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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Eternal_Howl | 2014-04-01 21:35 | 153 Views | 4 Comments

Hi,

I've been diagnosed with epilepsy for about 28 years and I've had the 'shakes' for years. When I say shakes, I'm referring to holding your hand out palm down and seeing shakes - like...

Created By: mkosloske | 2014-04-01 20:21 | 303 Views | 8 Comments

Anyone know if grapefruit affects Keppra levels? When I was on Tegretol, I was advised not to eat grapefruit for many years. The Keppra label has no mention of grapefruit at all. Would love to...

Created By: Mgill0624 | 2014-04-01 16:19 | 194 Views | 2 Comments

My short story, I am 53y/o Hispanic female living with nocturnal epilepsy for 10yrs. I got fired and haven't any income since. I about to be foreclosed on so I'll be another epileptic living on...

Created By: Mgill0624 | 2014-04-01 16:19 | 133 Views | 0 Comments

My short story, I am 53y/o Hispanic female living with nocturnal epilepsy for 10yrs. I got fired and haven't any income since. I about to be foreclosed on so I'll be another epileptic living on...

Created By: winifredbeware@gmail.com | 2014-04-01 03:44 | 141 Views | 2 Comments

How many times when I tried to talk about my experiences and was told "you've depressed and need medication".Simply because I had a normal reaction to a terrible situation. I soon learned to keep...

Created By: Artemis108 | 2014-03-31 01:34 | 242 Views | 8 Comments

I've had 4 grand mals so far. Today I decided to take a drive to visit a friend. I had my license back and had waited the full six months since my last seizure. I missed some turns and got lost....

Created By: hayla | 2014-03-28 06:00 | 241 Views | 2 Comments

<p>I recently have been thinking of doing more fruit drinks etc to help maintain my weight, but I came across a substance called Spirulina, I really need to know if this would cause me to...

Created By: tybear | 2014-03-27 21:27 | 191 Views | 4 Comments

I am 41 years old and have been diagnosed with epilepsy.  I had one seizure 7 years ago 2 EEG's one sleep deprived came back normal.  I was sleeping when the seizure hit.  Memory loss, chewed...

Created By: nrc2021@gmail.com | 2014-03-27 04:23 | 178 Views | 3 Comments

How can someone ensure either by change in medication or the dosage of medication that seizures will not happen even if you are deprived of sleep for around 8 days or have your sleep pattern...

Created By: eyeski | 2014-03-26 23:01 | 366 Views | 3 Comments

I am an Optometrist in St. Louis.  Recently one of my long time patients mentioned she experiences Photo Sensitive Seizures and wondered if a tinted lens would help.  After some research...

Created By: eyeski | 2014-03-26 22:56 | 167 Views | 0 Comments

I am an Optometrist in St. Louis.  Recently one of my long time patients mentioned she experiences Photo Sensitive Seizures and wondered if a tinted lens would help.  After some research...

Created By: pshafer | 2014-03-04 13:39 | 598 Views | 76 Comments

Welcome to the new site! Send me your feedback here!

epihelp

Created By: randijeanw | 2013-12-01 17:26 | 3082160 Views | 12 Comments

I have catamenial epilepsy, so I have seizures on average about once a month. They are grand mal seizures, sometimes just in bed resulting in extra exhaustion and a bit tongue, but sometimes a...

Created By: nicki | 2013-11-28 18:33 | 67913 Views | 3 Comments

Happy Thanksgiving. Giving thanks for all of you.
Hope you stuffed yourself with turkey and all the trimmings and had a great family day.

Created By: hopewithseizures | 2013-11-26 11:30 | 269 Views | 1 Comment

During my 6 plus years of journaling about my challenge with seizures brought me to this article on dysglcemia.  Along with medication, diet and proper excercise I've been blessed with being...

Created By: hopewithseizures | 2013-11-26 11:30 | 157 Views | 0 Comments

During my 6 plus years of journaling about my challenge with seizures brought me to this article on dysglcemia.  Along with medication, diet and proper excercise I've been blessed with being...

Created By: Masterjen | 2013-11-23 17:14 | 345 Views | 3 Comments

I had a night seizure around 3 AM, and 5 hours later got up to start my
day but realized I had to go back to bed (due to typical post seizure
symptoms for me of extreme fatigue,...

Created By: puglover | 2013-11-23 08:37 | 875 Views | 1 Comment

My son is hooked up for the 72 hour ambulatory eeg. He has sleep deprived himself and even taken his meds later than usual; both of which would normally produce seizures. It hasn't been 72 hours...

Created By: CD123 | 2013-11-22 12:37 | 144 Views | 0 Comments

I was going through my very detailed, had to put everything in it journal, and I'm glad I did because I don't remember much of the years between 2007-2011 when I finally got put on seizure...

Created By: Straight Edge Champ | 2013-11-21 17:37 | 364 Views | 4 Comments

I'm on Lamictal but due to my insurance changing,I won't be able to afford it anymore.I was told that Lamotrigine which is the generic of it is cheaper.I have been seizure free for over 2 years...

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