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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: sandyr2202 | 2004-08-31 21:45 | 255 Views | 13 Comments

I am 16 and have uncontrolled seizures at the present time. My nero has tried numerous medications but has been unsuccessful. I am presently on another medication and seem to be responding well...

Created By: kbteachem | 2004-08-31 16:04 | 177 Views | 6 Comments

I am so overwhelmed right now!  My 2 year old has been taking Depakote for 3 weeks and there has been no change in the number of seizures that he has each day.  The doc has increased the dose 2...

Created By: pennyhickey | 2004-08-30 14:18 | 42 Views | 0 Comments

Bald spots from long term EEG?  Has anyone ever had this problem?  When my son was in the hospital they did the long term EEG. Its been 2 months since he's been out and he still has little bald...

Created By: amazinglucille | 2004-08-30 05:58 | 133 Views | 7 Comments

My son caleb is 5 . He started to have seziures at 3. He was diagnosed with 'Pediatric idiopathic epilepsy" .I'm worried he will go to school and get away from his teachers and wander around lost....

Created By: doksdarlin | 2004-08-30 05:51 | 165 Views | 8 Comments

I have Epilepsy.  I haven't had very many in recent years, but I have had one or two lately.  I'm not so worried about me, the problem is this....  My boyfriend has been having episodes that are...

Created By: kaayla | 2004-08-28 13:12 | 646 Views | 5 Comments

I am trying to adopt and the adoption agency is very concerned about my seizure disorder. It is infrequent and I am lucky enough to not be on medication. I have a ten minute aura. The agency is...

Created By: mitzi525 | 2004-08-25 10:57 | 3344 Views | 28 Comments

Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might...

Created By: karenzim | 2004-08-23 09:52 | 370 Views | 23 Comments

My kids are 9 and 5. We never really told them anything about my sz cuz there was no need to. Now there is, unfortunately, as my son had the honor and privilege of watching my grand mal in...

Created By: kbteachem | 2004-08-23 09:30 | 729 Views | 10 Comments

Our 2 year old son was just diagnosed with absence seizures.  He would stop playing (clue #1) and stare off into space for 3-15 seconds.  Then he would resume playing.  In one month's time this...

Created By: rodn50 | 2004-08-18 22:49 | 130 Views | 5 Comments

Recently my daughter's doctor put her on a relatively new medication called zonegran. I would like to get some feedback from anyone who has been taking this medication as to its effects on the...

Created By: ermeszter | 2004-08-10 21:50 | 1142 Views | 41 Comments

Hi, I am new to this comunity, and I need some support.In December 2002 my husband had a scheduled aneuryzm surgery. 3 days later he had a stroke, was in coma for 15 days, and paralized on his...

Created By: nicksmom | 2004-08-09 02:38 | 278 Views | 11 Comments

I have an 11 year old boy who was just recently diagnosed with epilepsy...cant remember the name of it, he doesnt have siezures only activity on the mri...anyway he has recently started to studder...

Created By: cody'smom | 2004-08-05 09:55 | 45 Views | 0 Comments

Hello my name is Alicia.  I have a 13 yr old son who was diagnosed with eilepsy 2 years ago.  I have read many books about the subject but I noticed they really did not touch on the emotions a...

Created By: ozepilepsy2004 | 2004-08-01 01:28 | 40 Views | 0 Comments

My name is Allison Clarke and I am conducting research under the supervision of Dr Christine Critchley and Dr Roslyn Galligan in the <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com...

Created By: martinshane | 2004-07-26 17:45 | 250 Views | 5 Comments

Does anyone have a child around the age of 7 years who is on Frisium? Have you had success with this medication? What doses have been most successful? Any affects from this medication such as...

Created By: chriseric | 2004-07-21 11:49 | 89 Views | 1 Comment

I am a 35 year old female, former school principal. I am on Tegretol 1200 mg daily. I now have warning that it is coming and get onto oxygen which has made a world of difference. I recently had to...

Created By: limeridge | 2004-07-20 09:25 | 81 Views | 2 Comments

Hi there I am now only on 1 tablet left of tegertol. I have been on 1200mg of them I was cutting down half a tablet a month. I half only one half to go and I'm done them all. I will be on only...

Created By: ozepilepsy2004 | 2004-07-17 02:23 | 56 Views | 0 Comments

My name is Allison Clarke and I am conducting research under the supervision of Dr Christine Critchley and Dr Roslyn Galligan in the School of Behavioural Sciences, towards a Doctorate of...

Created By: limeridge | 2004-07-15 07:37 | 109 Views | 3 Comments

Has anyone at all had problems with keppra. I have been on this med for a good 9 months. The seizures have been kind of gone away that is a miricle right there. The only problems are leg falling...

Created By: coffee-428 | 2004-07-10 11:38 | 45 Views | 0 Comments

my problem is that every time i have a seisure is when i have a hormone change. i am currentliing takeingneurontin 300mg three times a day and am takeing carbamazepin 200mg three times a day. but...

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