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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: Eric_D | 2014-07-06 15:34 | 215 Views | 0 Comments

Hello,

I am trying to find a way to explain to my 4 year old son that I have epilepsy. He has never witnessed me have a seizure in the past.

Hello,

I am trying to find a way...

Created By: n717 | 2014-06-25 02:01 | 292 Views | 1 Comment

i have complex partial and simple partial seizures and having someone to support you and take care of you is so crucial. i just had two seizures about 60 mins ago, i was sitting on the couch and a...

Created By: lagbfn@gmail.com | 2014-06-24 10:24 | 243 Views | 3 Comments

My 19 year old daughtere was diagnosed with Juvenile Myoclonic Epilepsy shortly after she turned 16.  She had been having mycolonic jerks for about 1 year prior to having a full blown tonic clonic...

Created By: vanessamg | 2014-06-22 20:35 | 264 Views | 1 Comment

My partner has suffered from tonic-clonic seizures since childhood. He is now in his mid-30s. His epilepsy is controlled with medication (Tegretol). At night he has what seem like seizures (limbs...

Created By: daneflare6@gmail.com | 2014-06-18 08:10 | 221 Views | 1 Comment

I'm female, 17, and a couple of months ago now I had a grand-mal seizure, I'm going for an MRI next monday to see if it's anything they can see that's wrong. 

But a week ago today I was on...

Created By: joy as caregiver | 2014-06-08 05:52 | 243 Views | 0 Comments

My older sibling is in my care.

Does anyone else experience a similar situation?

My sister is 13 years my senior, yet, due to untreated seizures from the age of three to the age of...

Created By: Blueeyedkay | 2014-06-08 05:09 | 197 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: akunknown24 | 2014-06-07 21:58 | 210 Views | 1 Comment

Hi everybody !!
wondering if anyone would know from experience or from some one else .
on high impact sports.
I snowboard , skateboard and I really like MMA.
I am curious...

Created By: shawnatwist@hotmail.com | 2014-06-05 13:05 | 341 Views | 1 Comment

My husband developed epilepy about 6 years ago. He is 51 years old and we think he may have been having simple partial seizures for some time before actual diagnosis. He has complex partials for...

Created By: BB8710 | 2014-06-04 03:39 | 278 Views | 1 Comment

Hello I am new to this site and although I'm not new to the whole epilepsy thing there is still a lot that is bothering me. I have been wondering other have been having the same problems or...

Created By: BB8710 | 2014-06-04 03:38 | 210 Views | 0 Comments

Hello I am new to this site and although I'm not new to the whole epilepsy thing there is still a lot that is bothering me. I have been wondering other have been having the same problems or...

Created By: FrustratedMom21 | 2014-06-02 22:14 | 242 Views | 1 Comment

My 21 yo daughter was diagnosed with epilepsy about 6 months ago after 5 months of not knowing what was going on.  She doesn't seize and the initial EEG came back negative.  We were pursuing the...

Created By: dtdintern | 2014-05-14 15:56 | 241 Views | 0 Comments

~~Are you looking for support, a good time, and creating new friendships? Deliver the Dream is a non-profit organization taking families with children or parents with epilepsy on a retreat the...

Created By: oreillylisa | 2014-05-13 18:26 | 253 Views | 0 Comments

~~Hi , Im wondering if anyone has any history of their child having myoclonic epilepsy? My son was diagnosed at 2yrs old as having benign myoclonus and then discharged , eeg did show abnormal...

Dad
Created By: taylori | 2014-05-04 15:42 | 289 Views | 1 Comment

hi. I've been trying to find a support group that deals with seizures and hopefully i've found the right spot. 

A short version of my dad's story is that last year he had an upper GI bleed...

Created By: andrewtwydell89@hotmail.co.uk | 2014-04-24 17:46 | 273 Views | 1 Comment

Hi all I'm new here from the uk seeking advice..

my father had a siezure in the night last week it was horrible scared my mum, all of us he was unconscious for about 30 minutes bit his...

Created By: ima_snaaake | 2014-04-19 01:30 | 321 Views | 6 Comments

hello all...

my 15 year old sister was recently diagnosed (its been a few months...i honestly cant think of what month or day...seems like too long...) with what...

Created By: lefemmefatale@gmail.com | 2014-04-18 12:57 | 295 Views | 1 Comment

Hello!

I’m 37 yrs old and since I was 12 yrs old I’ve always had issues with lights (strobe, bright lights..etc) also with rapidly changing intensities of light such as passing trees. When...

Created By: zombinacorpse@gmail.com | 2014-04-15 18:32 | 315 Views | 2 Comments

Hi there! My husband  has epilepsy and we're expecting our first son at the beginning of May. We've been trying to come up with a plan for how to deal with my husband's seizures in the event he's...

Created By: deke | 2014-04-14 11:29 | 334 Views | 5 Comments

18 year old nephew had a full blown seizure out of the blue. Never had one before. His dad said that he was burning up to touch while this was going on. He was hospitalized overnight and then...

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