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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: cedar | 2005-03-20 02:26 | 479 Views | 16 Comments

I am curious to know if others experience that the first thing to happen for them in a seizure is to loose their speech? does this happen for most or only those with a certain type of seizures or...

Created By: meningiomamommakelli | 2005-03-18 16:38 | 2152 Views | 20 Comments

I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has...

Created By: cagreenm | 2005-03-16 01:52 | 507 Views | 10 Comments

I am a 19 year old student. For about 2 years I was a pot head, smoking almost everyday. I had 3 seizures on different occasions almost immediately (approx. 1 hour) after smoking marijuana. After...

Created By: hope19 | 2005-03-15 22:55 | 733 Views | 28 Comments

I have Epilepsy,Had my Sleep Deprived EEG yesterday,I was wondering if anyone else was haveing this kinda thing happen. When I get ready to go to bed or take a nap no matter were it is in a car or...

Created By: cedar | 2005-03-15 08:50 | 384 Views | 4 Comments

I am new here have posted a few times. I have had seizure for 36 years should be all stable and balanced right? Wrong. I feel like I am just learning who I am and what my story is really about....

Created By: spiz | 2005-03-14 20:36 | 500 Views | 17 Comments

I am walking into my kichen when it feels like I am being pulled to the left. Like the room is tilted to the left and I am trying to walk to the front right corner of the room while facing forward...

Created By: aarontomas | 2005-03-13 10:38 | 461 Views | 14 Comments

I was recently diagnosed with epilepsy, manifesting itself as simple partial seizures in my temporal lobe. Before I new what was causing my symptoms, namely intense deja vu, panic, and twitching,...

Created By: spiz | 2005-03-13 08:44 | 1086 Views | 32 Comments

My question(s) is this. When I have seizures in my sleep I usually pull muscles in my arms, upper back and neck. It is very painful. How can I go through a seizure or seizures that causes that...

Created By: spiz | 2005-03-13 01:13 | 340 Views | 1 Comment

I'm really curious if anyone else has noticed they have landed or injured one side of their body more during or due to a seizure than the other side. Nine times out of ten my right side catches it...

Created By: mell | 2005-03-11 08:11 | 449 Views | 3 Comments

hi i am looking for people who have jacksonian seizures..i need to know what is experienced before, during and after these seizures..thanks mell

Created By: saraann | 2005-03-07 20:20 | 378 Views | 3 Comments

Hello my name is Sara,I have had spells since I was a little girl and never knew what they were until back in 1999 when i had my very first grand mal at a job in which i was working at the time. ...

Created By: sadeyes | 2005-03-07 00:54 | 411 Views | 6 Comments

I have had epilepsy since I was 3 and have no clues as to what type of epilepsy I have. I was told that I have petit mal seizures but they have since dissappeared and I still take my meds so that...

Created By: sailor | 2005-03-03 17:25 | 1068 Views | 15 Comments

Hi, I am new to this sight and wanted to know if anyone has experienced hair loss after having a video eeg done for SPS. I was in the hospital for 10 days with the electrodes glued to my head...

Created By: amys2peanuts | 2005-03-01 10:40 | 572 Views | 18 Comments

I only have seizures (gran mal) about every 1-2 years.  I once went 6 years between them.  Mine seem to be triggered mainly by illness/fever now.  The last few times I have noted that I get...

Created By: jennamay | 2005-02-25 14:01 | 338 Views | 0 Comments

"People with epilepsy face hurdles each day as they carve out paths towards fulfilling and productive lives. Bender and Silver remind us to live within our limits, but to never stop dreaming and...

Created By: staceychil | 2005-02-25 09:45 | 898 Views | 35 Comments

Millions of people from all over the world suffer from a disorder called epilepsy. Five percent of the USA population has epilepsy. This disorder affects individuals from all age groups, from...

Created By: angh2 | 2005-02-19 10:32 | 371 Views | 2 Comments

i'm going to my Neuro Monday to get the final results from all these tests i've been taking. If he confirms that i do in fact have epilepsy, what types of questions should i ask him?? i'm a 26...

Created By: jnthn55 | 2005-02-16 13:13 | 479 Views | 7 Comments

about 5 years ago i lost consciousness while walking down my stairs and collapsed. after being given various tests at the hospital, the doctor informed me that i had suffered a seizure, with a...

Created By: spiz | 2005-02-14 23:39 | 411 Views | 5 Comments

I have TLE and have had for 30 years. I seem to have two speeds only. Sleeping or sleepy 24/7 or zipping around wide eyed and bushy tailed requiring 2 to 3 hours sleep in a 24 hour period if at...

Created By: mexican_fire | 2005-02-14 15:54 | 341 Views | 0 Comments

Hi.Does anyone else have JAE, either controlled or partially controlled?It is characterized by Petite Mals that have an on-set between 7-16 years old, followed by the start of Grand Mal seizures...

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