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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Cthebird | 2013-11-03 09:46 | 590 Views | 7 Comments

I only see my neurologist once every 6 months or so.  I'm happy about that.  The reason why is because though she diagnosed me as having Simple Partial Seizures every time I mention my symptoms...

Created By: rosanna1980 | 2013-11-01 18:17 | 71 Views | 0 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page strictly dedicated to epilepsy awareness. It is called "Seize My Epilepsy". I don't have much...

Created By: UH_Warrior13 | 2013-11-01 14:22 | 107 Views | 0 Comments

HAs anyone here been subjected to being stuffed in to an EMU?

I had the pleasure 2 times. The first time I was in for 10 days and had 2 szs that they claimed were questionable whe nthey...

Created By: UH_Warrior13 | 2013-11-01 14:07 | 78 Views | 0 Comments

hi every one,

I had a very weird episode or possible sz.  About a week ago I went to the bathroom and when done I could not fin my room (which is right across the hall from the bathroom...

Created By: chaffrogirl | 2013-10-31 06:30 | 211 Views | 2 Comments

I was diagnosed with TLE this year after suffering from epilepsy for 7 years (since I was 11/12) and being told it was blood
pressure, hormones or blood sugar issues.

anyway I've been...

Created By: GKhs4632340 | 2013-10-30 01:13 | 670 Views | 12 Comments

How it all started...

Created By: JennayB | 2013-10-28 22:12 | 484 Views | 8 Comments

I am 29 years old and had my first grand mal seizure in May of this year, before my seizure I had "spells" where I would feel odd get very warm and nauseated, and they would go away. Sometime I...

Created By: 15042runner2Dreams | 2013-10-28 19:04 | 458 Views | 7 Comments

Hello,

Let me start of by saying I am only a junior in high school but wanted advice from people who have been here.

Since I was nine, I have wanted to become a physical...

Created By: rosanna1980 | 2013-10-28 17:06 | 85 Views | 0 Comments

I need  "bulldog" attorney who know the disabilitiy laws and is not afraid to take on difficicult cases. I am in Georgia, but, looking to file federal lawsuits. If anyone knows of any attorneys...

Created By: ProfessionalDreamer | 2013-10-28 07:22 | 636 Views | 7 Comments

What excuses do you use when you don't/can't do certain things because of epilepsy? I don't want to tell any and everyone yet (or maybe i should?) ... i don't know. I get so many people judging me...

Created By: Harry T. | 2013-10-26 18:02 | 132 Views | 1 Comment

I have had seizures since my late teens. They only occured once or twice a year and were always tonic/clonic. I am now 65 and for the last 2 years I have been having partials plus nocturnals...

Created By: wjane | 2013-10-26 16:51 | 391 Views | 6 Comments

How do you know when it is time to switch to a new medication? I currently take two seizure medications, but after 3 years on this combination, my simple partial seizures are getting much more...

Created By: sarah333 | 2013-10-25 17:07 | 402 Views | 8 Comments

Hi all,

I am looking for some opinions about the treatment my neurologist has recommended.

I am a 30 year old female and I had a seizure (first and only) on September 11th 2013...

Created By: ProfessionalDreamer | 2013-10-25 08:50 | 285 Views | 5 Comments

Anyone experience muscle soreness even when they did not have a seizure? many times i wake up feeling weak and sore. I just want to know if others feel this way. I've been feeling like crap the...

Created By: Mollz | 2013-10-24 17:20 | 296 Views | 5 Comments

I have been just recently diagnosed with epilepsy. I have no idea how to cope. I don't even know what kind of seizures they are. I have had normal EEGs but the medicine so far has worked. I feel...

Created By: vivaciousgemini22 | 2013-10-24 16:59 | 108 Views | 0 Comments

I was scheduled to take the Wada test yesterday morning at 6:30 am. Oh my gosh. It was the MOST scariest and MOST painful test I have ever been through. When the catheter went up my leg, my...

Created By: tonyroni | 2013-10-24 16:34 | 195 Views | 3 Comments

Hello community!

My SO and I have a monogamous and sexually active relatinoship. We both use the pills and condoms. We're aware that the meds can have a mitigating effect on the pill....

Created By: tcameron | 2013-10-24 15:16 | 622 Views | 12 Comments

My long term memory is going.  I can't remember most of my childhood.  (I'm 54).  I don't remember my any of my 3 sister's weddings, (late 1970's - early '80's).  Is this a sign of early demtia?...

Created By: rebmil | 2013-10-23 22:28 | 293 Views | 3 Comments

Hello. I have a question. I have grand mal seizures only while I am sleeping. Two times now I have noticed that I would smell an unpleasant smell over serveral days. An example would be my...

Created By: ShiManhattanite | 2013-10-23 21:14 | 211 Views | 2 Comments

hello all -

just wanted to get some tips from you out there on how you deal with your seizures. dealing in the sense that after you have an episode, what do you do to get back into your...

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