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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: joel2 | 2013-11-21 01:21 | 171 Views | 0 Comments

I read so much negative with peoples with epilepsy , I like to share how epilepsy has changed my life for the better , my first seizure , I broke the stove in our leaving quater , which got me...

Created By: breezie68 | 2013-11-21 00:11 | 562 Views | 6 Comments

Hi! I am questioning my diagnosis of nonepileptic seizures. I have had just a few seizures over the past 10 years or so. I have had all the testing, been inpatient while they tried to induce a...

Created By: sesat13 | 2013-11-20 17:14 | 2464 Views | 20 Comments

epilepsy has ruined my life.
and it pisses me off how people think nothing of the diagnosis. it doesn't get the attention it needs for sure.
when i was a kid, i didn't plan to NOT get...

Created By: Fairy20 | 2013-11-17 12:42 | 609 Views | 6 Comments

A question...

I had the idea that because I have epilepsy I'm more tired than people without.

Epilepsy isn't the only thing I have. I have autism too.

So somethimes,...

Created By: CD123 | 2013-11-15 18:54 | 307 Views | 1 Comment

I know this is a really odd title, lol. But while I was really sick with TLE I had a lot of mental health issues. Stemming from what they thought was PTSD to eating disorders, to depression,...

Created By: Andrea_McBride | 2013-11-14 19:52 | 278 Views | 2 Comments

Ok, so, I've just been diagnosed with epilepsy and have discovered SUDEP. Is it just me or is anyone else terrified about this, especially seeing as so little is known about it!

Created By: Andrea_McBride | 2013-11-14 19:32 | 123 Views | 0 Comments

Ok so newly diagnosed with epilepsy and have just discovered SUDEP. Is it just me or is anyone else terrified about it, especially since very little is know about it!

Created By: puglover | 2013-11-14 18:02 | 200 Views | 2 Comments

My son's seizures seem to have a cycling pattern and I was wondering if this is common with simple and complex seizures. Seems like about every 11-13 days he has anxiety and then he'll have his sp...

Created By: ProfessionalDreamer | 2013-11-14 13:31 | 149 Views | 0 Comments

I've been having "small" seizures everyday since Monday night. My mood has been, well let's just say not the nicest either. Oh and headache after headache -__-

I guess the meds do help...

Created By: Andrea_McBride | 2013-11-13 13:32 | 658 Views | 8 Comments

Hi,
I've just been diagnosed with absence seizures at age 28. I've been struggling with the diagnosis. To begin with I thought, hay it's just a name and it will get better with meds so it's...

Created By: Bunnybelle | 2013-11-11 14:13 | 466 Views | 5 Comments

This is the third occurrence of this phenomenon that I can't describe as anything other than a simple partial seizure.
The first occurred about 8 months ago, the second two months ago, and...

Created By: sillisent | 2013-11-11 12:33 | 524 Views | 9 Comments

Hello all - I am new here to ask about something. My boyfriend is 22 yo male with a family history of seizures (mother is on medication for grand mal) and has been seeking treatment for severe...

Created By: ProfessionalDreamer | 2013-11-11 11:31 | 513 Views | 6 Comments

I woke up with the side of my face covered in saliva, had a headache the fell back to sleep and slept till noon. I wanna mention it to my mother but she probably would say no it was nothing...

Created By: ProfessionalDreamer | 2013-11-10 07:19 | 383 Views | 5 Comments

If you follow this diet plan how has it changed things for you?

Created By: UH_Warrior13 | 2013-11-08 13:01 | 158 Views | 1 Comment

Aloha,

I was windering is this episdode is a sz.

About a weeks ago I could not find nmy bed room.  My husband was out of town and my 17 yr old daughter was also at a friends...

Created By: Kelly120890 | 2013-11-07 13:28 | 164 Views | 1 Comment

I work I call center for Verizon Wireless. I received a call from a gentleman whose phone wasn't working and he needed to keep entertained during his hospital stay. We're supposed to connect with...

Created By: Mrs.Norris | 2013-11-07 01:51 | 692 Views | 3 Comments

Hello.  I've posted before.  You all have been very helpful.  After my last set of deja vu aura seizures and grand mal seizure my neuro was unable to find anything on EEG.  I went for two months...

Created By: nikitamarie88 | 2013-11-04 23:52 | 382 Views | 6 Comments

A question for everyone on this board: Does anyone's seizures effect their sense of self? I have not been diagnosed with epilepsy but my psychiatrist has referred to me to a neurologist to be...

Created By: tlstabile1 | 2013-11-03 13:37 | 188 Views | 2 Comments

I am a 42-year-old female.  I experienced my first grand-mal seizure 12 years ago.  For several years previous to that, I had experienced what I referred to as "skipped record syndrome", where I...

Created By: Cthebird | 2013-11-03 09:46 | 590 Views | 7 Comments

I only see my neurologist once every 6 months or so.  I'm happy about that.  The reason why is because though she diagnosed me as having Simple Partial Seizures every time I mention my symptoms...

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