A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: bevs | 2006-03-25 05:44 | 282 Views | 10 Comments

hi everyone i have not been on the sight for awhile as i have been to poorly. anyhow does anyone have strange dreams since i have been on so much med, i seem to dream so much and so vividly and...

Created By: Joyce | 2006-03-24 21:55 | 162 Views | 1 Comment

Hi Joyce here,
I was wondering if other states had alot of support groups or if they are hard to find? I am in Oregon and I have not found a support group for seizures such as this one....

Created By: dbrook | 2006-03-24 20:38 | 194 Views | 5 Comments

Nearly a week ago, I had the Vagus Nerve Stimulation surgery. I'm wondering if anyone else has had it and if it has stopped your seizures. The doctor informed me that he will not turn it on...

Created By: brennanshalee | 2006-03-24 18:10 | 176 Views | 1 Comment

Hi I started with seizers back in 1999 after a car accident due to a elderly man ran a stop sign. I hit my head on the windsheild post and that is about were it started. The doctors couldn't...

Created By: honeybear | 2006-03-24 14:21 | 291 Views | 16 Comments

Hi all
I hope that you are all ok

I have a question that I hope you don't mind me asking.

When I have a nocturnal seizure I find that it take me 3-4 days to recover. I am...

Created By: edy_telephone | 2006-03-23 20:41 | 162 Views | 1 Comment

I've just read Howard Zwirn story and it really scares me. I suffer of complex partial seizure and I overwent the temporal lobectomy. Unfortunaly the operation didn't work because I started to...

Created By: mrtigre | 2006-03-23 15:28 | 462 Views | 2 Comments

I really don't know where to place this letter among all the foruns specified. I am 57 years old and have had epilepsy all my life. I have been told by a neurologist that after taking...

Created By: Joyce | 2006-03-22 07:50 | 998 Views | 9 Comments

Goodmorning, Joyce Here:
I have noticed the last two seizures I have had there was some moodyness before and after. Is this a normal thing and does any one else get the same way?

Created By: EHammarstrom | 2006-03-21 15:36 | 172 Views | 1 Comment

Hello All -

Here is a question for everyone. I have Epilepsy which I have had all of my life.

I alway have been told that you dont put aaything into someones mouth while they...

Created By: kymberlie83 | 2006-03-21 15:12 | 159 Views | 1 Comment

i have had epilepsy since i was about 16yrs old. it has changed my life big time. i cant drive, because i black out at the wheel and almost get into accidents. i cant work because my eployers are...

Created By: Joyce | 2006-03-21 14:51 | 194 Views | 0 Comments

Hi, Joyce here,
Since I was diagnosed with P.N.E.S., my two biggest triggers to my seizures are headaches and stress. The longer I have a headache the more seizures I seem too have. When...

Created By: pilk | 2006-03-21 12:29 | 155 Views | 0 Comments

Ive been informed that I cant say what I want to here. It has to be all good.
good luck to Joyce,Barbie spiz,Christine,and the guy from England. I didnt even cuss.

Created By: Joyce | 2006-03-21 07:35 | 171 Views | 1 Comment

Hi everyone, Joyce here...
I was wanting to know if it is normal too feel as though the harder you try the less you get and others see? Here lately I feel like I take 1 step forward and 9...

Created By: epihelp | 2006-03-20 11:57 | 427 Views | 2 Comments

Hi everyone,

Welcome aboard to new friends! Thanks to everyone for offering their individual views and support. This is a site for everyone and respecting each other is so important. Also...

Created By: Joyce | 2006-03-20 09:28 | 202 Views | 5 Comments

Hi Joyce here,
I was asked to be a bit more specific in regards to my type of seizures if I had a point in the issue. Well, yes I do have a point, I never said I had epilepsy I did however...

Created By: borgmanjayce | 2006-03-20 07:25 | 175 Views | 2 Comments

I'm a male from England, just turned 34 and I've been epileptic for roughly 10 or so years.

It all started when I was doing some DTP work on a Mac at college and I hadn't eaten for hours on...

Created By: pilk | 2006-03-20 01:07 | 206 Views | 9 Comments

I have had many wonderous experiances with epilepsy,the drugs used to combat it,survival of seizures in the worst circumstances imaginable and living life on the fringes of society.


Created By: Anonymous | 2006-03-19 17:12 | 162 Views | 1 Comment

How much mg are you on
how many times do you take it again

Created By: Joyce | 2006-03-19 10:19 | 199 Views | 3 Comments

Hello, Joyce here,

I just wanted to know if anyone else went through a period of time when you had a hard time believing in yourself because of what you were going through? I am having a...

Created By: Jana33 | 2006-03-18 15:58 | 214 Views | 8 Comments

I have been having these strange feeling of my ears ringing a bad headache and I have been smelling thing that is there. My stomache will hurt and then I smell something that is burnt and I'm real...