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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Sbest25 | 2014-06-14 14:41 | 97 Views | 1 Comment

I was diagnosed about 3 years ago with epilepsy.  I have been seizure free up until this past Thursday. Should I call my Dr every time I have a seizure?

Created By: ProfessionalDreamer | 2014-06-13 08:39 | 103 Views | 2 Comments

I felt crazy last night... i couldn't sleep i felt like my heart was gonna pop out my chest and Aura after Aura plus I was home alone so I was really afraid to go to sleep. I thought I never would...

Created By: lauriekrull@roadrunner.com | 2014-06-12 08:56 | 101 Views | 3 Comments

I am the mother of a 15yo with intractable partial and generalized epilepsy.  We recently traveled to Mayo Clinic and, ultimately, got a recommendation to try IVIG.  

Of course, we will do...

Created By: SinceAge4 | 2014-06-12 02:56 | 127 Views | 1 Comment

United States, Female, Age 20. University student in Mathematics and Physics.

Hello,

I have an inquiry regarding information about or the experience of people who have complex...

Created By: newjack | 2014-06-11 10:38 | 91 Views | 1 Comment

My first seizure was when I was 16, I was rushed to the hospital which I was told it was a seizure. Abnormal EEG. I had a second Seizure when I was 18 and no EEG was taken immediatly, but had a 72...

Created By: emccance93@gmail.com | 2014-06-08 19:56 | 113 Views | 1 Comment

Hey everyone,

This is my first post, I just joined. So about 3 months ago I had a seizure after a night of drinking. The past few weeks before it were pretty stressful, I did 40 hours of...

Created By: sandman9669@sbcglobal.net | 2014-06-08 10:40 | 81 Views | 1 Comment

i don't like how they claim the generic dilantin is the same as the brand name, the fda is nothing but a complete liar, because being on the others before they came out with the much more cheaper...

Created By: Blueeyedkay | 2014-06-08 05:07 | 50 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: akunknown24 | 2014-06-07 21:57 | 52 Views | 2 Comments

Hi everybody !!
wondering if anyone would know from experience or from some one else .
on high impact sports.
I snowboard , skateboard and I really like MMA.
I am curious...

Created By: Violetfaith | 2014-06-07 19:28 | 72 Views | 2 Comments

Hi! I am a high school student with active seizures. I have absence, complex partial, and grand mals. I am looking into a career of nursing or maybe physical therpay. I wanted to know where you...

Created By: Kaalha | 2014-06-07 15:39 | 159 Views | 4 Comments

I am a student and want to write a paper (minimum 20-30 pages) about problems people with epilepsy have.

My own epilepsy is under control due to medication but I know I am lucky. Well, what...

Created By: beanxx2 | 2014-06-06 19:30 | 104 Views | 0 Comments

I am a 26 year old female diagnosed with absence seizures at age 10. I have been taking Epival until recently, I am trying out Lamictal. I have just reached my final dose of 200MG per day. I...

Created By: mheath5136 | 2014-06-06 16:03 | 82 Views | 1 Comment

Hi,
I have JME. My brain in the forehead area between my eyes always feels irritated. It is kind of like a constant mild headache. I always feel like I'm in bad mood, and my brain...

Created By: Artemis108 | 2014-06-05 02:01 | 132 Views | 2 Comments

I was diagnosed with epilepsy two years ago while I was in college. When i had my first seizure, I never drank or did any drugs. It really came out of nowhere. However, I may have been in denial...

Created By: mereloaded | 2014-06-04 22:17 | 227 Views | 6 Comments

Hi everyone,

 

once again I come to you for words of wisdom. As some of you know my 16 year old has epilepsy, diagnosed a year ago, doing fine is meds, extended remission. Now,...

Created By: 1n5ouc1ant | 2014-06-04 11:03 | 62 Views | 0 Comments

I'm a 35-year-old male. I began having simple partial and complex partial temporal lobe seizures around 22 or 23. I had no idea what they were, and they seemed more or less benign, so it didn't...

Created By: cloud_hugger | 2014-06-03 22:41 | 130 Views | 2 Comments

So... I was diagnosed with Temporal Lobe Epilepsy about 6 weeks ago. I've had a lot of the typical symptoms that I have read about (deja vu episodes, dissociation/derealization/depersonalization,...

Created By: akunknown24 | 2014-06-01 17:59 | 79 Views | 1 Comment

Little noise to silence during seizures.
is it because it happens so fast or from breathing wired before ,during or after that causes no sound to escape.
whether it is partial Or...

Created By: akunknown24 | 2014-06-01 16:54 | 132 Views | 1 Comment

this seems ridiculous, why is it a big deal to have uncontrolled, prolonged or just seizures in general whether they are epileptic or non - epileptic in nature.
another aspect is having...

Created By: ruebenwarrior@gmail.com | 2014-05-31 18:55 | 85 Views | 1 Comment

About 7 years ago I woke up and couldnt see, eveything was black. I also had trouble being able to move my arms and legs. I felt nearly parolised. My husband took me to the ER where I spent a week...

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