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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: mjsmom | 2004-11-04 21:32 | 149 Views | 3 Comments

My daughter had encephalitis in February 2003, and has had hard to control seizures since then.  She was in the hospital for two weeks, she was home for two weeks and then went back in for an...

Created By: barbie | 2004-11-04 12:51 | 57 Views | 2 Comments

I am a grandmother of 56 who has just returned to studying after a lapse of 38 years. I am studying online with the USA and as part of a research assignment I have been asked to join a newsgroup...

Created By: graciesmom | 2004-11-04 12:14 | 411 Views | 2 Comments

Hi-My 1 yr. old daughter was released from the hospital yesterday after experiencing 2 seizures on Monday.  The first was brief -- maybe 30 sec. - 1minute -- but involved full body convulsions and...

Created By: grtchf | 2004-11-03 10:49 | 86 Views | 3 Comments

My daughter is 10 yrs old and suffers from "a tonic clonic seizures".  Approximately a year or so ago she started having headaches that quickly turned into migraines now associated with an upset...

Created By: feeve69 | 2004-11-02 19:31 | 75 Views | 3 Comments

I had the horrible expierence of waking up to a "grand Mal  seizure" about  6weeks ago. My son is 2 and will turn 3 this Nov. since that horrible morning we have been admitted into the hospital 3...

Created By: bokruip | 2004-11-02 01:43 | 79 Views | 4 Comments

Dear reader,I am a mother of a son (almost 2 years) that has vitamine B6 (pyridoxine) dependant epilepsy (he has no authism). I would like to get in contact with other people/parents that have the...

Created By: desd | 2004-10-21 18:39 | 785 Views | 10 Comments

Hello All from Sydney, Australia.Our 8 year old son Matthew was diagnosed earlier this week with Absence Seizures.Given the potential side effects of medicating and that at this stage anyway...

Created By: gregydj | 2004-10-21 09:29 | 57 Views | 1 Comment

Dear Des, It is quite unfortunate. I would advice you to try using herbs, because a friend of mine, Lizy by name was cured her's two months ago with herbs.I can still give you the address of...

Created By: gregydj | 2004-10-20 06:15 | 37 Views | 0 Comments

Dear friend, I really feel for you when I saw what you wrote. Well, I would like to tell you that my girl friend just got cured last two months when we where told by our travel agent here in...

Created By: mrath | 2004-10-17 06:29 | 62 Views | 1 Comment

My 7 year old daughter was diagnosed with Benign Rolandic Epilepsy about a month ago.  She has had two seizures episodes, both at night while asleep.  She becomes incontinent during these seizures...

Created By: grtchf | 2004-09-30 20:20 | 40 Views | 0 Comments

I'm responding to the topic "Epilepsy and Migraines".  I'm a first time user, I have a daughter who has been diagnosed with a tonic clonie seizures.  She also suffers from terrible migraines and...

Created By: byhisgrace | 2004-09-30 02:07 | 130 Views | 4 Comments

Hello all,I'm brand new here and could really use some advice. My daughter Adrielle has seizures which were discovered at the age of 2. She was diagnosed with Autism at 2 1/2 and she is non-...

Created By: harleydgal9 | 2004-09-28 17:10 | 139 Views | 8 Comments

Hello everyone,My mom has had epilepsy since she has been a little girl. When she was younger she would have terrible seziures and go into the whole shaking thing. Now that my mom is older she no...

Created By: picnupthepcs | 2004-09-23 16:44 | 414 Views | 9 Comments

Going from one Dr. to the next and still unable to live a normal life. After being Diagnosed with Frontal lobe Seizures (epilepsy) I thought all my troubles would be behind me. I thought I would...

Created By: bake | 2004-09-08 23:18 | 54 Views | 0 Comments

Hello,Thank you for the opportunity to write to you on behalf of my Dear Dad who is a 74 year old semi retired Minister. Prior to the event which I will summarize my Dad was in GREAT health with...

Created By: bigsisterofepileptic | 2004-09-02 14:19 | 167 Views | 6 Comments

My sister was diagnosed with "seizure disorder" a few months ago.  I witnessed one at the hospital and her boyfriend saw a grand-mal.  She has been on 100mg of Dilantin 3x a day for the past 2...

Created By: beenona | 2004-08-31 23:50 | 90 Views | 3 Comments

My 7 yr old daughter was diagnosed just last week with epilepsy. They didn't tell me a type or classification for it. In reading the definitions of the different types I think she would be simple...

Created By: sandyr2202 | 2004-08-31 21:45 | 244 Views | 13 Comments

I am 16 and have uncontrolled seizures at the present time. My nero has tried numerous medications but has been unsuccessful. I am presently on another medication and seem to be responding well...

Created By: kbteachem | 2004-08-31 16:04 | 168 Views | 6 Comments

I am so overwhelmed right now!  My 2 year old has been taking Depakote for 3 weeks and there has been no change in the number of seizures that he has each day.  The doc has increased the dose 2...

Created By: pennyhickey | 2004-08-30 14:18 | 35 Views | 0 Comments

Bald spots from long term EEG?  Has anyone ever had this problem?  When my son was in the hospital they did the long term EEG. Its been 2 months since he's been out and he still has little bald...

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