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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: NessaK31 | 2014-09-18 05:12 | 32 Views | 0 Comments

Heya!

Seems like a good place to look for the much needed advice or hear an insightful story:)

My partner's had epilepsy ever since he was 16 y/o (he's 38 now). He has tonic clonic...

Created By: Epileptic boy's Mom | 2014-09-16 22:51 | 37 Views | 0 Comments

I am a very concern parent of a loveable two year old boy named Oliver. Please visit https://www.youtube.com/watch?v=...

Created By: bluechi286 | 2014-09-16 14:35 | 32 Views | 0 Comments

I have a lot of experience (20 years) with "dealing" with epilepsy. However there are still things that the population that do not have epilepsy (or are not a family member/friend of a person with...

Created By: bazinga77 | 2014-09-11 01:01 | 44 Views | 1 Comment

Hi everybody! First off, thank you for reading. I cannot tell you how much I appreciate you taking the time to read this. I don't know anyone else with epilepsy to discuss this with for a better...

Created By: sandysandmeyer@yahoo.com | 2014-08-27 19:27 | 67 Views | 5 Comments

My husband had his first seizure approximately 3.5 years ago at age 53.  He had another just over 1 year ago.  And a 3rd this past May, 2014.  Each time he's had a fever leading up to the seizure...

Created By: sistercoffee@gmail.com | 2014-08-27 06:03 | 44 Views | 0 Comments

My family and I are on vacation in the Dominican Republic - far away from our home on the coast of California. Two days ago my mom had a seizure worse than anything we'd seen before - we took a...

Created By: LoyalGolfer | 2014-07-25 23:21 | 109 Views | 3 Comments

As I grew up I learned about epilepsy because it was something that did effect more than one member of the family.  I did have a grandfather who passed away from drowning because of a seizure and...

Created By: sdleonguerrero094@gmail.com | 2014-07-10 14:25 | 126 Views | 1 Comment

hello i am new to this, but ive had epilepsy for over a decade..Okay, my fiance and i are discussing starting a family recently..and i justneed an outside opinion before going to my neurologist.....

Created By: erikadioni | 2014-07-09 15:23 | 116 Views | 1 Comment

My younger brother has been an epileptic for the last 8 years. He was jumped at 16 and has suffered seizures since. He's had them all, grand and petite mals, focal, and tremors. Now we just found...

Created By: liveforever88 | 2014-07-08 17:59 | 118 Views | 0 Comments

My brother was diagnosed with a brain tumor just over 2 years ago, he had an operation to remove the tumor but because of the position of the tumor it was too dangerous to remove it all.  The...

Created By: Eric_D | 2014-07-06 15:34 | 118 Views | 0 Comments

Hello,

I am trying to find a way to explain to my 4 year old son that I have epilepsy. He has never witnessed me have a seizure in the past.

Hello,

I am trying to find a way...

Created By: n717 | 2014-06-25 02:01 | 183 Views | 1 Comment

i have complex partial and simple partial seizures and having someone to support you and take care of you is so crucial. i just had two seizures about 60 mins ago, i was sitting on the couch and a...

Created By: lagbfn@gmail.com | 2014-06-24 10:24 | 145 Views | 3 Comments

My 19 year old daughtere was diagnosed with Juvenile Myoclonic Epilepsy shortly after she turned 16.  She had been having mycolonic jerks for about 1 year prior to having a full blown tonic clonic...

Created By: vanessamg | 2014-06-22 20:35 | 189 Views | 1 Comment

My partner has suffered from tonic-clonic seizures since childhood. He is now in his mid-30s. His epilepsy is controlled with medication (Tegretol). At night he has what seem like seizures (limbs...

Created By: daneflare6@gmail.com | 2014-06-18 08:10 | 157 Views | 1 Comment

I'm female, 17, and a couple of months ago now I had a grand-mal seizure, I'm going for an MRI next monday to see if it's anything they can see that's wrong. 

But a week ago today I was on...

Created By: joy as caregiver | 2014-06-08 05:52 | 167 Views | 0 Comments

My older sibling is in my care.

Does anyone else experience a similar situation?

My sister is 13 years my senior, yet, due to untreated seizures from the age of three to the age of...

Created By: Blueeyedkay | 2014-06-08 05:09 | 141 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: akunknown24 | 2014-06-07 21:58 | 151 Views | 1 Comment

Hi everybody !!
wondering if anyone would know from experience or from some one else .
on high impact sports.
I snowboard , skateboard and I really like MMA.
I am curious...

Created By: shawnatwist@hotmail.com | 2014-06-05 13:05 | 249 Views | 1 Comment

My husband developed epilepy about 6 years ago. He is 51 years old and we think he may have been having simple partial seizures for some time before actual diagnosis. He has complex partials for...

Created By: BB8710 | 2014-06-04 03:39 | 202 Views | 1 Comment

Hello I am new to this site and although I'm not new to the whole epilepsy thing there is still a lot that is bothering me. I have been wondering other have been having the same problems or...

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