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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: amkinca | 2014-04-16 07:45 | 160 Views | 0 Comments

<p>I wake up to the sound of rain in pitch black. I reach for my phone but there is a wall there instead.Where am I ? What has happened ? How did I get here ? I had a grand mal seizure while...

Created By: sfc10orio@gmail.com | 2014-04-15 23:02 | 226 Views | 14 Comments

On February 2014, my daughter (15 yrs) had her first Tonic Clonic Seizure. At the ER, the doctor said everyone is allowed one seizure in their life. Two weeks later she had another TC on the couch...

Created By: Biff35 | 2014-04-15 11:50 | 228 Views | 7 Comments

Hi, I'm new to the website and hoping everyone here has been seizure free! I was diagnosed with epilepsy back in 2005 at age 16. I have been on countless amounts of medications that either don't...

Created By: Cthebird | 2014-04-15 10:23 | 204 Views | 2 Comments

About 3 years ago I was diagnosed with Simple partial seizures based on what the neurologist thought was an abnormal EEG.  Well, I was not satisfied with her treatment and decided to go to a...

Created By: tcameron | 2014-04-14 19:14 | 138 Views | 1 Comment

Am I the only person who has had trouble with the chat room?  They talk about themselves inststead of the Epilepsy Foudation or even epilepsy!  I can't be the only person who has had difficulty...

Created By: PettaCottontaiL | 2014-04-14 00:32 | 196 Views | 9 Comments

will any moditor come on the site to show  us how the site works ??? like tell us how to private message ?? or what happen to our post  an forms from the last site ?? someone needs ti show us how...

Created By: rosanna1980 | 2014-04-13 19:43 | 170 Views | 1 Comment

Does anyone know of any facilities a seizure patient can check themselves into (similar to a nursing home)? I live alone and my health just continues to decline. I keep getting injured and scarred...

Created By: SineadWalsh | 2014-04-12 12:41 | 166 Views | 2 Comments

I've had epilepsy for about 6 years and had no fears, etc. Lately Ive been afraid to stay at home alone at night for fear of seizures, and I also vomit while seizuring, and im afraid I'll choke....

Created By: Elle White | 2014-04-11 21:22 | 223 Views | 1 Comment

Twenty years old, and I've spent my entire life attempting to convince my doctors, and my family for that matter, that something was wrong with me. When there's something in your body that's not...

Created By: kbwacyk@gmail.com | 2014-04-10 19:25 | 396 Views | 10 Comments

I am very frustrated.  I have been having absence seizures for almost 2 years.  Lost driving privilages for 6 months.  I finally was able to drive and was working steady.  Then out of the blue I...

Created By: Kandreas81 | 2014-04-10 13:19 | 213 Views | 2 Comments

Hello all,

I've had temporal lobe Epilepsy for about 20 years. I take Lamictal and Vimpat. I recently have been having problems with dizziness, lack of blood circulation, and heart racing...

Created By: xMelmo | 2014-04-09 21:28 | 147 Views | 4 Comments

So I have been seizure free for 8 months!! I am trying to recieve my suspended license back and I cannot find the form anywhere online that my neurologist has to sign and send to the DMV!! I live...

Created By: dwinsor | 2014-04-09 19:52 | 287 Views | 13 Comments

I am a 44 year old woman and a year ago I decided to go off my medications (Keppra and Lamictal)and at the beginning of this year I decided to shut down my VNS machine as well. I would love to...

Created By: RachaelCoe | 2014-04-09 19:01 | 299 Views | 2 Comments

I've had Epilepsy for 15 years. I'm about to be 29 and throughout this ordeal I've received nothing but love and support from my family and friends. Now I have someone in my life (my sister in law...

Created By: Misjoey101 | 2014-04-09 16:12 | 196 Views | 3 Comments

I have been told to see my neurologist every year. Even though I still have seizures, I don't see the point. My neurologist just stares at a sheet and will tell me to take one more pill. It doesn'...

Created By: photoguy | 2014-04-09 08:25 | 135 Views | 2 Comments

<p>I'm going thru the path towards surgery now. Thought I would start a "blog" to help put some information out there for others that have questions......

Created By: naturegirl | 2014-04-08 10:48 | 189 Views | 1 Comment

Motor Vehicles is set to suspend my licence on April 26th.  I have had grand mal seizures for the past 34 years, since I was 16.  I have 2 to 3 a year and they happen at night.  I have also been...

Created By: eleckie510@gmail.com | 2014-04-07 02:01 | 188 Views | 3 Comments

Two years ago I was diagnosed with an AVM and rushed into emergency surgery to remove the mass. It was a seizure that alerted the doctors to my AVM. After 2 12hour surgeries the mass was removed...

Created By: str8edgeace | 2014-04-06 14:12 | 355 Views | 3 Comments

Hi Everyone,

First off I have to say thank you for everyone sharing their experiences. I easily get anxiety when I have some type of seizure and think it's all in my head and when I read on...

Created By: kralligood | 2014-04-06 09:05 | 166 Views | 2 Comments

Hello, all.

I hope everyone is doing well (seizure-free!). In the last 2-3 months, I get shaky vision where it looks like what I'm looking at is moving up and down (not side to side). It's...

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