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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: neoshogirl16@yahoo.com | 2014-08-08 21:45 | 88 Views | 1 Comment

My name is lacey I am 22 I'm from wisconsin i have tonic clonic (grand mal) seizures I've been having them since I was 9mos old I don't have them very often, but when I do it still kind of makes...

Created By: zwbsmom | 2014-08-08 18:33 | 74 Views | 0 Comments

I am 25, have had epilepsy since age 9, two temporal lobe resectionings, VNS, multitudes of medicine.  In June I felt what I thought to be seiure activity, began a 3 day dose of lorazepam per...

Created By: TanyaRobertson | 2014-08-08 00:13 | 112 Views | 2 Comments

Well after going almost 20 years without seizures (last one was around age 15 now 35). I have started having them again. Only they have come back in a different form. I used to have just petimal...

Created By: staringinthestars | 2014-08-07 13:11 | 44 Views | 0 Comments

Hi everyone! My name is Holly. I have a blog called Staring In The Stars in which I talk about my experiences living with Cerebral Palsy and Epilepsy, as well as share news and information about...

Created By: McArthurM | 2014-08-06 15:00 | 110 Views | 1 Comment

Hi,

I have been having seizures since I was about 15 years old (I am now 27) and I have them very frequently... like twice or so a month. I have tried several different medicines but...

Created By: strikerskid96@yahoo.com | 2014-08-03 20:07 | 142 Views | 1 Comment

I am 18 now, and I have had seizures for 6 years now. For the first 5 years it has always been the same where I just blank out and start moving my lips and fingers wherever and whenever my brain...

Created By: strikerskid96@yahoo.com | 2014-08-03 20:02 | 71 Views | 0 Comments
Created By: bhedges1987 | 2014-08-02 19:16 | 170 Views | 3 Comments

Hey all....

 

So I recently posted.... About 2 years ago I was working out very hard, when something happened I felt a different type of light-headedness..  It went away and came...

Created By: Satsujin | 2014-08-02 11:50 | 115 Views | 0 Comments

I used to have short term memory loss where I would forget what I was thinking a few seconds ago. That was cured with natural medicine. I still have long term memory loss where I cant seem to...

Created By: bhedges1987 | 2014-07-31 18:54 | 103 Views | 1 Comment

Hey all.

 

I'm new here and just diagnosed with multifocal seizures.  I had two abnormal eegs showing I guess abnormal waves in multiple parts of my brain.  I am 27 and have been...

Created By: Satsujin | 2014-07-31 06:52 | 59 Views | 0 Comments

I am trying to start a support group for epilepsy in Dubai. If we get enough members, we can meet at Safa or Zabeel park or instead meet online through Skype. Check out:

...

Created By: Head_Games_Girl | 2014-07-28 05:45 | 83 Views | 1 Comment

I read that the antidepressant Lyrica is also used as an AED. Currently wanting to try a new depression med as well as AED. Does anyone use Lyrica for both or one of the two? Does it work well...

Created By: tonierinmn | 2014-07-27 13:38 | 141 Views | 1 Comment

Hi folks!

I was just wondering if any of you could shed any light on my situation. Since childhood I have had seziures. Both epileptic and reflex anoxic. I stopped taking medication when I...

Created By: marylocke | 2014-07-26 09:24 | 86 Views | 0 Comments

Has anyone been denied coverage for neuropace rns device?  United Healthcare covered 6 hospitalizations which cost nearly $500,000.00 for me to get a conclusive diagnosis.  They are now denying...

Created By: BlessdOne | 2014-07-26 00:42 | 134 Views | 2 Comments

On December 31, 2013 I was told that I have epilepsy.  Since then I've been on Keppra, Vimpat and now Onfi.  I stayed on the Keppra but completely lost interest in sex and my ability to peak, the...

Created By: luann3v | 2014-07-25 22:52 | 89 Views | 2 Comments

I have a daughter who has epelpsy.  She has been in the hospital for seizures lasting a long time and having multitude of seizures.  I am wondering about seizure activity and barametric pressure...

Created By: melodee.mae@gmail.com | 2014-07-25 12:13 | 111 Views | 0 Comments

For almost 35 years my mom has been diagnosed with epilepsy, atypical petit mal seizures. When she goes into a spell it begins when she wakes up and either gets worse throughout the day or stays...

Created By: nellieandalexis12 | 2014-07-24 23:33 | 113 Views | 1 Comment

hello everyone i am new here. i have had refactory epilepsy since i was a teenager and i dont know when i have seizures or remember when i have them. i just know what my family tells me happens. i...

Created By: sallymomff | 2014-07-24 01:27 | 92 Views | 1 Comment

Does any one know what questions they ask during the phone interview for CA DMV phone interview.

Created By: eddyhdz@hotmail.com | 2014-07-23 21:09 | 90 Views | 3 Comments

Currently taking zonisamide and carbatrol what side effects have u experienced in last few weeks the zonisamide giving me sleeping trouble side effects talking in sleep etc this was at moment when...

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