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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: rhea1965 | 2005-01-28 03:40 | 5325 Views | 54 Comments

My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not...

Created By: shiana2004 | 2005-01-26 07:34 | 294 Views | 17 Comments

will have another seizure. I am having a extremely hard time dealing with the aftermath of watching my daughter having seizures, and find myself constantly wondering when the next one will be....

Created By: amyj105 | 2005-01-26 02:53 | 367 Views | 13 Comments

My son austin ,3yrs,started having siezures about 2 months ago, and we have been through heck!!!! My whole family. Austin dosent see his dad anymore b/c of his drinking. austin was on topamax and...

Created By: angie | 2005-01-25 23:50 | 203 Views | 3 Comments

Hey, all.     My husband has been having these weird, severe headaches over the past two weeks. He finally went to the doctor (men!) and was diagnosed with Vascular Cluster Headaches. Has...

Created By: insaneskittle | 2005-01-25 01:25 | 114 Views | 7 Comments

Fourteen and taking topamax. I don't think my family excepts me anymore. It seems that they think I've changed form the person I used to be in to this sick, dumb, fat child that they don't wan't....

Created By: momof1 | 2005-01-23 10:41 | 863 Views | 19 Comments

Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will...

Created By: sssmom | 2005-01-20 09:19 | 219 Views | 12 Comments

Hi Everyone,    I've only been here since Nov. '04 when my infant son was diagnosed with epilepsy.  I went through a grieving process where I really had to "let go" of so many of my assuptions and...

Created By: susie | 2005-01-19 23:35 | 166 Views | 5 Comments

Hi ! Im a mum of a 5yr old boy that has recently been diagnosed with early onset  Benign Occipital epilepsy.  Pannanyotious syndrome (or something like that) !I posted the following text but would...

Created By: raddog876 | 2005-01-19 02:02 | 300 Views | 12 Comments

I need some advice I'm currently seeing somebody that has epilepsy is this a problem that I have epilepsy also. If not I need some advice.

Created By: staceychil | 2005-01-18 16:06 | 136 Views | 4 Comments

Stacey ChillemiPh: 908.347.3580Fax:973.759.204622 Heather DriveManalapan, New Jersey 07726http://www.authorsden.com/staceydchillemiEmail...

Created By: rc6002 | 2005-01-17 21:18 | 138 Views | 6 Comments

Hello my son (16) had his first grand mal seizure in July.  He is currently switching from Tegratol to to Lamictal  He had a 2nd seizure over Christmas (combination - we think of sleep deprivation...

Created By: shea30 | 2005-01-16 17:53 | 1406 Views | 7 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to...

Created By: shellyme33 | 2005-01-16 17:17 | 100 Views | 3 Comments

I am 33 years old with a history of febrile seizures. My seizures began shortly after my first vaccination, and ceased at the age of 3. I have never had a seizure since. My 9yr old son currently...

Created By: batman | 2005-01-14 19:22 | 67 Views | 1 Comment

In a few days I will be attending a patient education program for people with seizure disorders and their families. Feature topic: Treatment-Resistant Epilepsy.To Find out:* What treatment-...

Created By: marta25 | 2005-01-13 11:53 | 126 Views | 4 Comments

If there is any doctor there or somebody who was in similar situation that mine, please help me.I live in USA for around a year, I don't have health insurance, so I can't go to the doctor to ask...

Created By: cmarranzini | 2005-01-12 23:05 | 57 Views | 0 Comments

I am looking for a summer camp for my 13 years old son. I prefer a summer camp that last for at least 4 four weeks, does anybody know a summer camp for kids with seizures that last for 4 weeks? It...

Created By: shaneswife | 2005-01-12 15:35 | 116 Views | 4 Comments

Hi all,I have just joined tonight.  My husband, who is 33 years old, has just started having seizures about 3 months ago.  The first 2 we were not sure that was what was going on.  He went to the...

Created By: amazinglucille | 2005-01-12 11:02 | 134 Views | 3 Comments

he has complex-partail seizures which ALWAYS devolpe into statis elipeticushis longest siezure was 4 and half hours.he is now in kind. special ed . but all he wants to do there is sleep? i cant...

Created By: lilmomma87 | 2005-01-09 19:30 | 235 Views | 10 Comments

Hello! I'm new to the community and I was just wondering if anyone has anybody has any info. about a surgery for people having seizures. My son has seizures and started having them when he was 4...

Created By: shellyme33 | 2005-01-09 13:17 | 235 Views | 12 Comments

My daugther has been employed at our local quick shop for six months. I have been approached on numerous occasions, by people in our community, with compliments on my daughters exceptional work...

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