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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: llparker | 2005-08-07 20:11 | 281 Views | 13 Comments

I am a 29 year old single female in Atlanta. I have had seizures for as long as I can remember, for a long time, I was misdiagnosed. It's not as though I am really ashamed, persay, but people tend...

Created By: Butterflygrl | 2005-08-06 18:04 | 352 Views | 12 Comments

The last two seizures I had....occurred while I was blowdrying my hair. Prior to those seizures, I would experience "auras" only...(a chokey feeling in my throat...tingly lips)I'm trying to figure...

Created By: kayla | 2005-08-05 22:07 | 231 Views | 5 Comments

I was returning from work the other night and stopped to buy some juice. I had a small seizure in the shop. I am pretty good about clearing my head after, but I live in NYC and I remember not...

Created By: mexican_fire | 2005-08-02 17:29 | 188 Views | 3 Comments

Hi again,.I am sure you are all very tired of hearing my crap on here.But, I had a T/C Sunday early afternoon, and thankfully was already on the ground watching TV in my room, with my kids, and...

Created By: joshfoster | 2005-08-02 00:07 | 207 Views | 4 Comments

Hello,My symptoms struck me around 2001, uprooted me from my work/career at the time, and have been constant ever since. It's kind of hard to believe something this horrifying could hit me every...

Created By: worried001 | 2005-08-01 09:43 | 179 Views | 2 Comments

Hello everyone,Thank you so much for all your prayers, condolances, and advice during those days when I did not hear from my friend. As it turns out, I did hear from him yesterday. He was...

Created By: seekinginfo | 2005-07-31 23:02 | 282 Views | 19 Comments

I was told by someone who, well, lets just say is a thorn in my butt and always looks to get me upset...but he told me that with eveyr seizrue my hubby has that it "kills briancells"....is this...

Created By: stacy | 2005-07-31 21:44 | 856 Views | 12 Comments

hi im a 17 year old girl and i was wondering if anyone else wiv epilepsy has a bed wetting problem. im really embarrassed about it and dont like talkin to my doctor about it. if anyone on here has...

Created By: Butterflygrl | 2005-07-30 00:07 | 20152 Views | 57 Comments

I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non...

Created By: vanillabean | 2005-07-29 20:44 | 614 Views | 6 Comments

Please please come talk to me. I really always feel like in a dream, not there, drugged, since my delivery since 2 years. Did a sleep-deprived EEG. I feel way worse when I don't sleep.I...

Created By: mexican_fire | 2005-07-29 17:38 | 179 Views | 2 Comments

Hi all, I am strangely wired from top to bottom, when I should have slept through the night and still be sleeping right now, but am not.I ahd a MAJOR T/C last night that lasted around 3.5-4...

Created By: mexican_fire | 2005-07-28 17:15 | 173 Views | 3 Comments

I was wondering a weird thing and was wondering if anyone else experiences this.Obviously, I have more TCs than anything else, but when the jerks are doing their thing, and muscles jerk or twitch...

Created By: mexican_fire | 2005-07-28 15:49 | 228 Views | 8 Comments

My ass of an Epi that I was talking about when it happened with all of his treaths, taunting, rudeness, telling me I had NES, that I was faking this, etc.Well, I went on vacation for 3 weeks after...

Created By: sansy | 2005-07-25 15:01 | 183 Views | 3 Comments

I was physically abused growing up, and a lot of it involved my head unfortunately. I don't need to go into a lot of the details, but I tried to remember things recently and realized that there...

Created By: steffles | 2005-07-25 08:05 | 1475 Views | 28 Comments

I applied for disability last month (June 15 to be exact). Since then, everything seems to be going well...my docs have gotten their paperwork in, I've turned in my questionnaire, my DH has...

Created By: mexican_fire | 2005-07-24 23:28 | 166 Views | 0 Comments

Hey guys,Here is another one of my many experiences, as of late.Me and part of my family went across the country for a 3.5  week vacation to try to get away from this heat here in Phoenix, (which...

Created By: bigjeffita | 2005-07-24 16:56 | 603 Views | 7 Comments

I have those too but the only way I know is if my family tells me I had them. So far I am on Keppra 5mg three tablets two times a day, Neurotin 300mg capsules daily, diilantin100mg 5 times daily....

Created By: butterfly | 2005-07-23 13:03 | 188 Views | 5 Comments

its been awhile since i've posted on here but I would like some feedback on my "episodes". I have been having 2-4 a day and have dropped twice. I take my meds everyday but it seems like therenot...

Created By: Butterflygrl | 2005-07-23 10:47 | 254 Views | 7 Comments

Well, I got the results back from my EEG and he told me that it came back normal.The conversation after that was one that left me very distraught.My neurologist could not help me. All he told me...

Created By: Butterflygrl | 2005-07-18 22:03 | 447 Views | 35 Comments

Hi there,I am trying to figure out if I am experiencing strange aura's or if I'm actually LOSING MY MIND as a result of being so stressed and full of anxiety from experiencing my first seizure....

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