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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jnthn55 | 2005-04-22 15:42 | 585 Views | 11 Comments

hopefully someone can help me get some clarity on this.yesterday i had my thrid seizure ever, the first in five years, and would like to ask a question or two. i'm 26 years old and had my first...

Created By: shawtee | 2005-04-22 15:34 | 483 Views | 13 Comments

I am 31 and have been recently diagnosed with the same, i also feel fine and only have these in my sleep. My tests were also fine, however the doctors discribed to me that I do need my...

Created By: mmdt2005 | 2005-04-21 09:14 | 356 Views | 2 Comments

I was offered a job and after passing my physicals and recieving my dot card I was told I didn't qualify because I fainted over two years ago. I also fainted when I was a teen but it was a...

Created By: avidrunner22 | 2005-04-21 08:19 | 471 Views | 16 Comments

my mom is a medical assistant...she tells me well you aren't having any grand mals so i shouldn't worry about all the other stuff that is happening and i am wasting my time looking for an...

Created By: elizabeth4 | 2005-04-21 07:16 | 345 Views | 1 Comment

29 Male, got epilepsy at 14 from severe head traume (ok i was blown up..opps)I have always had big seivures 2 min and then left side of body is paralyzed for few hours.Now my girlfriend is scared...

Created By: crismoss | 2005-04-19 02:00 | 479 Views | 9 Comments

Im 32 - I just had my second seizure last night. My first was about six weeks ago, and both happened while asleep. I had all of the tests except for the EEG, and my results came out fine. I...

Created By: kdiamondidis | 2005-04-18 23:15 | 772 Views | 19 Comments

I find myself substituting words (for example, I was looking at a potato chip and called it a paper clip instead) or having trouble finding the right word much more often than usual ever since my...

Created By: mob_ahm | 2005-04-18 15:40 | 553 Views | 4 Comments

i am 34, i had to face first Seizure on Dec 2002 then second one on May 2003....I had  EEG, CT Scan, MRI But all are normal. Doctor diagnoses me Epilepsy…Till now i am using medicine named...

Created By: avidrunner22 | 2005-04-18 10:40 | 354 Views | 0 Comments

now i don't believe my doc saying my events are non-epileptic at all, my question is about this. a few weeks ago, i was sitting around watching a baseball game, and I felt like I was going to...

Created By: gretchen | 2005-04-14 21:32 | 1875 Views | 26 Comments

My epilepsy started out with only generalized seizures as compared to TLE's or temporal lobe epilepsy. I had a head injury from szing, injuring both sides of my head around my temporal lobes as...

Created By: reeder | 2005-04-12 13:36 | 387 Views | 4 Comments

I've been having T.L. seizures for 4 years. I'm positive that's what it is, but I've never been diagnosed. I've talked to doctors about it, many times in just casual conversations, and even during...

Created By: llred22500 | 2005-04-11 18:27 | 1350 Views | 9 Comments

I have a question, does anyone know what it is when just your arms do violent jerks, they are sharp and uncontrollable, but that is the only thing that happens, and it usually only happens in the...

Created By: mexican_fire | 2005-04-11 16:10 | 2365 Views | 11 Comments

HI guys~~Just wanted to waht kind of talks I could get going with this one.In August of last year I was diagnosed with a relatively new syndrome for adults called Adult Myoclonic Epilepsy (AME). ...

Created By: lala412 | 2005-04-10 16:37 | 462 Views | 11 Comments

Okay, backstory - I'm 35 (36 in a few months).  Was diagnosed with epilepsy at age 10 after having my 1st seizure.  Went on phenobarb.  At 20, had my 2nd seizure.  I was very lucky. I knew that.At...

Created By: spiz | 2005-04-06 05:51 | 415 Views | 8 Comments

There isn't any way to put into words the frustration and aggravation I go through to achieve an 'acceptable' sleep routine. I need to sleep at night and be up early in the mornings for everything...

Created By: shanzim | 2005-04-04 11:33 | 761 Views | 20 Comments

My name is Shannon, Im almost 21 and I live in Minnesota.I know nobody calls my epilepsy 'petit mal' anymore but thats what they told me I had twelve years ago. My whole life I was told I would...

Created By: bandcher | 2005-04-03 00:45 | 475 Views | 10 Comments

      I have had epilepsy for four years now.  It just started out of the blue when I was 19, and they still don't know what is wrong.  I have had the right temporal lobe surgery, and all that did...

Created By: cedar | 2005-04-02 19:16 | 355 Views | 3 Comments

Hi everyone, I am feeling kinda down . I have simple and complex seizures and have for 36 years, now in my 40's . Had to get off old meds a year ago and meds just are not keeping my siezures...

Created By: avidrunner22 | 2005-03-28 12:45 | 1188 Views | 5 Comments

a few mornings ago i was brushing my teeth in the morning and the top left side of my head started hurting..it was like a stabbing pain, it was very intense..and it was tingling also, for probably...

Created By: gretchen | 2005-03-26 10:39 | 536 Views | 16 Comments

(edited from original to reduce length)I'm at a point I live in a near constant state of vague dread one this is going to occur. It also scares me.I've been told these are "jerks". I started...

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