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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: saraann | 2005-03-07 20:20 | 393 Views | 3 Comments

Hello my name is Sara,I have had spells since I was a little girl and never knew what they were until back in 1999 when i had my very first grand mal at a job in which i was working at the time. ...

Created By: sadeyes | 2005-03-07 00:54 | 430 Views | 6 Comments

I have had epilepsy since I was 3 and have no clues as to what type of epilepsy I have. I was told that I have petit mal seizures but they have since dissappeared and I still take my meds so that...

Created By: sailor | 2005-03-03 17:25 | 1201 Views | 16 Comments

Hi, I am new to this sight and wanted to know if anyone has experienced hair loss after having a video eeg done for SPS. I was in the hospital for 10 days with the electrodes glued to my head...

Created By: amys2peanuts | 2005-03-01 10:40 | 602 Views | 18 Comments

I only have seizures (gran mal) about every 1-2 years.  I once went 6 years between them.  Mine seem to be triggered mainly by illness/fever now.  The last few times I have noted that I get...

Created By: jennamay | 2005-02-25 14:01 | 352 Views | 0 Comments

"People with epilepsy face hurdles each day as they carve out paths towards fulfilling and productive lives. Bender and Silver remind us to live within our limits, but to never stop dreaming and...

Created By: staceychil | 2005-02-25 09:45 | 958 Views | 35 Comments

Millions of people from all over the world suffer from a disorder called epilepsy. Five percent of the USA population has epilepsy. This disorder affects individuals from all age groups, from...

Created By: angh2 | 2005-02-19 10:32 | 387 Views | 2 Comments

i'm going to my Neuro Monday to get the final results from all these tests i've been taking. If he confirms that i do in fact have epilepsy, what types of questions should i ask him?? i'm a 26...

Created By: jnthn55 | 2005-02-16 13:13 | 499 Views | 7 Comments

about 5 years ago i lost consciousness while walking down my stairs and collapsed. after being given various tests at the hospital, the doctor informed me that i had suffered a seizure, with a...

Created By: spiz | 2005-02-14 23:39 | 422 Views | 5 Comments

I have TLE and have had for 30 years. I seem to have two speeds only. Sleeping or sleepy 24/7 or zipping around wide eyed and bushy tailed requiring 2 to 3 hours sleep in a 24 hour period if at...

Created By: mexican_fire | 2005-02-14 15:54 | 353 Views | 0 Comments

Hi.Does anyone else have JAE, either controlled or partially controlled?It is characterized by Petite Mals that have an on-set between 7-16 years old, followed by the start of Grand Mal seizures...

Created By: ccampbell020 | 2005-02-10 17:15 | 639 Views | 21 Comments

Do any of you tend to push people close to you out of your lives for no good reason? I have a wonderful, loving fiancee and I keep wanting to push her out of my life. She is fully accepting and...

Created By: deborah | 2005-02-10 16:47 | 629 Views | 13 Comments

Can someone tell me whether an abnormal EEG always means that you have Epilepsy.Am I right in that some types of migraine show an abnormal EEG when they are occuring. Thanks

Created By: millsj | 2005-02-10 13:26 | 652 Views | 26 Comments

After my seizure on Tuesday i dont really remember anything from the past like who people are i get lost and forget where im going and i am really suffering with my short term memory loss

Created By: peaberry | 2005-02-09 18:28 | 542 Views | 10 Comments

Hi, I am new to this board and was diagnosed with epilepsy for the second time in my life about a year ago. I am 25 years old and took Dilantin from the time I was 3 until I was 10, and then my...

Created By: smbf | 2005-02-08 16:41 | 475 Views | 4 Comments

Anyone have experience with frontal lobe epilepsy ?Is it hard to achieve complete control? What are the effects on the executive brain functions? I have read a lot on temporal lobe epilepsy not...

Created By: gretchen | 2005-02-08 12:53 | 1929 Views | 32 Comments

I often feel in my upper arms and front of thighs like I'm plugged into a wall socket. At times it's so bad I feel like a sz waiting to happen. Other times it's a near relief to have a sz...

Created By: ccampbell020 | 2005-02-07 17:41 | 492 Views | 14 Comments

Do any of you battle depression?  I have only recently discovered that I may have been depressed for quite some time and it could be related to my seizure condition.  Or perhaps it's the fact that...

Created By: pryderi | 2005-02-05 09:23 | 923 Views | 37 Comments

This is my latest thought, maybe if I explain to some people who actually have epilepsy my situation they might be able to suggest something or understand,  because everytime I go to a doctor they...

Created By: ruth | 2005-02-04 20:24 | 463 Views | 8 Comments

I was diagnosed with petite mal epilepsy 25 years ago. I was having dream like feelings and de ja vue. My doctor prescribed dilantin and I have only had a few seizures over the years.  Just...

Created By: theresab72 | 2005-02-03 17:03 | 408 Views | 0 Comments

I thought for the longest time that I was having seizures, but all my EEG's kept coming back normal, so I would go home with the pseudoseizure label.  Finally I found out that I have a movement...

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