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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: aeboyle | 2005-03-26 09:31 | 392 Views | 5 Comments

I really did a number on my tongue when I had my seizure on monday.  i can't talk (at least not so anyone can understand me) and can't eat.  i've been living off of meal replacement smoothies but...

Created By: aeboyle | 2005-03-23 14:05 | 389 Views | 5 Comments

So after being seizure free for five years and 10 months I had a grand mal at work yesterday. i bit my tongue pretty bad and i have contusions on my face from the fall.  i'm okay now, they're...

Created By: cedar | 2005-03-23 10:01 | 416 Views | 5 Comments

Hi , I was wondering if anyone has experienced a headache a day before or many hours prior to having an a seizure. The other day I had many sharp brief headaches after doing work for awhile. Then...

Created By: cedar | 2005-03-23 08:45 | 353 Views | 1 Comment

I have read and been to many websites to figure this out yet it feels at times like a very tough thing to know.For a long time I use to have these clear cut complex partial seizures that were...

Created By: gretchen | 2005-03-23 05:13 | 360 Views | 0 Comments

I have status seizures always referred to in my medical records as "tonic/clonic" seizures. But the way my family describes them, and the way the medical charting describes my sz movement is that...

Created By: jess | 2005-03-22 16:43 | 358 Views | 1 Comment

I have had epilepsy my entire life and my last seizure was about a year ago. a couple of weeks ago though, i woke up in the middle of the night and my body had about 3 violent jerks and then i...

Created By: cedar | 2005-03-22 07:12 | 346 Views | 0 Comments

I understand that I have intractable seizures and alot of meds do not do much. But why? When I was on Tegregtol and dilatin I had side affects but only a few bad seizures complex seizures a month...

Created By: laurie9267 | 2005-03-20 09:26 | 3129 Views | 12 Comments

   Hi I am new here and recently was diagnosed with having seizures. I dont have the Grandmal seizures, but I have the partial seizures. This is an embarrassing question to ask, but does anyone...

Created By: cedar | 2005-03-20 02:26 | 504 Views | 16 Comments

I am curious to know if others experience that the first thing to happen for them in a seizure is to loose their speech? does this happen for most or only those with a certain type of seizures or...

Created By: meningiomamommakelli | 2005-03-18 16:38 | 2571 Views | 20 Comments

I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has...

Created By: cagreenm | 2005-03-16 01:52 | 557 Views | 10 Comments

I am a 19 year old student. For about 2 years I was a pot head, smoking almost everyday. I had 3 seizures on different occasions almost immediately (approx. 1 hour) after smoking marijuana. After...

Created By: hope19 | 2005-03-15 22:55 | 775 Views | 28 Comments

I have Epilepsy,Had my Sleep Deprived EEG yesterday,I was wondering if anyone else was haveing this kinda thing happen. When I get ready to go to bed or take a nap no matter were it is in a car or...

Created By: cedar | 2005-03-15 08:50 | 401 Views | 4 Comments

I am new here have posted a few times. I have had seizure for 36 years should be all stable and balanced right? Wrong. I feel like I am just learning who I am and what my story is really about....

Created By: spiz | 2005-03-14 20:36 | 519 Views | 17 Comments

I am walking into my kichen when it feels like I am being pulled to the left. Like the room is tilted to the left and I am trying to walk to the front right corner of the room while facing forward...

Created By: aarontomas | 2005-03-13 10:38 | 486 Views | 14 Comments

I was recently diagnosed with epilepsy, manifesting itself as simple partial seizures in my temporal lobe. Before I new what was causing my symptoms, namely intense deja vu, panic, and twitching,...

Created By: spiz | 2005-03-13 08:44 | 1244 Views | 32 Comments

My question(s) is this. When I have seizures in my sleep I usually pull muscles in my arms, upper back and neck. It is very painful. How can I go through a seizure or seizures that causes that...

Created By: spiz | 2005-03-13 01:13 | 357 Views | 1 Comment

I'm really curious if anyone else has noticed they have landed or injured one side of their body more during or due to a seizure than the other side. Nine times out of ten my right side catches it...

Created By: mell | 2005-03-11 08:11 | 490 Views | 3 Comments

hi i am looking for people who have jacksonian seizures..i need to know what is experienced before, during and after these seizures..thanks mell

Created By: saraann | 2005-03-07 20:20 | 395 Views | 3 Comments

Hello my name is Sara,I have had spells since I was a little girl and never knew what they were until back in 1999 when i had my very first grand mal at a job in which i was working at the time. ...

Created By: sadeyes | 2005-03-07 00:54 | 439 Views | 6 Comments

I have had epilepsy since I was 3 and have no clues as to what type of epilepsy I have. I was told that I have petit mal seizures but they have since dissappeared and I still take my meds so that...

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