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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: mrath | 2004-10-17 06:29 | 96 Views | 1 Comment

My 7 year old daughter was diagnosed with Benign Rolandic Epilepsy about a month ago.  She has had two seizures episodes, both at night while asleep.  She becomes incontinent during these seizures...

Created By: grtchf | 2004-09-30 20:20 | 63 Views | 0 Comments

I'm responding to the topic "Epilepsy and Migraines".  I'm a first time user, I have a daughter who has been diagnosed with a tonic clonie seizures.  She also suffers from terrible migraines and...

Created By: byhisgrace | 2004-09-30 02:07 | 184 Views | 4 Comments

Hello all,I'm brand new here and could really use some advice. My daughter Adrielle has seizures which were discovered at the age of 2. She was diagnosed with Autism at 2 1/2 and she is non-...

Created By: harleydgal9 | 2004-09-28 17:10 | 175 Views | 8 Comments

Hello everyone,My mom has had epilepsy since she has been a little girl. When she was younger she would have terrible seziures and go into the whole shaking thing. Now that my mom is older she no...

Created By: picnupthepcs | 2004-09-23 16:44 | 516 Views | 9 Comments

Going from one Dr. to the next and still unable to live a normal life. After being Diagnosed with Frontal lobe Seizures (epilepsy) I thought all my troubles would be behind me. I thought I would...

Created By: bake | 2004-09-08 23:18 | 87 Views | 0 Comments

Hello,Thank you for the opportunity to write to you on behalf of my Dear Dad who is a 74 year old semi retired Minister. Prior to the event which I will summarize my Dad was in GREAT health with...

Created By: bigsisterofepileptic | 2004-09-02 14:19 | 255 Views | 6 Comments

My sister was diagnosed with "seizure disorder" a few months ago.  I witnessed one at the hospital and her boyfriend saw a grand-mal.  She has been on 100mg of Dilantin 3x a day for the past 2...

Created By: beenona | 2004-08-31 23:50 | 144 Views | 3 Comments

My 7 yr old daughter was diagnosed just last week with epilepsy. They didn't tell me a type or classification for it. In reading the definitions of the different types I think she would be simple...

Created By: sandyr2202 | 2004-08-31 21:45 | 331 Views | 13 Comments

I am 16 and have uncontrolled seizures at the present time. My nero has tried numerous medications but has been unsuccessful. I am presently on another medication and seem to be responding well...

Created By: kbteachem | 2004-08-31 16:04 | 222 Views | 6 Comments

I am so overwhelmed right now!  My 2 year old has been taking Depakote for 3 weeks and there has been no change in the number of seizures that he has each day.  The doc has increased the dose 2...

Created By: pennyhickey | 2004-08-30 14:18 | 70 Views | 0 Comments

Bald spots from long term EEG?  Has anyone ever had this problem?  When my son was in the hospital they did the long term EEG. Its been 2 months since he's been out and he still has little bald...

Created By: amazinglucille | 2004-08-30 05:58 | 170 Views | 7 Comments

My son caleb is 5 . He started to have seziures at 3. He was diagnosed with 'Pediatric idiopathic epilepsy" .I'm worried he will go to school and get away from his teachers and wander around lost....

Created By: doksdarlin | 2004-08-30 05:51 | 215 Views | 8 Comments

I have Epilepsy.  I haven't had very many in recent years, but I have had one or two lately.  I'm not so worried about me, the problem is this....  My boyfriend has been having episodes that are...

Created By: kaayla | 2004-08-28 13:12 | 825 Views | 5 Comments

I am trying to adopt and the adoption agency is very concerned about my seizure disorder. It is infrequent and I am lucky enough to not be on medication. I have a ten minute aura. The agency is...

Created By: mitzi525 | 2004-08-25 10:57 | 3850 Views | 28 Comments

Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might...

Created By: karenzim | 2004-08-23 09:52 | 478 Views | 23 Comments

My kids are 9 and 5. We never really told them anything about my sz cuz there was no need to. Now there is, unfortunately, as my son had the honor and privilege of watching my grand mal in...

Created By: kbteachem | 2004-08-23 09:30 | 784 Views | 10 Comments

Our 2 year old son was just diagnosed with absence seizures.  He would stop playing (clue #1) and stare off into space for 3-15 seconds.  Then he would resume playing.  In one month's time this...

Created By: rodn50 | 2004-08-18 22:49 | 175 Views | 5 Comments

Recently my daughter's doctor put her on a relatively new medication called zonegran. I would like to get some feedback from anyone who has been taking this medication as to its effects on the...

Created By: ermeszter | 2004-08-10 21:50 | 1417 Views | 41 Comments

Hi, I am new to this comunity, and I need some support.In December 2002 my husband had a scheduled aneuryzm surgery. 3 days later he had a stroke, was in coma for 15 days, and paralized on his...

Created By: nicksmom | 2004-08-09 02:38 | 335 Views | 11 Comments

I have an 11 year old boy who was just recently diagnosed with epilepsy...cant remember the name of it, he doesnt have siezures only activity on the mri...anyway he has recently started to studder...

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