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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Susaninfl | 2014-09-19 15:45 | 141 Views | 3 Comments

Hi All,

I was diagnosed over 2 years ago with seizures and have had 2 seizures which were grand mal where I had the seizures at work and I fell to the floor, etc and was taken to the ER,...

Created By: soldier mike | 2014-09-18 05:21 | 114 Views | 0 Comments

Hello. My name is mike and 24. I was diagnosed in the ER yesterday as having focal seizures. I have had headaches for a few years. They usually hit as a sharp pain to one side of the head and last...

Created By: Mekalekahimecahinyho | 2014-09-17 14:18 | 126 Views | 0 Comments

I am so frustrated.  I have been trying to find out information on different things, and I cannot think right. I had an irregular EEG, had a seizure when I slept.  My med levels were borderline.  ...

Created By: Spacedoubt | 2014-09-17 12:56 | 128 Views | 2 Comments

Please forgive me for asking you this. I know how totally off-the-wall it sounds, but I need feedback from other people who have had surgery for epilepsy, and people who live with it.

I had...

Created By: sb18940 | 2014-09-17 12:00 | 109 Views | 4 Comments

Almost six months ago I had seizure when I was driving.  I wasn't really hurt, maybe a bruised rib and knee, but the damage was mainly to my car.  Because of the seizure I lost my license and my...

Created By: bluechi286 | 2014-09-16 14:23 | 169 Views | 1 Comment

I have a lot of experience (20 years) with "dealing" with epilepsy. However there are still things that the population that do not have epilepsy (or are not a family member/friend of a person with...

Created By: Shahar | 2014-09-16 10:12 | 205 Views | 2 Comments

I was evaluated for temporal lobe epilepsy some years ago (including 24h EEG and monitoring) and in the end was told that they couldn’t see anything in the EEG and therefore think that I don’t...

Created By: birdsongg@msn.com | 2014-09-15 12:28 | 124 Views | 1 Comment

I am a 49 yr old woman in the midst or end of Menopause.  I was also diagnosed at 20 with Grand mal seizures.  At that time I was having roughly one every 3-4 weeks.  It wasnt until years later I...

Created By: alexis00 | 2014-09-13 17:06 | 139 Views | 1 Comment

It is often forgotten just how STRONG all of us are. The "Sacred Disease" has been with the human race for thousans of years. And still there are so many ignorant people out there that may be...

Created By: olivia96 | 2014-09-12 12:42 | 116 Views | 1 Comment

I was diagnosed with epilepsy 11 years ago and I've been on and off the medications ever since. A few months ago my EEG has gotten worse (before that and I haven't had a seizure for 10 years) and...

Created By: MBednarcik | 2014-09-11 00:33 | 143 Views | 1 Comment

Hi I have had gradmaul and partial seizures that go into gradmual since I was 10 or 13. A lot of trials with  epilepsy drugs and vns failed to.I went on zonegran  for awhile and it made my...

Created By: stripejellyfish | 2014-09-08 23:40 | 155 Views | 0 Comments

sever speech problem reoccurring after years of very rare to no occurrance at all of stuttering , epileptic Seizures and/or psychogenic seizures

 

 

 

anyone else have...

Created By: 3Hours2Live | 2014-09-08 12:20 | 119 Views | 0 Comments

I just had another encounter with "customer services" over essential household services mandated by the State.

An automated billing account has built up a large credit, and days ago I...

Created By: Lorikeet | 2014-09-08 03:48 | 180 Views | 2 Comments

I am a mess right now :(  I had a sleep-deprived EEG done last week amd did have some action during it.  Not the big seizures I had while in hospital, but the annoying ones that plague me on a...

Created By: john.robert.brown@bigpond.com | 2014-09-06 15:49 | 180 Views | 0 Comments

I just got a great job 28/8/14 and I told my boss I had epilepsy but that it was controlled by meds. A week later - to the day -he fired me on some crap charge. I had just sent a link to him and...

Created By: dmeloche56@gmail.com | 2014-09-06 13:41 | 167 Views | 0 Comments

I was working at Stonecroft Inn in Windsor Ontario doing housekeeping and previously I worked at a motel for 3 years before I came to Stonecroft Inn.You see I have had surgery for my seizures and...

Created By: kimjim23@yahoo.com | 2014-09-05 16:00 | 136 Views | 1 Comment

I had a Left Temporal Lobectomy 10 years ago. It has been great as far as my seizures are concerned, but it really did turn me into a different person.  I have had major "issues" with depression...

Created By: AJ91 | 2014-09-05 15:14 | 184 Views | 2 Comments

I have had Complex partial seziures for about 11 years now.  I have always tried to get away from people when I get ready to have one.  It has always worked for me, I could for the most part fight...

Created By: wkg123 | 2014-09-05 00:30 | 163 Views | 3 Comments

Hello I am william and i am 18 years old. I never have had a seizure that i was aware of until november of last year. First i had to cope without having a car and losing my independance, then in...

Created By: angelenya1 | 2014-09-04 20:35 | 132 Views | 0 Comments

on August 9th 2014 I all of a sudden got really tired and I had really bad arm pain from my wrist to elbow to the point where I was crying. the feeling of roller coasterin my stomachcame over me...

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