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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: victoriaacoyle@gmail.com | 2015-01-12 11:45 | 95 Views | 1 Comment

Hi,

I am currently engaged to a wonderful man who has complex partial seizures. He mostly has them when he is asleep, however every now and then he has them during the day. My question is...

Created By: honeyprincess21@gmail.com | 2015-01-12 09:01 | 79 Views | 1 Comment

I am currently working with my neuro to figure out what is going on with me. I went and had an EEG and had a seizure in my sleep so they started me on Lamictal to "see how that goes". I have now...

Created By: LawrenceRaoux | 2015-01-11 04:28 | 86 Views | 3 Comments

Hello everyone,

Let me just start by saying that I made this post because something needs to change in my life in order to make me feel safe/normal. I must do something!

...

Created By: kcorley55@gmail.com | 2015-01-11 01:08 | 62 Views | 1 Comment

 

Hey everyone,

So I found out relatively late I have epilepsy (absence seizures) at 16.  I am 23 now and have progressed to grand mal seizures, and I feel like I am getting more and...

Created By: johnlee625211@yahoo.com | 2015-01-09 23:48 | 66 Views | 1 Comment

I consumed 600 miligram trilaptal within a day one in the morning and one in the night, so the doctor recommended an additional 50 miligram of topamax (both morning and night along with trilaptal...

Created By: JD123 | 2015-01-09 14:10 | 131 Views | 3 Comments

Hi.  I recently had a 32 year old friend move in with me after she lost her apartment after losing her job as a nurse.  She has a history of seizure disorder (not sure of the specific kind). ...

Created By: Florida Kim | 2015-01-09 11:11 | 66 Views | 0 Comments

Hi, i wanted to see if this is happening to many other people with E.  My son, 23, has generalized intractable epilepsy.  He is on 3 meds and not controlled.  we've tried most drugs and he also...

Created By: Erica77 | 2015-01-09 00:47 | 51 Views | 0 Comments

Hi everyone, my name is Erica, I’m 26-years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here:...

Created By: johnlee625@gmail.com | 2015-01-09 00:01 | 69 Views | 2 Comments

 

I went to a doctor, had brain check, and the doctor said, there is no seizure radiation in the brain.

But seizures come out when there is extreme stress, lots of alcohol drinking,...

Created By: Abionik | 2015-01-08 20:20 | 95 Views | 1 Comment

So about 2 months ago, I had what I think was a seizure. I ate some shrooms that my friend got, but it was only about 2g's and it was all dust because it was the bottom of the sack. Anyways, I've...

Created By: Missyj128 | 2015-01-08 19:52 | 53 Views | 1 Comment

I was diagnosed with JME at 16.  I'm 32 now.  On average I have 1 grand mal seizure a year, but quite a few small ones.  I did go for a couple years where I had a couple grand mals a week.  I...

Created By: inchgo1@gmail.com | 2015-01-08 18:46 | 51 Views | 1 Comment

I'm new to this page. I 36 years old. To most people I am a monster. My seizures come and go when I eat everytime or when I'm stress or and angery. Most of my family see the changes in me. From...

Created By: natemp21@gmail.com | 2015-01-08 18:38 | 143 Views | 3 Comments

I was told I had "Partial Complex Deja Vu Seizures" but not officially diagnosed. I am currently 30 years old. 10 years ago I started experiencing strange feelings, where my whole body felt almost...

Created By: hawksaustin@comcast.net | 2015-01-08 12:58 | 78 Views | 1 Comment

HI,

I've tried everything and none of the medicine I've tried works completely so I decided I'm going to try medical marijauna. But I'm having some trouble finding a medical marijauna...

Created By: kayjay | 2015-01-07 18:29 | 99 Views | 1 Comment

Hi everyone im new here so hi :)
i thought id share my story. Iv been having what the doctors and i thought were panic attacks from the age of about 11 and im 30 now. After all this time iv...

Created By: abdula88 | 2015-01-07 08:17 | 67 Views | 0 Comments

They diagnosed me with this finally about 1 year ago and got me on a medication called topamax it knocked the migraine down to about 2 times a week as long as i controll the migrains i have no...

Created By: sherry63 | 2015-01-06 14:24 | 40 Views | 0 Comments

I have NES I would like to speak to Tiffany we have the same problem need to talk to someone with NES so tired of it Please respond

Created By: Kenzieann1657 | 2015-01-06 02:00 | 76 Views | 0 Comments

I'm 18 years old and I live with my parents but last night I was lying in bed and I was wide awake just playing on Facebook and all of the sudden my head started pounding and I just blacked out...

Created By: Jfigueroa143 | 2015-01-06 01:37 | 67 Views | 0 Comments

 

Has anyone had weird symptoms of binge eating with there epilepsy?

I get into episodes of feeling like I need to eat everything I can easily get my hands on, especially chocolate...

Created By: sph683 | 2015-01-05 23:47 | 135 Views | 2 Comments

My wife was diagnosed with epilepsy about 3 years ago. She was put on keppra which seemed to control it. I only saw her have 1 seizure while we were dating. After we moved in together, the...

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