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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: gkt | 2004-07-08 14:18 | 51 Views | 0 Comments

I've had epilepsy since I was a child. At 18, they assumed I'd outgrown it and I was able to go off medication and remain seizure-free for about 8 years (I think). About age 26 I started having...

Created By: picnupthepcs | 2004-07-06 17:54 | 58 Views | 1 Comment

Hi everybody,It has been awhile sence I posted or have even been to the group to read other posts. I am just wondering if anybody else feels the way I do. My problem is that I cannot remeber alot...

Created By: linalu | 2004-07-06 14:30 | 40 Views | 0 Comments

Hi, I recently posted about my 6 year old son who is taking Carbatrol.(We were the ones discussing our behavior problems and parental anxiety.) Jack's dosage was just upped and now it seems that...

Created By: reynolds7 | 2004-07-03 06:28 | 81 Views | 2 Comments

was diagnosed with seizures in the NICU. She's been home for 2 weeks now and is on phenebarbitol and dilantin. The phen is making her SO LETHARGIC. It breaks my heart. Is anyone else going...

Created By: cokeseks | 2004-07-03 06:17 | 118 Views | 2 Comments

just wondering if anyone out there has had simular experiences - i have a 1 week old daugther and she started having seizures in her 2nd day - [full term baby] ... all she does is sleep and...

Created By: djarchaic | 2004-07-01 15:29 | 188 Views | 4 Comments

Im not exactly sure what I have. If its seizures, nerve damage or something completely different. I figured I would try and post on here and see if someone could give me some guidance. Im 24...

Created By: gkt | 2004-06-30 18:37 | 341 Views | 5 Comments

I was taking Dilantin and Depakote (having tremors), and asked the doctor today to switch to something else.He made the switch to Dilantin & Keppra. Anybody else taking this?He also told me...

Created By: warrenlammert | 2004-06-30 13:49 | 56 Views | 1 Comment

We are moving to the Boston area and are seeking out information on school programs and special education resources for our 6 year old daughter.(epilepsy.com moved thread to more specific folder...

Created By: pennyhickey | 2004-06-30 08:55 | 145 Views | 2 Comments

Hi, I'm pretty much new to this. My 25 year old son is the one having the seizures. He has been having a short lapse of memory(no shaking) type of siezure for a couple of years and then last...

Created By: linalu | 2004-06-28 19:34 | 413 Views | 18 Comments

This is my first time on any sort of discussion format...but I need to talk to other parents of children w/epilepsy. My son had his first seizure about 3 years ago and up until this past year...

Created By: debra39 | 2004-06-25 11:37 | 126 Views | 2 Comments

My daughter just started having seizures. She loves disney and all the rides. Can anyone tell me if their seizures affect the types of rides they can go on? Thank you

Created By: pamkins | 2004-06-24 14:45 | 110 Views | 4 Comments

Hey, My name is Pamkins,I am having a lot of trouble trying to find front lobal epilepsy listed on related sites. My husband was diagnosed with this 3 years ago. He has been having seizures...

Created By: momof1 | 2004-06-24 10:58 | 406 Views | 17 Comments

Is there even one person out there who DIDN'T know what was wrong from the very start? I have seizures, usually, in my sleep. It has been 12 years now. They started 9 months after a serious...

Created By: 4kidsmom | 2004-06-23 16:05 | 121 Views | 3 Comments

my son stopped his meds and sure enough had another. he said they make him spacy anf friends and teachers agree. he is forgetful and cannot concentrate. anyone else have this problem?

Created By: veggiecorky | 2004-06-23 16:00 | 98 Views | 3 Comments

my doctor has told me to take three doses of tegertol xr. And I have started to do this. Tegertol xr is a twelve hour medicence but I am now taking it 8 hours apart. It is 200mg. Is this okay or...

Created By: speechlady | 2004-06-23 15:52 | 112 Views | 4 Comments

I'm trying to respond to the above mentioned topic but I'm new to this and somehow I started a new discussion!Anyway, I'm wondering if your memory loss is due to the Keppra as opposed to the...

Created By: reintree | 2004-06-23 15:28 | 163 Views | 6 Comments

My son was diagnosed 6 months ago with complex partial epilepsy due to Strep B meningitis at birth.(he's 7 now) He was started on Tegretol. He has gained a lot of weight since then. I have not...

Created By: concernedmom | 2004-06-23 15:03 | 121 Views | 6 Comments

i have a 10 yr old daughter that has uncontrolled epilepsy for the most part we have been able to subside them but she has night time grand mal tonic clonic seisures now.she had 3 within 3 hours...

Created By: lrt131 | 2004-06-23 14:37 | 40 Views | 0 Comments

i was diagnosed just this past week with epilepsy and i told my nieces and now they act like i'm contagious and won't listen to me or act like they're scared of me

Created By: spc_rick009 | 2004-06-23 14:08 | 146 Views | 6 Comments

Hi All, i too am new to seizures, i have had them knowingly for 6 months, but now that i look back i've had them for years. but the doctors don't know which kind they are yet and this worries me....

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