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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mexican_fire | 2005-07-29 17:38 | 193 Views | 2 Comments

Hi all, I am strangely wired from top to bottom, when I should have slept through the night and still be sleeping right now, but am not.I ahd a MAJOR T/C last night that lasted around 3.5-4...

Created By: mexican_fire | 2005-07-28 17:15 | 191 Views | 3 Comments

I was wondering a weird thing and was wondering if anyone else experiences this.Obviously, I have more TCs than anything else, but when the jerks are doing their thing, and muscles jerk or twitch...

Created By: mexican_fire | 2005-07-28 15:49 | 253 Views | 8 Comments

My ass of an Epi that I was talking about when it happened with all of his treaths, taunting, rudeness, telling me I had NES, that I was faking this, etc.Well, I went on vacation for 3 weeks after...

Created By: sansy | 2005-07-25 15:01 | 209 Views | 3 Comments

I was physically abused growing up, and a lot of it involved my head unfortunately. I don't need to go into a lot of the details, but I tried to remember things recently and realized that there...

Created By: steffles | 2005-07-25 08:05 | 1925 Views | 28 Comments

I applied for disability last month (June 15 to be exact). Since then, everything seems to be going well...my docs have gotten their paperwork in, I've turned in my questionnaire, my DH has...

Created By: mexican_fire | 2005-07-24 23:28 | 182 Views | 0 Comments

Hey guys,Here is another one of my many experiences, as of late.Me and part of my family went across the country for a 3.5  week vacation to try to get away from this heat here in Phoenix, (which...

Created By: bigjeffita | 2005-07-24 16:56 | 678 Views | 7 Comments

I have those too but the only way I know is if my family tells me I had them. So far I am on Keppra 5mg three tablets two times a day, Neurotin 300mg capsules daily, diilantin100mg 5 times daily....

Created By: butterfly | 2005-07-23 13:03 | 215 Views | 5 Comments

its been awhile since i've posted on here but I would like some feedback on my "episodes". I have been having 2-4 a day and have dropped twice. I take my meds everyday but it seems like therenot...

Created By: Butterflygrl | 2005-07-23 10:47 | 299 Views | 7 Comments

Well, I got the results back from my EEG and he told me that it came back normal.The conversation after that was one that left me very distraught.My neurologist could not help me. All he told me...

Created By: Butterflygrl | 2005-07-18 22:03 | 511 Views | 35 Comments

Hi there,I am trying to figure out if I am experiencing strange aura's or if I'm actually LOSING MY MIND as a result of being so stressed and full of anxiety from experiencing my first seizure....

Created By: Maggie | 2005-07-18 00:37 | 46462 Views | 87 Comments

Last night I was laying in bed with my eyes closed and all of a sudden on the left side of my brain it felt just like an electrical shock.I jumped and there was a tingling sensation down my right...

Created By: jasmine | 2005-07-17 21:57 | 237 Views | 6 Comments

hi , was wondering if anyone also has cfs as well as eperlepsy ? if so how do you cope as im having a hard time coping right now thanks jasmine

Created By: kleen | 2005-07-17 19:28 | 1203 Views | 13 Comments

I won't even type very much because it takes too long. I have taken dilantin for 43 years and suffered some memory loss especally when it came to remembring certain words the other stuff I coped...

Created By: elsea | 2005-07-17 00:40 | 222 Views | 4 Comments

Dr. is not sure if dx is epilepsy or not. Could you have it and have this test come out normal? Any tips for staying awake? Thank-you for any help you can give.Elsea

Created By: nixx | 2005-07-15 12:09 | 380 Views | 6 Comments

Okay, heres a little background info (like anyone cares).. My father has severe epilepsy, he has had it his whole life, He can't go for more than 2 weeks without having a grand mal seizure....

Created By: Butterflygrl | 2005-07-13 21:59 | 461 Views | 3 Comments

Wow. I finally have answers. I phoned my neurologist today before even getting my EEG results back, because I was going through some papers, and I noticed he had jotted down "SUBEPENDYMAL...

Created By: Butterflygrl | 2005-07-12 21:39 | 3342 Views | 22 Comments

I need to know if anyone knows of this type of CT Scan result.When I went into the hospital 2 weeks ago after experiencing my first grand-mal, the CT Scan showed that the seizure may have been...

Created By: bandcher | 2005-07-12 19:26 | 233 Views | 4 Comments

I just started having seizures four yrs ago when I was 19 out of the blue, and they still don't know what's wrong with me.  Well, and I've had the Right Lobectomy surgery which helped a little bit...

Created By: drewsie | 2005-07-12 19:25 | 921 Views | 32 Comments

i ride my bike to work everday (about 7 miles each way in NYC), and my friend is convinced that i shouldn't ride when it's really hot because the combination of exercise and heat could provoke a...

Created By: rithra1213 | 2005-07-12 10:43 | 247 Views | 10 Comments

Hi everyone, this maybe boring but i need to vent. I got a job in the furniture field which I have 20+ years of experience in, at a furniture closeout store in springfield, missouri. They sell...

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