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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: llred22500 | 2005-04-11 18:27 | 1231 Views | 9 Comments

I have a question, does anyone know what it is when just your arms do violent jerks, they are sharp and uncontrollable, but that is the only thing that happens, and it usually only happens in the...

Created By: mexican_fire | 2005-04-11 16:10 | 2068 Views | 11 Comments

HI guys~~Just wanted to waht kind of talks I could get going with this one.In August of last year I was diagnosed with a relatively new syndrome for adults called Adult Myoclonic Epilepsy (AME). ...

Created By: lala412 | 2005-04-10 16:37 | 435 Views | 11 Comments

Okay, backstory - I'm 35 (36 in a few months).  Was diagnosed with epilepsy at age 10 after having my 1st seizure.  Went on phenobarb.  At 20, had my 2nd seizure.  I was very lucky. I knew that.At...

Created By: spiz | 2005-04-06 05:51 | 401 Views | 8 Comments

There isn't any way to put into words the frustration and aggravation I go through to achieve an 'acceptable' sleep routine. I need to sleep at night and be up early in the mornings for everything...

Created By: shanzim | 2005-04-04 11:33 | 674 Views | 20 Comments

My name is Shannon, Im almost 21 and I live in Minnesota.I know nobody calls my epilepsy 'petit mal' anymore but thats what they told me I had twelve years ago. My whole life I was told I would...

Created By: bandcher | 2005-04-03 00:45 | 445 Views | 10 Comments

      I have had epilepsy for four years now.  It just started out of the blue when I was 19, and they still don't know what is wrong.  I have had the right temporal lobe surgery, and all that did...

Created By: cedar | 2005-04-02 19:16 | 345 Views | 3 Comments

Hi everyone, I am feeling kinda down . I have simple and complex seizures and have for 36 years, now in my 40's . Had to get off old meds a year ago and meds just are not keeping my siezures...

Created By: avidrunner22 | 2005-03-28 12:45 | 1020 Views | 5 Comments

a few mornings ago i was brushing my teeth in the morning and the top left side of my head started hurting..it was like a stabbing pain, it was very intense..and it was tingling also, for probably...

Created By: gretchen | 2005-03-26 10:39 | 514 Views | 16 Comments

(edited from original to reduce length)I'm at a point I live in a near constant state of vague dread one this is going to occur. It also scares me.I've been told these are "jerks". I started...

Created By: aeboyle | 2005-03-26 09:31 | 379 Views | 5 Comments

I really did a number on my tongue when I had my seizure on monday.  i can't talk (at least not so anyone can understand me) and can't eat.  i've been living off of meal replacement smoothies but...

Created By: aeboyle | 2005-03-23 14:05 | 367 Views | 5 Comments

So after being seizure free for five years and 10 months I had a grand mal at work yesterday. i bit my tongue pretty bad and i have contusions on my face from the fall.  i'm okay now, they're...

Created By: cedar | 2005-03-23 10:01 | 399 Views | 5 Comments

Hi , I was wondering if anyone has experienced a headache a day before or many hours prior to having an a seizure. The other day I had many sharp brief headaches after doing work for awhile. Then...

Created By: cedar | 2005-03-23 08:45 | 343 Views | 1 Comment

I have read and been to many websites to figure this out yet it feels at times like a very tough thing to know.For a long time I use to have these clear cut complex partial seizures that were...

Created By: gretchen | 2005-03-23 05:13 | 349 Views | 0 Comments

I have status seizures always referred to in my medical records as "tonic/clonic" seizures. But the way my family describes them, and the way the medical charting describes my sz movement is that...

Created By: jess | 2005-03-22 16:43 | 343 Views | 1 Comment

I have had epilepsy my entire life and my last seizure was about a year ago. a couple of weeks ago though, i woke up in the middle of the night and my body had about 3 violent jerks and then i...

Created By: cedar | 2005-03-22 07:12 | 334 Views | 0 Comments

I understand that I have intractable seizures and alot of meds do not do much. But why? When I was on Tegregtol and dilatin I had side affects but only a few bad seizures complex seizures a month...

Created By: laurie9267 | 2005-03-20 09:26 | 2855 Views | 12 Comments

   Hi I am new here and recently was diagnosed with having seizures. I dont have the Grandmal seizures, but I have the partial seizures. This is an embarrassing question to ask, but does anyone...

Created By: cedar | 2005-03-20 02:26 | 483 Views | 16 Comments

I am curious to know if others experience that the first thing to happen for them in a seizure is to loose their speech? does this happen for most or only those with a certain type of seizures or...

Created By: meningiomamommakelli | 2005-03-18 16:38 | 2260 Views | 20 Comments

I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has...

Created By: cagreenm | 2005-03-16 01:52 | 517 Views | 10 Comments

I am a 19 year old student. For about 2 years I was a pot head, smoking almost everyday. I had 3 seizures on different occasions almost immediately (approx. 1 hour) after smoking marijuana. After...

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