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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: tammarrasmom | 2004-12-21 15:48 | 138 Views | 8 Comments

Hi, My name is Erika, and I have a now 2 month old baby girl that has been having seizures since even before she was born. I used to bring it up to the ob that she felt almost spastic in utero and...

Created By: klmahdi | 2004-12-18 23:05 | 54 Views | 0 Comments

Dear All,I have just joined this group to get some help or advice on my daughter's present condition.I am 24 yrs old and I live here in Djibouti. Last week, my 6 month-old daughter was having...

Created By: asteriatic | 2004-12-17 19:06 | 80 Views | 2 Comments

Hi - I'm 15 years old and while I'm not epileptic, my brother is.Over the past year or so, something a little weird has been happening to me. I'll be dreaming, and the more intense or faster the...

Created By: mjsmom | 2004-12-16 07:49 | 76 Views | 3 Comments

Hi Everyone...My daughter is scheduled to have resective epilepsy surgery on December 30th, after two years post-encephalitis refractory seizures (we've tried ALL the meds, three at a time and...

Created By: wendymartinez | 2004-12-15 19:06 | 97 Views | 4 Comments

Hi,I have a 4 year old with Epilepsy and was diagnosed about 2 1/2 months ago.  He has been taking Lamictal and seems to be controlled at 15mg 2x daily, so the Neuro says to leave him at 15mg...

Created By: rocking4epilepsy | 2004-12-14 00:07 | 154 Views | 6 Comments

Hi all, My name is Jen and I have been lerking on this site for ages and decided to join and post tonight. On March 9, 1998 (the day after my 32nd Birthday) I was made the happiest person in the...

Created By: ozepilepsy2004 | 2004-12-10 03:29 | 68 Views | 0 Comments

Hi,<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /> I would like to sincerely thank the 97 people who have completed my survey to date and to encourage anyone...

Created By: kbteachem | 2004-12-09 03:55 | 149 Views | 4 Comments

My 2 year old son has been diagnosed with absence seizures during the past 3 weeks.  He has been on meds only for 2 weeks.  We are currently increasing the dose because the seizures are about...

Created By: teresanz | 2004-12-09 03:55 | 81 Views | 3 Comments

 

Created By: teresanz | 2004-12-09 03:55 | 50 Views | 1 Comment

They increased rapidly to 10x per day when he started on a very low dose of epilim.  Once he started epilim, the seizures stopped for a few weeks and then he started having grand mal/tonic clonic...

Created By: jackieoh | 2004-12-06 10:57 | 285 Views | 16 Comments

My husband had epilepsy and had surgery a little over two months ago. He has had auras on and off for the past two days, no seizures. However, when I called his doctors office the nurse said...

Created By: sssmom | 2004-12-06 07:00 | 95 Views | 6 Comments

My son has been having seizures since birth, but at 10 months has finally got a diagnosis of epilepsy -- complex partial seizures.  He has several medical issues and is currently being followed by...

Created By: robin510 | 2004-12-05 20:26 | 398 Views | 19 Comments

Hi,My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been...

Created By: mexican_fire | 2004-12-03 15:01 | 45 Views | 0 Comments

I don't remember if I already did this on this site.But, My mom bought a baby monitor because I have a really bad habit that includes having noct urnal TCs.  She can't hear them half the time, and...

Created By: mjsmom | 2004-12-03 11:34 | 77 Views | 1 Comment

Hi...my 6-year old daughter has had post-Encephalitis seizures for about 2 years now.  We have been through several (almost all) medications, usually 3 at a time.  The newest we are trying is...

Created By: cjsmom | 2004-12-02 17:41 | 81 Views | 1 Comment

      Day 1 - CJ had a fever all day took 2 long naps but was eating and acting normal. When I got home at 6:30pm I took his temp it was 102.4 I gave him Tylenol. He eat, had Motrin at bed...

Created By: ryanmichelle | 2004-12-02 11:56 | 49 Views | 1 Comment

Hi My name is Michelle. My 15 month old son was diagnosed with epilepsy early this morning. We have an appointment to see a ped neuro here in town on the 17th, but I was wondering if anyone had...

Created By: learner | 2004-12-02 11:05 | 69 Views | 3 Comments

Hello All,I have been reading with interest the many posts on various topics.  Here is the quick version of my situation.  I am dating a fine woman who had many serious seizures every day from...

Created By: pretty-in-pink | 2004-12-02 07:24 | 86 Views | 4 Comments

Hello, I'm new here and need to vent!Last March my husband, 8 year old daughter and I were in the car heading to church. Our daughter started kicking the back of my seat and I had to tell her...

Created By: akelton | 2004-12-01 09:19 | 127 Views | 6 Comments

I am new to this site. My husband was diagnosed with JME when he was 13. Until recently (he's 29 now), he's averaged about one tonic-clonic (grand mal) seizure about every 15 months. However, in...

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