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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: katfaerie | 2014-05-07 18:35 | 115 Views | 0 Comments

Ever since I have heard of Charlotte Figi and the use of cannabidiols to stop her seizures I can't stop talking about it!  I want that chance too!  I live in a backwards state that hasn't yet...

Created By: vickie_07 | 2014-05-07 16:02 | 174 Views | 2 Comments

 do you guys have your license? i dont. i dont feel normal with out it, im 23 my parents drive me to work. Do you feel the same? 

Created By: d.barban | 2014-05-07 08:45 | 118 Views | 1 Comment

Hi, my name is David Barban. I had two aneurysms/strokes in 1969 in Burbank, California. I now live in Israel. My grand mall ceisures are under control now. I take Mysoline and Tegretol.If the...

Created By: Amanda2408 | 2014-05-07 02:54 | 121 Views | 1 Comment

Okay so I was diagnosed with epilepsy when I was 10 went on medication then at age 17 was taken off medication because I was seizure free for 2 years. I am now 24 and been seizure free from petite...

Created By: Newdogyear | 2014-05-06 15:42 | 158 Views | 2 Comments

So I am likely going to be starting Frisium after an EMU stay sometime soon. My doctor said he has to get approval for the drug first. They are hoping to taper my Depakote in the unit, but I hate...

Created By: zooxahoy | 2014-05-06 01:14 | 105 Views | 1 Comment

Hello everyone. I have a problem with sleeping most of the day. For example, I will fall asleep at maybe 2 or 3am, and wake up at 8am, and then fall back asleep at 9am, and wake up at 4pm. I have...

Created By: southernmostsherrie@gmail.com | 2014-05-05 22:29 | 137 Views | 0 Comments

My daughter just finished some excrutiating spasms of her internal organs while seizing.  She said it feels like her organs were twisting, and I could actually see them clenching and twitching and...

Created By: avonlady | 2014-05-05 18:43 | 93 Views | 1 Comment

I will be going over seas. There is a 6 hour time change.  How do you adjust your medication to change you have time changes?

Created By: stevensgreen91240@gmail.com | 2014-05-05 16:38 | 113 Views | 1 Comment

I was diagnosed with epilepsy when I was 18 years old I'm 30 now. I have grand mal seizures and I always have an aura before I have one. My seizures are partly controlled but I still have them....

Created By: bluejay32 | 2014-05-05 01:30 | 262 Views | 2 Comments

I know I am not alone on this forum in saying that the side effects of anticonvulsant medications destroy quality of life.  As someone who prefers a natural lifestyle, I hate them even more.  My...

Created By: puglover | 2014-05-04 15:50 | 163 Views | 2 Comments

Does anyone's simple partial seizures start with an anxious feeling, then move to racing heart, then tongue sticks to the roof of your mouth and then you produce a vocalization of "aaahhhh.?" My...

Created By: avonlady | 2014-05-04 15:20 | 156 Views | 2 Comments

You might be surprise. Some of us might have both types. I had been controlled for years.  But it had been that once in a while i was feeling hungry and deizy. In Feburary I was driving and I felt...

Created By: avonlady | 2014-05-04 15:20 | 101 Views | 0 Comments

You might be surprise. Some of us might have both types. I had been controlled for years.  But it had been that once in a while i was feeling hungry and deizy. In Feburary I was driving and I felt...

Created By: Amandawelden | 2014-05-03 23:22 | 85 Views | 0 Comments
Created By: amarieh | 2014-05-01 17:29 | 235 Views | 1 Comment

SO, I was diagnosed with epilepsy yesterday.  I am a 30 year old female with no known history of seizures in my family.  It all started on a Saturday 2 weeks ago.  I literally was making plans to...

Created By: kpinmd@gmail.com | 2014-05-01 02:15 | 223 Views | 0 Comments

Where to begin... I'm a 42 year old woman, mother to an 11 yr old son, & my seizures began about 3 years ago. I've had a great deal of stress throughout most of my life. They tell me that my...

Created By: Drealynn | 2014-04-30 12:06 | 212 Views | 2 Comments

Hi everyone. I am a 35 year old woman living with Partial Seizures. I was diagnosed 5 years ago. Despite the daily battles of living with seizures that I face each day, I have decided to return to...

Created By: Prenovate | 2014-04-29 20:59 | 113 Views | 0 Comments

Take a minute to contribute to epilepsy research.

 

https://es.surveymonkey.com/s/MCVBRJZ

Created By: ToBeFree | 2014-04-29 15:43 | 141 Views | 1 Comment

I just started seeing an epilepsy specialist and am going to ask him, in the best way I can, why I'm not on a medication that is specifically for generalized seizures.  Instead I am taking keppra...

Created By: kimie142002@hotmail.com | 2014-04-29 13:42 | 145 Views | 1 Comment

For the past several years I have been suffering from seizure like symptoms. Could it be epilepsy? According to my own research, yes, it is possible. But I can't be certain until I see a doctor....

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