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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: allentraveller106 | 2005-12-29 15:50 | 220 Views | 0 Comments

I have been a patient at the NYU epilepsy center for The next time I had a seizure I ca 4 years. I always have to make my appointment 6 months in advance or I can not be seen in 6 months. Over the...

Created By: coolcanadian | 2005-12-29 15:22 | 185 Views | 1 Comment

I caught an episode of a show titled 'General Practice' last night on satellite. It's an Australian produced show (Hi David). On this particular installment, one of the lead woman chararacters had...

Created By: edy_telephone | 2005-12-26 20:53 | 200 Views | 3 Comments

Does anybody suffer from pins and needles on a particular part of the body? I do have pins and needles on my back and often, on my right arm. I overwent the operation 5 years ago but it didn't...

Created By: firechick | 2005-12-26 18:22 | 2153 Views | 4 Comments

Has anyone heard of absence status epilepticus (aka Spike wave stupor or petit mal status)? Well I have it and it has been the hardest thing to go through. I have seizures every week or two which...

Created By: Anonymous | 2005-12-26 11:56 | 179 Views | 0 Comments

PARIS - Spiderman wants justice. The French skyscraper climber who goes by the name of the comic book superhero climbed a 28-story building in Paris on Tuesday to protest what he said was unfair...

Created By: Anonymous | 2005-12-26 11:54 | 187 Views | 0 Comments

PARIS - Spiderman wants justice. The French skyscraper climber who goes by the name of the comic book superhero climbed a 28-story building in Paris on Tuesday to protest what he said was unfair...

Created By: ar5236 | 2005-12-23 12:15 | 2956 Views | 7 Comments

Thank You ALL for sharing your experiences! I began taking Keppra in Aug/Sept 05 for partial-complex-2ndarily generalized seizures (mine began on Thanksgiving '03 - I was 25 - and I've had 3 more...

Created By: Silvia128 | 2005-12-19 16:56 | 183 Views | 2 Comments

Does an employer have to accommodate the needs of a person with seizures? Such as make a time change in their schedule if that is needed?

Created By: Robbi | 2005-12-19 04:23 | 192 Views | 2 Comments

I had a stroke during surgery on my brain, soon after the surgery I had my first seizure, it was terrifying, I experienced a spatial displacement so that even though I was in a recovery ward in...

Created By: gretchen1 | 2005-12-18 20:37 | 187 Views | 0 Comments

Hi Sweetie -

If you read the thread "I apologize" on the Adults Forum (now that's debatable terminology once I got to honking!)? Towards the bottom you'll see I mentioned your blog with...

Created By: gretchen1 | 2005-12-18 19:42 | 290 Views | 11 Comments

If I could EVER find anything I'd posted on or paid more attention to where I posted, I'd post this under where I posted before. But I didn't pay attention so this must suffice. This is long but...

Created By: fallenangel1773 | 2005-12-18 08:07 | 182 Views | 9 Comments

Hi guys I need some opinions on something.It would help me a lot.I am 32 I have had 5 or 6 seizures in my life.One while driving a car which scared me to death.Thank god I just hit a building and...

Created By: amandajeanblucher | 2005-12-17 19:21 | 167 Views | 0 Comments

Hello, thanks for the information Lisa!! We actually found a really great support group downtown with the Epilepsy Foundation of Greater Chicago, it is every 3rd Saturday of every month at 12:00...

Created By: limerick30 | 2005-12-17 18:07 | 228 Views | 5 Comments

Has anyone else ever heard of using jasmine (smelling it) to help stop seizures during an aura? Or has anyone ever heard of using it to stop seizures all together?
Has it worked for anyone...

Created By: tickledsilly | 2005-12-15 06:37 | 158 Views | 1 Comment

Hello, I am new to epilepsy after being misdiagnosed all my life, I am finding it dificult to ask for help and accept that this is really happening. I don't understand alot of what my body is...

Created By: Silvia128 | 2005-12-14 11:52 | 187 Views | 1 Comment

I'm not sure if any of you have ever been to the ER because of a seizure but I have. I think that ER docs need to be more informed of the different types of seizure disorders instead of deciding...

Created By: loz | 2005-12-11 04:12 | 658 Views | 24 Comments

its amazing to hear about other peoples auras, i am 20 years old and 4 months ago had my first seizures, i get a warning beforehand - ive had them all my life but would get a migraine afterwards...

Created By: txrhb1 | 2005-12-10 21:31 | 163 Views | 0 Comments

Hi there,

I am so sorry that you had a seizure Wednesday, and hope that you are doing well now. I'm glad to see you are trying to learn more about the disorder of epilepsy. There's a lot...

Created By: liza | 2005-12-05 12:34 | 185 Views | 3 Comments

Hi.

I'm being treated for rapid-cycling bipolar disorder. Over the past several months, I've started shaking when I begin to fall asleep. It sometimes lasts as long as 20 to 30 minutes....

Created By: Anonymous | 2005-12-04 12:58 | 236 Views | 4 Comments

Does anyone have any info on transportation other than the buses in Los Angeles. Has anyone used Access transportation to get to doctors appointments, shopping, airports etc.?

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