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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mexican_fire | 2005-04-11 16:10 | 1959 Views | 11 Comments

HI guys~~Just wanted to waht kind of talks I could get going with this one.In August of last year I was diagnosed with a relatively new syndrome for adults called Adult Myoclonic Epilepsy (AME). ...

Created By: lala412 | 2005-04-10 16:37 | 430 Views | 11 Comments

Okay, backstory - I'm 35 (36 in a few months).  Was diagnosed with epilepsy at age 10 after having my 1st seizure.  Went on phenobarb.  At 20, had my 2nd seizure.  I was very lucky. I knew that.At...

Created By: spiz | 2005-04-06 05:51 | 397 Views | 8 Comments

There isn't any way to put into words the frustration and aggravation I go through to achieve an 'acceptable' sleep routine. I need to sleep at night and be up early in the mornings for everything...

Created By: shanzim | 2005-04-04 11:33 | 661 Views | 20 Comments

My name is Shannon, Im almost 21 and I live in Minnesota.I know nobody calls my epilepsy 'petit mal' anymore but thats what they told me I had twelve years ago. My whole life I was told I would...

Created By: bandcher | 2005-04-03 00:45 | 440 Views | 10 Comments

      I have had epilepsy for four years now.  It just started out of the blue when I was 19, and they still don't know what is wrong.  I have had the right temporal lobe surgery, and all that did...

Created By: cedar | 2005-04-02 19:16 | 338 Views | 3 Comments

Hi everyone, I am feeling kinda down . I have simple and complex seizures and have for 36 years, now in my 40's . Had to get off old meds a year ago and meds just are not keeping my siezures...

Created By: avidrunner22 | 2005-03-28 12:45 | 967 Views | 5 Comments

a few mornings ago i was brushing my teeth in the morning and the top left side of my head started hurting..it was like a stabbing pain, it was very intense..and it was tingling also, for probably...

Created By: gretchen | 2005-03-26 10:39 | 510 Views | 16 Comments

(edited from original to reduce length)I'm at a point I live in a near constant state of vague dread one this is going to occur. It also scares me.I've been told these are "jerks". I started...

Created By: aeboyle | 2005-03-26 09:31 | 374 Views | 5 Comments

I really did a number on my tongue when I had my seizure on monday.  i can't talk (at least not so anyone can understand me) and can't eat.  i've been living off of meal replacement smoothies but...

Created By: aeboyle | 2005-03-23 14:05 | 365 Views | 5 Comments

So after being seizure free for five years and 10 months I had a grand mal at work yesterday. i bit my tongue pretty bad and i have contusions on my face from the fall.  i'm okay now, they're...

Created By: cedar | 2005-03-23 10:01 | 397 Views | 5 Comments

Hi , I was wondering if anyone has experienced a headache a day before or many hours prior to having an a seizure. The other day I had many sharp brief headaches after doing work for awhile. Then...

Created By: cedar | 2005-03-23 08:45 | 338 Views | 1 Comment

I have read and been to many websites to figure this out yet it feels at times like a very tough thing to know.For a long time I use to have these clear cut complex partial seizures that were...

Created By: gretchen | 2005-03-23 05:13 | 345 Views | 0 Comments

I have status seizures always referred to in my medical records as "tonic/clonic" seizures. But the way my family describes them, and the way the medical charting describes my sz movement is that...

Created By: jess | 2005-03-22 16:43 | 339 Views | 1 Comment

I have had epilepsy my entire life and my last seizure was about a year ago. a couple of weeks ago though, i woke up in the middle of the night and my body had about 3 violent jerks and then i...

Created By: cedar | 2005-03-22 07:12 | 332 Views | 0 Comments

I understand that I have intractable seizures and alot of meds do not do much. But why? When I was on Tegregtol and dilatin I had side affects but only a few bad seizures complex seizures a month...

Created By: laurie9267 | 2005-03-20 09:26 | 2713 Views | 12 Comments

   Hi I am new here and recently was diagnosed with having seizures. I dont have the Grandmal seizures, but I have the partial seizures. This is an embarrassing question to ask, but does anyone...

Created By: cedar | 2005-03-20 02:26 | 479 Views | 16 Comments

I am curious to know if others experience that the first thing to happen for them in a seizure is to loose their speech? does this happen for most or only those with a certain type of seizures or...

Created By: meningiomamommakelli | 2005-03-18 16:38 | 2144 Views | 20 Comments

I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has...

Created By: cagreenm | 2005-03-16 01:52 | 507 Views | 10 Comments

I am a 19 year old student. For about 2 years I was a pot head, smoking almost everyday. I had 3 seizures on different occasions almost immediately (approx. 1 hour) after smoking marijuana. After...

Created By: hope19 | 2005-03-15 22:55 | 733 Views | 28 Comments

I have Epilepsy,Had my Sleep Deprived EEG yesterday,I was wondering if anyone else was haveing this kinda thing happen. When I get ready to go to bed or take a nap no matter were it is in a car or...

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