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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Shocked | 2014-06-21 13:03 | 176 Views | 1 Comment

I am in total shock. Got the phone call I was not expecting yesterday. My nurse called with me EEG results. All she could tell me was "abnormal EEG showinf epileptiform activities". I have no idea...

Created By: revplumbing@gmail.com | 2014-06-21 11:20 | 146 Views | 1 Comment

Well 8yrs ago i had a seizure grand mal took me down outta no were... I went through alot n treated like crap took medication for a cpl months couldnt handle it n stop n everything dissapeard.......

Created By: napnip | 2014-06-21 03:53 | 191 Views | 1 Comment

Many years ago, perhaps 20+ years, I started having these weird "dizzy spells" for lack of a better phrase. Yet that's not really an accurate way to describe them. "Dizzy" is just the best word...

Created By: hale23 | 2014-06-20 12:46 | 144 Views | 1 Comment

i have had epilepsy all of my life.  I am a mom of two young kids four and two and I recently had a seizure on Friday the thirteenth.  My two year old was still trying to play with me...

Created By: jdwallsten@gmail.com | 2014-06-19 22:25 | 154 Views | 1 Comment

The fire alarm went off at work today. I got trapped at the copier until my coworker could get to me and guide me away.

But, what if I was in a strange building? I have a bracelet - is that...

Created By: gotigers19 | 2014-06-19 20:38 | 172 Views | 0 Comments

Hi! I'm new to this. I've had epilepsy for 17 years. I was 18 when I had my first one, and was put on depakote. About 3 years or so ago, I switched to Lamictal because I wanted to get pregnant. I...

Created By: rayofsunshine | 2014-06-19 17:27 | 140 Views | 1 Comment

Hello, I have had Epilepsy for 20 years, with ups and downs after a closed head injury, recently some breakthrough clonic tonic tripple events that sent me to the hospital, off work. I am in the...

Created By: daniegrondin | 2014-06-17 13:39 | 164 Views | 2 Comments

Hello,

I am looking for a little advice. I plan on moving away from home to go to school (not too far, just a three hour drive away from home). I have actually been planning on doing this...

Created By: just_joe | 2014-06-16 12:45 | 141 Views | 1 Comment

Ok guys I wrote a post back on 5-31 about issues I have been having. I show signed in but still have to post using my facebook account. I have facebook which I use for specific things like...

Created By: Hollimcpherson | 2014-06-16 10:52 | 249 Views | 0 Comments

Hello,

I have been suffering from seizures since I was 2. We did not know I had them till I was 18, bit I remember when I was little waking up and hearing voice or not being able to...

Created By: astaack | 2014-06-16 01:41 | 207 Views | 6 Comments

Hello I am a 22 year old girl who has just experienced her first seizure last month, I have been seeing doctors. My MRI came back normal but my EEG had some abnormalities. My doctor said I should...

Created By: vivaciousgemini22 | 2014-06-15 23:45 | 123 Views | 0 Comments

Hi everyone! The web address to my website Staring In The Stars has changed to www.staringinthestars.com. It is a very informative website about the...

Created By: Sbest25 | 2014-06-14 14:41 | 186 Views | 1 Comment

I was diagnosed about 3 years ago with epilepsy.  I have been seizure free up until this past Thursday. Should I call my Dr every time I have a seizure?

Created By: ProfessionalDreamer | 2014-06-13 08:39 | 182 Views | 2 Comments

I felt crazy last night... i couldn't sleep i felt like my heart was gonna pop out my chest and Aura after Aura plus I was home alone so I was really afraid to go to sleep. I thought I never would...

Created By: lauriekrull@roadrunner.com | 2014-06-12 08:56 | 190 Views | 3 Comments

I am the mother of a 15yo with intractable partial and generalized epilepsy.  We recently traveled to Mayo Clinic and, ultimately, got a recommendation to try IVIG.  

Of course, we will do...

Created By: SinceAge4 | 2014-06-12 02:56 | 237 Views | 1 Comment

United States, Female, Age 20. University student in Mathematics and Physics.

Hello,

I have an inquiry regarding information about or the experience of people who have complex...

Created By: newjack | 2014-06-11 10:38 | 179 Views | 1 Comment

My first seizure was when I was 16, I was rushed to the hospital which I was told it was a seizure. Abnormal EEG. I had a second Seizure when I was 18 and no EEG was taken immediatly, but had a 72...

Created By: emccance93@gmail.com | 2014-06-08 19:56 | 228 Views | 1 Comment

Hey everyone,

This is my first post, I just joined. So about 3 months ago I had a seizure after a night of drinking. The past few weeks before it were pretty stressful, I did 40 hours of...

Created By: sandman9669@sbcglobal.net | 2014-06-08 10:40 | 167 Views | 1 Comment

i don't like how they claim the generic dilantin is the same as the brand name, the fda is nothing but a complete liar, because being on the others before they came out with the much more cheaper...

Created By: Blueeyedkay | 2014-06-08 05:07 | 118 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

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