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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Florida Kim | 2014-09-25 00:41 | 104 Views | 0 Comments

Hi. My 23 yr old /Son, Ryan,  has had seizures since 11. It is genetic from my mom, myself and both my sons. We were all diagnosed with jme at puberty. The difference with Ryan is he is not...

Created By: user85 | 2014-09-24 21:57 | 105 Views | 0 Comments

Hello,

My nephew who is 10 years old has been diagnosed with epilepsy this year. It started off this year as:

1. Fainted oftenly in school;

2. Severe jerks with saliva...

Created By: Flippergirl66 | 2014-09-24 10:37 | 117 Views | 0 Comments

I'm curious to know if other's might experience false recognition among the public days after a Tonic Clonic.  I myself seem to believe, while logically knowing otherwise, that each person I...

Created By: nofofakekine@yahoo.com | 2014-09-24 05:58 | 147 Views | 2 Comments

Son has been seizing for almost 7 mins. I think. Can't determine between if its a post ictal or still ictal. My son has normal EEG, but dr saw a seizure and put him on Keppra. Do eyes typically...

Created By: Jacob0101 | 2014-09-22 22:18 | 120 Views | 0 Comments

Has anybody had much experience with this seizure detecting watch? When I have grand mals the watch does seem to pick up the seizure and I've been able to hit the panic button when I've felt a...

Created By: jay_layton@aol.com | 2014-09-21 17:57 | 217 Views | 2 Comments

 

Hi, my name is Jay.  I have complex partial seizures and have had them for 10 years.  I have tried pretty much every medicine on the market.  I am currently on Lamicatal and Vimpat.  The...

Created By: mkd83189 | 2014-09-21 12:47 | 146 Views | 1 Comment

ive been having these weird deja vu feelings and from what ive read online i think they are simple partial seizures. im on lamictal for my nocturnal seizures . but my question is does anyone else...

Created By: mkd83189 | 2014-09-21 12:40 | 77 Views | 0 Comments
Created By: Sparky60 | 2014-09-20 20:55 | 121 Views | 1 Comment

Hi,

I occationally have episodes where I get extreamly nauseous and then i pass out for a very short time.  I went to a neurologist, he ran a full range of test on me and said I may have a...

Created By: Susaninfl | 2014-09-19 15:45 | 174 Views | 3 Comments

Hi All,

I was diagnosed over 2 years ago with seizures and have had 2 seizures which were grand mal where I had the seizures at work and I fell to the floor, etc and was taken to the ER,...

Created By: soldier mike | 2014-09-18 05:21 | 133 Views | 0 Comments

Hello. My name is mike and 24. I was diagnosed in the ER yesterday as having focal seizures. I have had headaches for a few years. They usually hit as a sharp pain to one side of the head and last...

Created By: Mekalekahimecahinyho | 2014-09-17 14:18 | 147 Views | 0 Comments

I am so frustrated.  I have been trying to find out information on different things, and I cannot think right. I had an irregular EEG, had a seizure when I slept.  My med levels were borderline.  ...

Created By: Spacedoubt | 2014-09-17 12:56 | 154 Views | 2 Comments

Please forgive me for asking you this. I know how totally off-the-wall it sounds, but I need feedback from other people who have had surgery for epilepsy, and people who live with it.

I had...

Created By: sb18940 | 2014-09-17 12:00 | 132 Views | 4 Comments

Almost six months ago I had seizure when I was driving.  I wasn't really hurt, maybe a bruised rib and knee, but the damage was mainly to my car.  Because of the seizure I lost my license and my...

Created By: bluechi286 | 2014-09-16 14:23 | 204 Views | 1 Comment

I have a lot of experience (20 years) with "dealing" with epilepsy. However there are still things that the population that do not have epilepsy (or are not a family member/friend of a person with...

Created By: Shahar | 2014-09-16 10:12 | 233 Views | 2 Comments

I was evaluated for temporal lobe epilepsy some years ago (including 24h EEG and monitoring) and in the end was told that they couldn’t see anything in the EEG and therefore think that I don’t...

Created By: birdsongg@msn.com | 2014-09-15 12:28 | 149 Views | 1 Comment

I am a 49 yr old woman in the midst or end of Menopause.  I was also diagnosed at 20 with Grand mal seizures.  At that time I was having roughly one every 3-4 weeks.  It wasnt until years later I...

Created By: alexis00 | 2014-09-13 17:06 | 168 Views | 1 Comment

It is often forgotten just how STRONG all of us are. The "Sacred Disease" has been with the human race for thousans of years. And still there are so many ignorant people out there that may be...

Created By: olivia96 | 2014-09-12 12:42 | 147 Views | 1 Comment

I was diagnosed with epilepsy 11 years ago and I've been on and off the medications ever since. A few months ago my EEG has gotten worse (before that and I haven't had a seizure for 10 years) and...

Created By: MBednarcik | 2014-09-11 00:33 | 168 Views | 1 Comment

Hi I have had gradmaul and partial seizures that go into gradmual since I was 10 or 13. A lot of trials with  epilepsy drugs and vns failed to.I went on zonegran  for awhile and it made my...

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