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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: ozepilepsy2004 | 2004-11-24 02:27 | 63 Views | 0 Comments

Hi, <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />Would you like the community to have a better understanding of how it feels to be a young person living with...

Created By: mell | 2004-11-23 06:01 | 76 Views | 0 Comments

hi everyone, do you know of any instances when a baby or young child has injured itself during a seizure?especially in its cot(crib) and if yes how did you know that the young child or baby had an...

Created By: jnjross | 2004-11-23 01:36 | 92 Views | 0 Comments

my husband will stick his arms straight up in the air while asleep and rub his hands together is this common? but he does is twitching this like a jerk, like someone trying to catch themselves...

Created By: jnjross | 2004-11-23 00:28 | 140 Views | 1 Comment

i've hear alot of people with TLE also have problems with hormone imbalance, like low testosterone/ androgen that cause problems like infertility, low sperm counts. has anyone been treated for TLE...

Created By: jnjross | 2004-11-20 19:31 | 76 Views | 0 Comments

my husband had childhood absence epilesy starting at age 6-7 and was given 500mg of dilantin per day till he was 12. his doctor remove him for it and said he had outgrown it. now he's 25 and i...

Created By: momo3 | 2004-11-19 13:10 | 103 Views | 1 Comment

My 7-year-old daughter was diagnosed with BRE last Fall. She had one initial seizure and it was decided not to medicate her as yet. Last month she had two so we contacted the pediatric...

Created By: learner | 2004-11-18 11:03 | 143 Views | 4 Comments

Hello,  I am dating a fine woman in her 30's.  She has had epilepsy since her early teens.  The had multiple seizures every day for years.  She could not go through life without family there to be...

Created By: picnupthepcs | 2004-11-17 14:25 | 25512 Views | 128 Comments

HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a...

Created By: noblelourdes | 2004-11-15 17:09 | 137 Views | 2 Comments

hi, my son has choreathosistis which is a movement disorder. Also known as PKD/PKC. He also has seizures. Partial complex . He is on tegretal twice a day. My question is this: Have any of you ever...

Created By: nique313 | 2004-11-15 10:10 | 2132 Views | 9 Comments

Hi all, I'm new here and don't have diagnosis yet but am working on it. I'm just wondering if anyone has ever experienced anything similar to what is going on with my 2 year old daughter.  Mostly...

Created By: nnchau | 2004-11-13 14:57 | 187 Views | 7 Comments

hi, i am from Vietnam and new to this site. i has a 21months old daughter who just been diagnosed with epilepsy, it just written down on her papers "dong kinh" - in...

Created By: paulgs | 2004-11-07 15:56 | 159 Views | 3 Comments

I had a total of about 6 or 7 seizures in my life from age 13-18. At the age of 20 I was taken off my medication after an EEG showed negative for any sign of epilepsy. Lately I have had trouble...

Created By: epilepsydotcomstaff | 2004-11-05 10:39 | 274 Views | 6 Comments

Tell us about how you chose a summer camp for your child. What were the best aspects of the camp experience? What are things to watch out for? Also, parents, if you are curious about camps but...

Created By: teresanz | 2004-11-05 06:22 | 79 Views | 0 Comments

He had a febrile seizure last year and what I felt at the time were 'mini seizures' for a few weeks afterwards - no one else noticed them and they went away so I thought it was just me!In May,...

Created By: mjsmom | 2004-11-04 21:32 | 251 Views | 3 Comments

My daughter had encephalitis in February 2003, and has had hard to control seizures since then.  She was in the hospital for two weeks, she was home for two weeks and then went back in for an...

Created By: barbie | 2004-11-04 12:51 | 100 Views | 2 Comments

I am a grandmother of 56 who has just returned to studying after a lapse of 38 years. I am studying online with the USA and as part of a research assignment I have been asked to join a newsgroup...

Created By: graciesmom | 2004-11-04 12:14 | 593 Views | 2 Comments

Hi-My 1 yr. old daughter was released from the hospital yesterday after experiencing 2 seizures on Monday.  The first was brief -- maybe 30 sec. - 1minute -- but involved full body convulsions and...

Created By: grtchf | 2004-11-03 10:49 | 145 Views | 3 Comments

My daughter is 10 yrs old and suffers from "a tonic clonic seizures".  Approximately a year or so ago she started having headaches that quickly turned into migraines now associated with an upset...

Created By: feeve69 | 2004-11-02 19:31 | 122 Views | 3 Comments

I had the horrible expierence of waking up to a "grand Mal  seizure" about  6weeks ago. My son is 2 and will turn 3 this Nov. since that horrible morning we have been admitted into the hospital 3...

Created By: bokruip | 2004-11-02 01:43 | 150 Views | 4 Comments

Dear reader,I am a mother of a son (almost 2 years) that has vitamine B6 (pyridoxine) dependant epilepsy (he has no authism). I would like to get in contact with other people/parents that have the...

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