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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: eyeski | 2014-03-26 22:56 | 178 Views | 0 Comments

I am an Optometrist in St. Louis.  Recently one of my long time patients mentioned she experiences Photo Sensitive Seizures and wondered if a tinted lens would help.  After some research...

Created By: pshafer | 2014-03-04 13:39 | 609 Views | 76 Comments

Welcome to the new site! Send me your feedback here!

epihelp

Created By: randijeanw | 2013-12-01 17:26 | 3442030 Views | 12 Comments

I have catamenial epilepsy, so I have seizures on average about once a month. They are grand mal seizures, sometimes just in bed resulting in extra exhaustion and a bit tongue, but sometimes a...

Created By: nicki | 2013-11-28 18:33 | 68487 Views | 3 Comments

Happy Thanksgiving. Giving thanks for all of you.
Hope you stuffed yourself with turkey and all the trimmings and had a great family day.

Created By: hopewithseizures | 2013-11-26 11:30 | 287 Views | 1 Comment

During my 6 plus years of journaling about my challenge with seizures brought me to this article on dysglcemia.  Along with medication, diet and proper excercise I've been blessed with being...

Created By: hopewithseizures | 2013-11-26 11:30 | 174 Views | 0 Comments

During my 6 plus years of journaling about my challenge with seizures brought me to this article on dysglcemia.  Along with medication, diet and proper excercise I've been blessed with being...

Created By: Masterjen | 2013-11-23 17:14 | 369 Views | 3 Comments

I had a night seizure around 3 AM, and 5 hours later got up to start my
day but realized I had to go back to bed (due to typical post seizure
symptoms for me of extreme fatigue,...

Created By: puglover | 2013-11-23 08:37 | 1023 Views | 1 Comment

My son is hooked up for the 72 hour ambulatory eeg. He has sleep deprived himself and even taken his meds later than usual; both of which would normally produce seizures. It hasn't been 72 hours...

Created By: CD123 | 2013-11-22 12:37 | 162 Views | 0 Comments

I was going through my very detailed, had to put everything in it journal, and I'm glad I did because I don't remember much of the years between 2007-2011 when I finally got put on seizure...

Created By: Straight Edge Champ | 2013-11-21 17:37 | 386 Views | 4 Comments

I'm on Lamictal but due to my insurance changing,I won't be able to afford it anymore.I was told that Lamotrigine which is the generic of it is cheaper.I have been seizure free for over 2 years...

Created By: joel2 | 2013-11-21 01:21 | 446 Views | 3 Comments

I read so much negative with peoples with epilepsy , I like to share how epilepsy has changed my life for the better , my first seizure , I broke the stove in our leaving quater , which got me...

Created By: joel2 | 2013-11-21 01:21 | 190 Views | 0 Comments

I read so much negative with peoples with epilepsy , I like to share how epilepsy has changed my life for the better , my first seizure , I broke the stove in our leaving quater , which got me...

Created By: breezie68 | 2013-11-21 00:11 | 596 Views | 6 Comments

Hi! I am questioning my diagnosis of nonepileptic seizures. I have had just a few seizures over the past 10 years or so. I have had all the testing, been inpatient while they tried to induce a...

Created By: sesat13 | 2013-11-20 17:14 | 2643 Views | 20 Comments

epilepsy has ruined my life.
and it pisses me off how people think nothing of the diagnosis. it doesn't get the attention it needs for sure.
when i was a kid, i didn't plan to NOT get...

Created By: Fairy20 | 2013-11-17 12:42 | 643 Views | 6 Comments

A question...

I had the idea that because I have epilepsy I'm more tired than people without.

Epilepsy isn't the only thing I have. I have autism too.

So somethimes,...

Created By: CD123 | 2013-11-15 18:54 | 330 Views | 1 Comment

I know this is a really odd title, lol. But while I was really sick with TLE I had a lot of mental health issues. Stemming from what they thought was PTSD to eating disorders, to depression,...

Created By: Andrea_McBride | 2013-11-14 19:52 | 303 Views | 2 Comments

Ok, so, I've just been diagnosed with epilepsy and have discovered SUDEP. Is it just me or is anyone else terrified about this, especially seeing as so little is known about it!

Created By: Andrea_McBride | 2013-11-14 19:32 | 145 Views | 0 Comments

Ok so newly diagnosed with epilepsy and have just discovered SUDEP. Is it just me or is anyone else terrified about it, especially since very little is know about it!

Created By: puglover | 2013-11-14 18:02 | 227 Views | 2 Comments

My son's seizures seem to have a cycling pattern and I was wondering if this is common with simple and complex seizures. Seems like about every 11-13 days he has anxiety and then he'll have his sp...

Created By: ProfessionalDreamer | 2013-11-14 13:31 | 165 Views | 0 Comments

I've been having "small" seizures everyday since Monday night. My mood has been, well let's just say not the nicest either. Oh and headache after headache -__-

I guess the meds do help...

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