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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: SineadWalsh | 2014-04-12 12:41 | 172 Views | 2 Comments

I've had epilepsy for about 6 years and had no fears, etc. Lately Ive been afraid to stay at home alone at night for fear of seizures, and I also vomit while seizuring, and im afraid I'll choke....

Created By: Elle White | 2014-04-11 21:22 | 231 Views | 1 Comment

Twenty years old, and I've spent my entire life attempting to convince my doctors, and my family for that matter, that something was wrong with me. When there's something in your body that's not...

Created By: kbwacyk@gmail.com | 2014-04-10 19:25 | 407 Views | 10 Comments

I am very frustrated.  I have been having absence seizures for almost 2 years.  Lost driving privilages for 6 months.  I finally was able to drive and was working steady.  Then out of the blue I...

Created By: Kandreas81 | 2014-04-10 13:19 | 234 Views | 2 Comments

Hello all,

I've had temporal lobe Epilepsy for about 20 years. I take Lamictal and Vimpat. I recently have been having problems with dizziness, lack of blood circulation, and heart racing...

Created By: xMelmo | 2014-04-09 21:28 | 155 Views | 4 Comments

So I have been seizure free for 8 months!! I am trying to recieve my suspended license back and I cannot find the form anywhere online that my neurologist has to sign and send to the DMV!! I live...

Created By: dwinsor | 2014-04-09 19:52 | 295 Views | 13 Comments

I am a 44 year old woman and a year ago I decided to go off my medications (Keppra and Lamictal)and at the beginning of this year I decided to shut down my VNS machine as well. I would love to...

Created By: RachaelCoe | 2014-04-09 19:01 | 305 Views | 2 Comments

I've had Epilepsy for 15 years. I'm about to be 29 and throughout this ordeal I've received nothing but love and support from my family and friends. Now I have someone in my life (my sister in law...

Created By: Misjoey101 | 2014-04-09 16:12 | 202 Views | 3 Comments

I have been told to see my neurologist every year. Even though I still have seizures, I don't see the point. My neurologist just stares at a sheet and will tell me to take one more pill. It doesn'...

Created By: photoguy | 2014-04-09 08:25 | 142 Views | 2 Comments

<p>I'm going thru the path towards surgery now. Thought I would start a "blog" to help put some information out there for others that have questions......

Created By: naturegirl | 2014-04-08 10:48 | 198 Views | 1 Comment

Motor Vehicles is set to suspend my licence on April 26th.  I have had grand mal seizures for the past 34 years, since I was 16.  I have 2 to 3 a year and they happen at night.  I have also been...

Created By: eleckie510@gmail.com | 2014-04-07 02:01 | 200 Views | 3 Comments

Two years ago I was diagnosed with an AVM and rushed into emergency surgery to remove the mass. It was a seizure that alerted the doctors to my AVM. After 2 12hour surgeries the mass was removed...

Created By: str8edgeace | 2014-04-06 14:12 | 361 Views | 3 Comments

Hi Everyone,

First off I have to say thank you for everyone sharing their experiences. I easily get anxiety when I have some type of seizure and think it's all in my head and when I read on...

Created By: kralligood | 2014-04-06 09:05 | 174 Views | 2 Comments

Hello, all.

I hope everyone is doing well (seizure-free!). In the last 2-3 months, I get shaky vision where it looks like what I'm looking at is moving up and down (not side to side). It's...

Created By: shely514 | 2014-04-05 20:48 | 289 Views | 4 Comments

Tuesday I was seen by my regular MD because I had awoken two nights in one week with my body tensing, unable to speak(almost like choking on words), no control over my body, etc..After this ended...

Created By: shely514 | 2014-04-05 20:39 | 112 Views | 0 Comments

Tuesday I was seen by my regular MD because I had awoken two nights in one week with my body tensing, unable to speak(almost like choking on words), no control over my body, etc..After this ended...

Created By: Susaninfl | 2014-04-04 08:34 | 274 Views | 5 Comments

Hi all,

Well, where to start, about 2 years ago, I was at work, in the morning and the next thing I know I was in a bed in the hospital and they told me I had a seizure (grand mal). I didn'...

Created By: baybee_amy | 2014-04-04 05:22 | 218 Views | 5 Comments

so i have had the grand mal seizures for the last 9 years and i still find it hard to adapt to life

i cant drives as i have never gone a full year without a seizure , i had to giv up my...

Created By: rosanna1980 | 2014-04-02 10:44 | 181 Views | 3 Comments

As many of experience, I am neck deep in mortgage debt and well as utilities. (The power company will be turning it off next week.). I've been in process of disability for about 2 years. Does...

Created By: rosanna1980 | 2014-04-02 09:33 | 159 Views | 1 Comment

I have been in process for disability for about 2 years. Among epilepsy, I suffer from a few other ailments that I am told have no cure. Anybody know if a good attorney in GA who is also very...

Created By: Audry0412 | 2014-04-02 00:19 | 355 Views | 4 Comments

I have been having seizures for about 4 years now. It all started when my doctor put me on abilify for depression after my mom passed. Ever since then I have had seizures even after i stopped the...

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