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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: edy_telephone | 2005-11-24 19:43 | 162 Views | 2 Comments

I've tried several times to submit new topics but I I guess that I made mistakes or they were not accepted by the staff. So, could you please help me? I've submitted a topic about this problem...

Created By: edy_telephone | 2005-11-22 20:58 | 166 Views | 1 Comment

I have submitted a topic last week, talking about problems with my memory, especially when I am talking with someone on the phone. Suddenly, I can't talk and I don't understand what the person on...

Created By: gretchen1 | 2005-11-20 19:48 | 166 Views | 2 Comments

I've gotten very curious about how people manifest their CPs. It seems to me from talking to some others, my own experiences and my children's that there is a wide variety of how CPs manifest...

Created By: adriana | 2005-11-19 23:16 | 187 Views | 6 Comments

I´ve being told three times, by different doctors and with eeg studies the three times, that I have a kind of epilepsy that is located on the left temporal lobe of the brain, but I don´t get...

Created By: edy_telephone | 2005-11-18 20:50 | 190 Views | 7 Comments

I still don't understand what is going on with me. I have a complex partial seizures since I was 19 yrs old (I'm 47 yrs old). I overwent the surgery on May 2000 but unfortunately, it didn't work....

Created By: cameo | 2005-11-13 23:17 | 160 Views | 1 Comment

Hi everyone. I am back from the VEEG. To be honest., I am not sure how to feel about all of this. I almost felt like I was rushed in there and rushed out.
I did not have any of my night time...

Created By: Jenet | 2005-11-11 22:12 | 173 Views | 2 Comments

Does anyone who has had a temporal lobectomy suffer from short term memory loss? I am only in my fifties and had one in my twenties because I was having 40 to 100 grand mals daily and now I have a...

Created By: rabcam | 2005-11-10 16:40 | 170 Views | 1 Comment

I had epilepsy since I was 6 months old. I'm 44 today. I started out with petit mal seizures, than developed complex-partial seizures, and the last 8 years I started drop seizures. I have a vns...

Created By: Anonymous | 2005-11-10 13:49 | 168 Views | 1 Comment

theres alot of things here that may change your thinking as well as life itself with epilepsy,Disability Matters with Joyce Bender is one of the first international talk radio shows with real-time...

Created By: Radini | 2005-11-08 17:04 | 178 Views | 0 Comments

I had posted this a few weeks ago, but didn't get any response, so I'm giving it another shot - in the 18 mos. that I was having seizures, I was often saying/writing disturbing or cryptic things,...

Created By: purrr01 | 2005-11-06 07:09 | 245 Views | 4 Comments

Can anyone help me i've had epilepsy all my life but i only really understand it as having a seizure has anyone ever died of epilepsy i know when i'm going 2 have a seizure cauz my eyes begin 2...

Created By: jennyc | 2005-11-06 06:42 | 160 Views | 0 Comments

This topic is aimed more at people from the UK (only because it has to do with a driving related question).

I had my licence taken from me in August after having a seizure. Recently I...

Created By: Anonymous | 2005-11-04 14:05 | 163 Views | 2 Comments

Hi I am new here, I know that pseudoseizures have been discussed before but can i explain my symptoms and then see if anyone reckons these are pseudoseizures or actual epileptic seizures?

...

Created By: bellwood | 2005-11-01 21:35 | 158 Views | 0 Comments

Ever since my Neurologist told me to take equal amounts of my medication in the a.m. and in the p.m., my seizures have decreased from 10/month to 3/month. I hope this change is permanent and that...

Created By: Radini | 2005-10-30 15:35 | 148 Views | 0 Comments

In the 18 mos. that I was having seizures, I was often saying/writing disturbing or cryptic things, like "please don't kill me", "what is going on?", "how could you do this?". I would never...

Created By: Kaya579 | 2005-10-28 20:07 | 271 Views | 13 Comments

I have to go to Albany Medical Center, Neurological Clinic on November 15th. I will be staying for a week, off all meds, monitored 24/7, and hopefully having seizures. (I've never said that before...

Created By: xioxio6 | 2005-10-27 23:12 | 152 Views | 0 Comments

Hi everyone,
A few weeks ago I had a seizure, after reading the descriptions of different seizures I am 99% sure it was of the tonic clonic kind. Everything has returned back to normal and I...

Created By: lilpeanut07 | 2005-10-27 18:38 | 202 Views | 3 Comments

Hi Everyone

Recently I have been getting facial twitches while i am at school. It is so embarrassing! I will be sitting there listening to what the professor has to say and the next thing...

Created By: Maggie | 2005-10-25 22:20 | 242 Views | 2 Comments

Everytime I have a simple partial seizure either before or after my eyes feel like they are completely dry.They will stay this way for hours afterwards.They almost feel like someone has poked me...

Created By: lesazeebeez | 2005-10-25 00:33 | 203 Views | 4 Comments

Have been for years experiencing while trying to fall asleep: Horrifying sensations of Deja-vu, All sounds being VERY LOUD and in slow-motion and trailing. Unexplainable Sensations in my mouth (...

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