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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mizboo76@gmail.com | 2014-05-11 20:23 | 99 Views | 1 Comment

I am scared to death that I will die or become non functional after my stay at the emu. What should I expect? Are there any experiencs anyone wants to share please, good or bad.

Created By: maggiequern | 2014-05-10 16:57 | 197 Views | 2 Comments

Hey everyone,

I know your supposed to trust the doctors that you get, but sometimes I feel like he isn't listening to me. My first seizure was 4 days after my 20th birthday. He put me on...

Created By: Andyman1977 | 2014-05-10 14:14 | 122 Views | 1 Comment

Hello

Has anyone had this?

i woke up having a peti mal. It wasn't going away, I got out of bed. After 30 sec's it triggered a grand mal. My neck twisted, but I didn't fall down....

Created By: ProfessionalDreamer | 2014-05-10 08:46 | 240 Views | 0 Comments

I can't remember if i posted bout this before but i'll just ask anyway.

Did u ever have a seizure in ur sleep that no1 heard a noise but you just woke up the next morning with your face...

Created By: tflood | 2014-05-09 13:39 | 112 Views | 0 Comments

I can't seem to be able to reply to posts for some reason, so here's my reply to yours below:

 

Hey man, hold strong!  You have been hit with a lot of misfortune, but you still have...

Created By: tflood | 2014-05-08 19:10 | 169 Views | 0 Comments

Hey everyone!

Had this crazy night!  I woke up around 1 am and couldn't get back to sleep.  Had some neck tension, so I took a couple Ibuprofen.  Now, these have certainly given me vivid...

Created By: nicoxshakes | 2014-05-08 18:02 | 101 Views | 0 Comments

Does anyone know where I can sign up for health insurance? Obama care is a huge pain in the ass, and a lot of,if not the majority other companies won't take on someone with a existing condition. I...

Created By: katfaerie | 2014-05-07 18:35 | 121 Views | 0 Comments

Ever since I have heard of Charlotte Figi and the use of cannabidiols to stop her seizures I can't stop talking about it!  I want that chance too!  I live in a backwards state that hasn't yet...

Created By: vickie_07 | 2014-05-07 16:02 | 178 Views | 2 Comments

 do you guys have your license? i dont. i dont feel normal with out it, im 23 my parents drive me to work. Do you feel the same? 

Created By: d.barban | 2014-05-07 08:45 | 122 Views | 1 Comment

Hi, my name is David Barban. I had two aneurysms/strokes in 1969 in Burbank, California. I now live in Israel. My grand mall ceisures are under control now. I take Mysoline and Tegretol.If the...

Created By: Amanda2408 | 2014-05-07 02:54 | 123 Views | 1 Comment

Okay so I was diagnosed with epilepsy when I was 10 went on medication then at age 17 was taken off medication because I was seizure free for 2 years. I am now 24 and been seizure free from petite...

Created By: Newdogyear | 2014-05-06 15:42 | 163 Views | 2 Comments

So I am likely going to be starting Frisium after an EMU stay sometime soon. My doctor said he has to get approval for the drug first. They are hoping to taper my Depakote in the unit, but I hate...

Created By: zooxahoy | 2014-05-06 01:14 | 108 Views | 1 Comment

Hello everyone. I have a problem with sleeping most of the day. For example, I will fall asleep at maybe 2 or 3am, and wake up at 8am, and then fall back asleep at 9am, and wake up at 4pm. I have...

Created By: southernmostsherrie@gmail.com | 2014-05-05 22:29 | 146 Views | 0 Comments

My daughter just finished some excrutiating spasms of her internal organs while seizing.  She said it feels like her organs were twisting, and I could actually see them clenching and twitching and...

Created By: avonlady | 2014-05-05 18:43 | 95 Views | 1 Comment

I will be going over seas. There is a 6 hour time change.  How do you adjust your medication to change you have time changes?

Created By: stevensgreen91240@gmail.com | 2014-05-05 16:38 | 118 Views | 1 Comment

I was diagnosed with epilepsy when I was 18 years old I'm 30 now. I have grand mal seizures and I always have an aura before I have one. My seizures are partly controlled but I still have them....

Created By: bluejay32 | 2014-05-05 01:30 | 267 Views | 2 Comments

I know I am not alone on this forum in saying that the side effects of anticonvulsant medications destroy quality of life.  As someone who prefers a natural lifestyle, I hate them even more.  My...

Created By: puglover | 2014-05-04 15:50 | 166 Views | 2 Comments

Does anyone's simple partial seizures start with an anxious feeling, then move to racing heart, then tongue sticks to the roof of your mouth and then you produce a vocalization of "aaahhhh.?" My...

Created By: avonlady | 2014-05-04 15:20 | 159 Views | 2 Comments

You might be surprise. Some of us might have both types. I had been controlled for years.  But it had been that once in a while i was feeling hungry and deizy. In Feburary I was driving and I felt...

Created By: avonlady | 2014-05-04 15:20 | 103 Views | 0 Comments

You might be surprise. Some of us might have both types. I had been controlled for years.  But it had been that once in a while i was feeling hungry and deizy. In Feburary I was driving and I felt...

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