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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: batman | 2005-01-14 19:22 | 49 Views | 1 Comment

In a few days I will be attending a patient education program for people with seizure disorders and their families. Feature topic: Treatment-Resistant Epilepsy.To Find out:* What treatment-...

Created By: marta25 | 2005-01-13 11:53 | 71 Views | 4 Comments

If there is any doctor there or somebody who was in similar situation that mine, please help me.I live in USA for around a year, I don't have health insurance, so I can't go to the doctor to ask...

Created By: cmarranzini | 2005-01-12 23:05 | 30 Views | 0 Comments

I am looking for a summer camp for my 13 years old son. I prefer a summer camp that last for at least 4 four weeks, does anybody know a summer camp for kids with seizures that last for 4 weeks? It...

Created By: shaneswife | 2005-01-12 15:35 | 71 Views | 4 Comments

Hi all,I have just joined tonight.  My husband, who is 33 years old, has just started having seizures about 3 months ago.  The first 2 we were not sure that was what was going on.  He went to the...

Created By: amazinglucille | 2005-01-12 11:02 | 107 Views | 3 Comments

he has complex-partail seizures which ALWAYS devolpe into statis elipeticushis longest siezure was 4 and half hours.he is now in kind. special ed . but all he wants to do there is sleep? i cant...

Created By: lilmomma87 | 2005-01-09 19:30 | 161 Views | 10 Comments

Hello! I'm new to the community and I was just wondering if anyone has anybody has any info. about a surgery for people having seizures. My son has seizures and started having them when he was 4...

Created By: shellyme33 | 2005-01-09 13:17 | 148 Views | 12 Comments

My daugther has been employed at our local quick shop for six months. I have been approached on numerous occasions, by people in our community, with compliments on my daughters exceptional work...

Created By: gretchen | 2005-01-09 03:01 | 2683 Views | 45 Comments

I have TLEs and Generalized sz's.  I sz every day at least with drops, absences and jerks and then I have the odd CP or Jamais Vu or t/c and other things thrown in here and there.  I have...

Created By: birdwingblue | 2005-01-08 16:37 | 5683 Views | 32 Comments

hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of...

Created By: torielis | 2005-01-06 21:24 | 153 Views | 7 Comments

I have just recently joined this group and it's a comfort to read about similar situations as my 14 year old daughter.  She began having seizures last June and has almost had them monthly since...

Created By: usmale | 2005-01-05 09:13 | 4520 Views | 28 Comments

This may sound strange, but I really need the input. My Nephew was recently diagnosed with BiPolar Disorder. The "Diagnosis" from what I understand was made simply from descriptions of his...

Created By: meghan555 | 2005-01-04 11:15 | 112 Views | 0 Comments

Hello everyone,  this is my first time to this site and i just want to share my story with you.I have a 4 yr. old daughter that at the end of Octrober started to wake up in the middle of the night...

Created By: ozepilepsy2004 | 2005-01-02 22:36 | 43 Views | 0 Comments

Hi, <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />Would you like the community to have a better understanding of how it feels to be a young person living with...

Created By: rc6002 | 2005-01-02 20:24 | 51 Views | 2 Comments

Hello:  I just found this site today.  What a great site and support.    My son (now 16) had a grandmall seizure in July out of the blue.  It happened at a very early (6:15 am) football practice...

Created By: mollybright | 2005-01-02 16:49 | 33 Views | 0 Comments

Thanks for the suggestions, masterdelve!  I have to talk with Claire's teachers when the winter holiday is over and I'll bring up your ideas in our meeting!  If anybody has other suggestions for...

Created By: livebyfaith | 2004-12-25 16:33 | 510 Views | 4 Comments

My spouse and I are both 36 yrs old. he has had epilleptic seizures since he was around 5 years old and they were petite mal due to being thrown off the back of a bike and hitting his head on the...

Created By: jtkbrown1 | 2004-12-22 12:52 | 85 Views | 3 Comments

My daughter is 5 years old.  She has ahd seizures off and on since she was 3 months old.  The other day, she went to an amusment park and rode about 6 rides.  All of the rides were in a circular...

Created By: tammarrasmom | 2004-12-21 15:48 | 135 Views | 8 Comments

Hi, My name is Erika, and I have a now 2 month old baby girl that has been having seizures since even before she was born. I used to bring it up to the ob that she felt almost spastic in utero and...

Created By: klmahdi | 2004-12-18 23:05 | 54 Views | 0 Comments

Dear All,I have just joined this group to get some help or advice on my daughter's present condition.I am 24 yrs old and I live here in Djibouti. Last week, my 6 month-old daughter was having...

Created By: asteriatic | 2004-12-17 19:06 | 80 Views | 2 Comments

Hi - I'm 15 years old and while I'm not epileptic, my brother is.Over the past year or so, something a little weird has been happening to me. I'll be dreaming, and the more intense or faster the...

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