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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: mspellman | 2004-11-27 23:03 | 61 Views | 1 Comment

Hello all!  My 13 year old son had his first seizure in November 2003.  After 3 weeks of one seizure after another and numerous tests (EEGs, MRIs), a diagnosis was finally confirmed of right TLE...

Created By: jani | 2004-11-27 11:25 | 50 Views | 0 Comments

Many State's have a First Aid Council and also the Department of Health at the State Level and let them know of these problems with the restraints and that it is not necessary for someone who has...

Created By: usmale | 2004-11-27 11:25 | 989 Views | 25 Comments

Can someone help me out here? This past weekend, I wound up at the hands of the EMTs of my area. My ride to the ER was a literal nightmare.My question is: Is it just this area of NJ or is it...

Created By: dozer206 | 2004-11-27 05:53 | 61 Views | 1 Comment

Long story, and I'm finding resources about heredity and epilepsy, but.....I'm receiving some preliminary information that my situation of seizures starting at 37 (fairly controlled) and the...

Created By: jnjross | 2004-11-26 12:25 | 47 Views | 1 Comment

my husband had childhood absence epilesy starting at age 6-7 and was given 500mg of dilantin per day till he was 12. his doctor remove him for it and said he had outgrown it. now he's 25 and i...

Created By: momof1 | 2004-11-25 19:54 | 455 Views | 37 Comments

Today was a support group barbeque.I was planning to go. My daughter was going to come just so I wouldn't be alone. I have never been and was nervous. She changed her mind. I had a hard time,...

Created By: ozepilepsy2004 | 2004-11-24 02:27 | 32 Views | 0 Comments

Hi, <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />Would you like the community to have a better understanding of how it feels to be a young person living with...

Created By: mell | 2004-11-23 06:01 | 40 Views | 0 Comments

hi everyone, do you know of any instances when a baby or young child has injured itself during a seizure?especially in its cot(crib) and if yes how did you know that the young child or baby had an...

Created By: jnjross | 2004-11-23 01:36 | 48 Views | 0 Comments

my husband will stick his arms straight up in the air while asleep and rub his hands together is this common? but he does is twitching this like a jerk, like someone trying to catch themselves...

Created By: jnjross | 2004-11-23 00:28 | 82 Views | 1 Comment

i've hear alot of people with TLE also have problems with hormone imbalance, like low testosterone/ androgen that cause problems like infertility, low sperm counts. has anyone been treated for TLE...

Created By: jnjross | 2004-11-20 19:31 | 40 Views | 0 Comments

my husband had childhood absence epilesy starting at age 6-7 and was given 500mg of dilantin per day till he was 12. his doctor remove him for it and said he had outgrown it. now he's 25 and i...

Created By: momo3 | 2004-11-19 13:10 | 50 Views | 1 Comment

My 7-year-old daughter was diagnosed with BRE last Fall. She had one initial seizure and it was decided not to medicate her as yet. Last month she had two so we contacted the pediatric...

Created By: learner | 2004-11-18 11:03 | 89 Views | 4 Comments

Hello,  I am dating a fine woman in her 30's.  She has had epilepsy since her early teens.  The had multiple seizures every day for years.  She could not go through life without family there to be...

Created By: picnupthepcs | 2004-11-17 14:25 | 20133 Views | 128 Comments

HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a...

Created By: noblelourdes | 2004-11-15 17:09 | 82 Views | 2 Comments

hi, my son has choreathosistis which is a movement disorder. Also known as PKD/PKC. He also has seizures. Partial complex . He is on tegretal twice a day. My question is this: Have any of you ever...

Created By: nique313 | 2004-11-15 10:10 | 1366 Views | 9 Comments

Hi all, I'm new here and don't have diagnosis yet but am working on it. I'm just wondering if anyone has ever experienced anything similar to what is going on with my 2 year old daughter.  Mostly...

Created By: nnchau | 2004-11-13 14:57 | 112 Views | 7 Comments

hi, i am from Vietnam and new to this site. i has a 21months old daughter who just been diagnosed with epilepsy, it just written down on her papers "dong kinh" - in...

Created By: paulgs | 2004-11-07 15:56 | 85 Views | 3 Comments

I had a total of about 6 or 7 seizures in my life from age 13-18. At the age of 20 I was taken off my medication after an EEG showed negative for any sign of epilepsy. Lately I have had trouble...

Created By: epilepsydotcomstaff | 2004-11-05 10:39 | 192 Views | 6 Comments

Tell us about how you chose a summer camp for your child. What were the best aspects of the camp experience? What are things to watch out for? Also, parents, if you are curious about camps but...

Created By: teresanz | 2004-11-05 06:22 | 41 Views | 0 Comments

He had a febrile seizure last year and what I felt at the time were 'mini seizures' for a few weeks afterwards - no one else noticed them and they went away so I thought it was just me!In May,...

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