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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: slaw327 | 2005-05-29 09:45 | 243 Views | 3 Comments

I was diagnosed with JAE since age 11. I began with petit mal seizures. At age 18, everything appeared to be going smoothly and the doctor at Children's Hospital recommended we ween me off my...

Created By: irishgirl | 2005-05-27 18:49 | 187 Views | 0 Comments

I am a 22 year old Irish girl with tonic clonic and absence seizures since I was 16, and I had the strangest experience the other day. I am supposed to take tegretol every day but in my wishful...

Created By: darwin513 | 2005-05-27 01:03 | 669 Views | 5 Comments

Hi,I have had 8 grand mal seizures since 1990 and even though they haven't been often, it is still difficult not being able to drive for 6 months at a time. Thankfully, I have wonderful coworkers...

Created By: sestrilla | 2005-05-26 20:04 | 457 Views | 27 Comments

I know there are a few of us who are on disability because of epilepsy. I, myself, am on disability, can't drive and have to depend on family to take me places (which they get aggrevated when I...

Created By: pennyhickey | 2005-05-25 10:35 | 282 Views | 12 Comments

Does anyone know anything about disability benifits?  A friend of ours recommended that my son apply for disability benifits since he is unable to work again.  If anyone has any information as to...

Created By: sestrilla | 2005-05-22 12:59 | 223 Views | 7 Comments

I've had seizures since I was 9 years old...I'm now 34. A few years ago I had the seizure monitoring done. I was ready to do anything to stop the seizures. After the monitoring my neuro (a...

Created By: gretchen | 2005-05-19 23:08 | 243 Views | 10 Comments

I have an inherited form of generalized epilepsy. Actually what I was specifically told about me, and all in my family with E is that our epilepsy is inherited based upon how the "whole brain...

Created By: gretchen | 2005-05-19 21:40 | 291 Views | 10 Comments

I was reading the excellent information printed by the sponsors of this site and came across this paragraph under medicines and I don't get it. I had a sz a few hours ago, maybe I'm still not "...

Created By: lemon5us | 2005-05-15 10:03 | 185 Views | 2 Comments

Hello to all,I just wanted to know if anyone lives in beautiful B.C. Canada and if they have applied for and recieve disability through the government. I know it is pretty tough to get. I just...

Created By: elsea | 2005-05-14 16:55 | 422 Views | 5 Comments

Hi! I have a neurological condition but not a dx of epilepsy. However, I have had a strange thing going on lately. I'll be talking to someone and all of a sudden I feel like I am the observer...

Created By: blythe | 2005-05-13 14:32 | 235 Views | 9 Comments

i'm 29, diagnosed with partial complex seizures neuro believes might be caused by a lesion due to a embryonic scar from lack of oxygen or some blah like that. i'm a single mother and didn't have...

Created By: avidrunner22 | 2005-05-12 19:31 | 675 Views | 2 Comments

i've had plenty of twitching and jerking in the past week or so, and they seem to be followed by lots and lots of tingling..i just have even more stuff for my journey to a diagnosis. this is my...

Created By: gretchen | 2005-05-10 16:53 | 1160 Views | 28 Comments

I'm wondering if anyone else here is on CPAP or BiCap. I've been undergoing sleep studies, recently had an AEEG (ambulatory EEG) and am going to have two more medicated with Ativan, but my oxygen...

Created By: littlestlamb | 2005-05-10 13:06 | 5570 Views | 31 Comments

My partner has what seems to me to be a seizure immediately after we have intercourse. He is 28 and says that it has been happening for about four years now. He is fully concious when it happens...

Created By: sestrilla | 2005-05-10 12:58 | 390 Views | 14 Comments

To the people who have seizures in their sleep......how do you know? I'm worried I might be having them. For awhile now I've noticed strange things after waking up. Lip bites, inside of my mouth...

Created By: lastkiss | 2005-05-10 10:26 | 529 Views | 31 Comments

have tried several times to post with little or no luck in responses and am begining to wonder if this site is just for a few people in "clicks: or do you ever talk to newbies? I am 44...

Created By: pspaces | 2005-05-09 07:28 | 276 Views | 2 Comments

Hello my name is Louis J. De Angelis Jr.  I developed Eilepsy at the age of 52.  I was so sick for about 6 months because no one new what was going on.  No one ever would have thought that I would...

Created By: spiz | 2005-05-06 20:25 | 1038 Views | 196 Comments

Hello. I've been jerking and seizing most of the day and I just need to talk. I tried to write in my journal but it felt like such emptiness writing in something that doesn't have ears. My...

Created By: gretchen | 2005-05-06 11:56 | 715 Views | 11 Comments

I'm sorry. I posted a problem I've been having but found out from my neuro the answer so I'm removing my post.Basically I wake up often with sobbing, combativeness, wild emotions. Found out...

Created By: cedar | 2005-05-06 05:44 | 359 Views | 7 Comments

You may notice I posted this under two folders because I feel strongly we need to let report when things are not working for some. SO forgive me for repeating this post. I have just returned from...

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