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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: angie | 2005-01-25 23:50 | 180 Views | 3 Comments

Hey, all.     My husband has been having these weird, severe headaches over the past two weeks. He finally went to the doctor (men!) and was diagnosed with Vascular Cluster Headaches. Has...

Created By: insaneskittle | 2005-01-25 01:25 | 111 Views | 7 Comments

Fourteen and taking topamax. I don't think my family excepts me anymore. It seems that they think I've changed form the person I used to be in to this sick, dumb, fat child that they don't wan't....

Created By: momof1 | 2005-01-23 10:41 | 774 Views | 19 Comments

Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will...

Created By: sssmom | 2005-01-20 09:19 | 216 Views | 12 Comments

Hi Everyone,    I've only been here since Nov. '04 when my infant son was diagnosed with epilepsy.  I went through a grieving process where I really had to "let go" of so many of my assuptions and...

Created By: susie | 2005-01-19 23:35 | 151 Views | 5 Comments

Hi ! Im a mum of a 5yr old boy that has recently been diagnosed with early onset  Benign Occipital epilepsy.  Pannanyotious syndrome (or something like that) !I posted the following text but would...

Created By: raddog876 | 2005-01-19 02:02 | 294 Views | 12 Comments

I need some advice I'm currently seeing somebody that has epilepsy is this a problem that I have epilepsy also. If not I need some advice.

Created By: staceychil | 2005-01-18 16:06 | 122 Views | 4 Comments

Stacey ChillemiPh: 908.347.3580Fax:973.759.204622 Heather DriveManalapan, New Jersey 07726http://www.authorsden.com/staceydchillemiEmail...

Created By: rc6002 | 2005-01-17 21:18 | 133 Views | 6 Comments

Hello my son (16) had his first grand mal seizure in July.  He is currently switching from Tegratol to to Lamictal  He had a 2nd seizure over Christmas (combination - we think of sleep deprivation...

Created By: shea30 | 2005-01-16 17:53 | 1386 Views | 7 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to...

Created By: shellyme33 | 2005-01-16 17:17 | 92 Views | 3 Comments

I am 33 years old with a history of febrile seizures. My seizures began shortly after my first vaccination, and ceased at the age of 3. I have never had a seizure since. My 9yr old son currently...

Created By: batman | 2005-01-14 19:22 | 63 Views | 1 Comment

In a few days I will be attending a patient education program for people with seizure disorders and their families. Feature topic: Treatment-Resistant Epilepsy.To Find out:* What treatment-...

Created By: marta25 | 2005-01-13 11:53 | 111 Views | 4 Comments

If there is any doctor there or somebody who was in similar situation that mine, please help me.I live in USA for around a year, I don't have health insurance, so I can't go to the doctor to ask...

Created By: cmarranzini | 2005-01-12 23:05 | 45 Views | 0 Comments

I am looking for a summer camp for my 13 years old son. I prefer a summer camp that last for at least 4 four weeks, does anybody know a summer camp for kids with seizures that last for 4 weeks? It...

Created By: shaneswife | 2005-01-12 15:35 | 96 Views | 4 Comments

Hi all,I have just joined tonight.  My husband, who is 33 years old, has just started having seizures about 3 months ago.  The first 2 we were not sure that was what was going on.  He went to the...

Created By: amazinglucille | 2005-01-12 11:02 | 127 Views | 3 Comments

he has complex-partail seizures which ALWAYS devolpe into statis elipeticushis longest siezure was 4 and half hours.he is now in kind. special ed . but all he wants to do there is sleep? i cant...

Created By: lilmomma87 | 2005-01-09 19:30 | 213 Views | 10 Comments

Hello! I'm new to the community and I was just wondering if anyone has anybody has any info. about a surgery for people having seizures. My son has seizures and started having them when he was 4...

Created By: shellyme33 | 2005-01-09 13:17 | 216 Views | 12 Comments

My daugther has been employed at our local quick shop for six months. I have been approached on numerous occasions, by people in our community, with compliments on my daughters exceptional work...

Created By: gretchen | 2005-01-09 03:01 | 3983 Views | 46 Comments

I have TLEs and Generalized sz's.  I sz every day at least with drops, absences and jerks and then I have the odd CP or Jamais Vu or t/c and other things thrown in here and there.  I have...

Created By: birdwingblue | 2005-01-08 16:37 | 8223 Views | 32 Comments

hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of...

Created By: torielis | 2005-01-06 21:24 | 202 Views | 7 Comments

I have just recently joined this group and it's a comfort to read about similar situations as my 14 year old daughter.  She began having seizures last June and has almost had them monthly since...

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