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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mkd83189 | 2014-08-26 19:22 | 189 Views | 5 Comments

i've had seizures in my sleep for about 5 years now and my doctor has me on lamictal. ive never had a seizure while ive been awake-only in my sleep! about a year and a half ago i started to have...

Created By: cnyngirl | 2014-08-26 14:04 | 184 Views | 0 Comments

I need to reduce my seizure meds. They are causing serious side effects some of which can be permanent. So I really would like to know what is working for those of you using marijuana. We are all...

Created By: cabrennan@cogeco.ca | 2014-08-26 11:29 | 191 Views | 1 Comment

I have recently been diagnosed with Left Temporal Lobe Epilepsy.  I have had panic attacks for years, not sure if they were actually due to the TLE or not.  My question is has anyone heard of a...

Created By: ProfessionalDreamer | 2014-08-25 16:30 | 127 Views | 1 Comment

So I had a seizure Saturday morning ... like anytime i feel like i'm in the clear i get another one ... let me see what could have contributed to this, not eat much lately, bad break up night...

Created By: Metalfan | 2014-08-25 13:04 | 94 Views | 1 Comment

I had a seizure about one week ago and like the rest of the seizures (grand mals) I don't remember anything about it. I do know that I must have fell on my left arm/shoulder because it was sore...

Created By: puremage111 | 2014-08-25 07:10 | 122 Views | 2 Comments

Hi guys, im a guy who is 19 this year, my problem is this.

 

When i was 13, started my high school life, so basically most of the time i sleep really late at night like 4-5A.M and...

Created By: Artemis108 | 2014-08-25 02:33 | 416 Views | 2 Comments

I'm sure a lot of you have notice the "ice bucket challange" videos have gone viral on social media. It's where you dump a bucket of ice water on your head and donate to ALS research. I understand...

Created By: Smilemily | 2014-08-24 20:23 | 155 Views | 3 Comments

Hello

My name is Emily. I have multiple types of seizures usually at least once a month. Wearing a medical bracelet makes me feel safe when I go out in public. I have a plastic one now that...

Created By: heather_stefen92@hotmail.com | 2014-08-24 14:52 | 195 Views | 2 Comments

I am on keppra 2,000 mg a day and am feeling completely drained of energy and concentration all day long. I always feel like sleeping ALL THE TIME, my concentration is of the toddler state of mind...

Created By: layman12 | 2014-08-24 12:13 | 167 Views | 2 Comments

Hi guys. Just wanted some potential answers and I thought this was the right place to go. :-)

Okay so a little big of background, my friend was diagnosed with epilepsy when she was 20 and...

Created By: stripejellyfish | 2014-08-23 00:34 | 129 Views | 0 Comments

I refuse and pray I never have to go Hospital for seizure ever again most part bad experience with threat of pysch hold and bad treatment for pnes.
Getting there or having to be transported...

Created By: MarlenEllen | 2014-08-22 15:05 | 180 Views | 1 Comment

Hi

I was wondering what symptoms you have experienced /experiences during simple partial seizures and how often?

thanks!

Created By: eastsoccer97@gmail.com | 2014-08-22 14:53 | 75 Views | 0 Comments

Hey Guys,

I don't get on the computer much to keep up with what's going on on this website and others like it.  I was wondering if anyone knew if there was a group for Epilepsy on the App...

Created By: Chelsnory | 2014-08-22 09:00 | 141 Views | 1 Comment

I have woken up out of my sleep quite a few times to have a seizure or maybe it is to finish the seizure I was having in my sleep, I'm not sure. Every time I look for information on this I don't...

Created By: dowh4 | 2014-08-21 23:40 | 116 Views | 1 Comment

Hi,

I have complex partial seizures (5-10/month) with my focal point being left temporal lobe.  I currently take Trileptal (900mg/1200mg), Keppra (1500mg bid), and Lyrica (200mg bid). ...

Created By: solitairemiles@gmail.com | 2014-08-21 21:03 | 149 Views | 0 Comments

I wish that it didn't but pot makes me have more seizures, and really bad ones.  I am controlled by medication, but if I am in a room or near a person smoking pot, I will have biggies.  It makes...

Created By: mikef6322@gmail.com | 2014-08-21 15:54 | 119 Views | 1 Comment

hi.

 

I first had seizures about 8 years ago.  The emergency room at Saint Jude's told me it was because of an overdose of an antidepressant I had been briefly been on.  Now I am...

Created By: alexis00 | 2014-08-21 10:54 | 146 Views | 1 Comment

Started having partial seizures in my teens, with visions, misdiagnosed as panic attacks. They evolved into full on grand mal seizures when I was 26 and a tumor was removed from my temporal lobe...

Created By: laurielynnmu@yahoo.com | 2014-08-20 17:49 | 120 Views | 2 Comments

Hi all,

I was diagnosed with fronto temporal lobe epilepsy since Aug. 2013.  The previous March I started having phantom smells. Also, for years I would wake up and feel like I was choking...

Created By: daisy_jones08@yahoo.com | 2014-08-20 16:49 | 165 Views | 1 Comment

It would be so much easier to give up. I've had grand mal seizures since I was 11 and I'm 24 now.. I've been on all kinds of medications but nothing works.  Come to find out, I have less seizures...

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