like a seizure to you. She was at a...

Created By: cmushibwe | 2004-05-30 05:27 | 461 Views | 25 Comments

Hi, I was first taken in a seizure 30-Jan-00 but never knew what it was, no doc has diagnozed me as having epilepsy. Yet I started taking my medicine 02-Sept-03 (Carbamazipine & Phernobabitone...

Created By: stopspucks88 | 2004-05-28 16:16 | 155 Views | 5 Comments

Hey...I'm new, I was wondering if there's any kind of support group anyone knows of for kids (teens especially) who have parents with epilepsy? I haven't been able to find anything...you all with...

Created By: tessasmom | 2004-05-19 23:09 | 94 Views | 3 Comments

After two years of Depakote and no seizures, my 7 yr old daughter was taken off her meds...six months and no noticable seizures later we had her "graduation" EEG only to find that during...

Created By: arwelyn | 2004-05-16 13:39 | 46 Views | 0 Comments

My stepdad's son has epilepsy since his childhood. Now he is 26 and he has horrible seizures. When we first met and we went to eat, he had one of his seizures. In that few minutes I decided to...

Created By: mona50009 | 2004-05-15 18:41 | 222 Views | 0 Comments

My mother, age 62, died face down in her pillow. The cause of death was "seizure disorder due to hypertension." This does not sound right to me. I had no idea she had a "seizure disorder" until...

Created By: cjad234 | 2004-05-13 19:03 | 280 Views | 2 Comments

Hi all, I was wondering whether or not the effects of marijuana on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have...

Created By: boruchgold | 2004-05-05 17:41 | 99 Views | 1 Comment

I observed the link between hot, humid air in the room and seizures. Situation improves when I open the window or turn on AC. Does someone have any observation of this?

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