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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: dowh4 | 2014-08-21 23:40 | 1 View | 0 Comments

Hi,

I have complex partial seizures (5-10/month) with my focal point being left temporal lobe.  I currently take Trileptal (900mg/1200mg), Keppra (1500mg bid), and Lyrica (200mg bid). ...

Created By: solitairemiles@gmail.com | 2014-08-21 21:03 | 8 Views | 0 Comments

I wish that it didn't but pot makes me have more seizures, and really bad ones.  I am controlled by medication, but if I am in a room or near a person smoking pot, I will have biggies.  It makes...

Created By: mikef6322@gmail.com | 2014-08-21 15:54 | 12 Views | 1 Comment

hi.

 

I first had seizures about 8 years ago.  The emergency room at Saint Jude's told me it was because of an overdose of an antidepressant I had been briefly been on.  Now I am...

Created By: alexis00 | 2014-08-21 10:54 | 24 Views | 1 Comment

Started having partial seizures in my teens, with visions, misdiagnosed as panic attacks. They evolved into full on grand mal seizures when I was 26 and a tumor was removed from my temporal lobe...

Created By: laurielynnmu@yahoo.com | 2014-08-20 17:49 | 33 Views | 1 Comment

Hi all,

I was diagnosed with fronto temporal lobe epilepsy since Aug. 2013.  The previous March I started having phantom smells. Also, for years I would wake up and feel like I was choking...

Created By: daisy_jones08@yahoo.com | 2014-08-20 16:49 | 38 Views | 0 Comments

It would be so much easier to give up. I've had grand mal seizures since I was 11 and I'm 24 now.. I've been on all kinds of medications but nothing works.  Come to find out, I have less seizures...

Created By: ryanjosephaz@gmail.com | 2014-08-20 12:29 | 18 Views | 0 Comments

Hello epilepsy forum,

Today, one of my past college friends showed me an indiegogo campaign that is based around helping t...

Created By: nathan.brown@alfalaval.com | 2014-08-18 12:37 | 29 Views | 1 Comment

In doing more research on Photosensitivity Seizures, I find the T8 Florescent Light Bulbs are giving off a high contrast of red spectrum wave length then say T5 LED or good old fashion...

Created By: aviatorsquest4god@gmail.com | 2014-08-17 15:31 | 26 Views | 0 Comments

Service Dogs whether they be owner trained or programed trained can't be trained for protection as its NOT a task. Then again some people do train for shutzhund which is like protection but isnt...

Created By: RI1206 | 2014-08-17 11:28 | 93 Views | 2 Comments

Hi all,

I am new here and diagnosed with temporal lobe epilepsy last September at 25. I had no history of seizures before.  I had another grand mal seizure the following week and was put on...

Created By: brad.r.sutton@gmail.com | 2014-08-16 00:30 | 59 Views | 0 Comments

Hi my name is Brad,

This is my first posting  on this site.  I was first semi diagnosised with a seziure condition 4 years ago.   I was training for a multi sport event (running, canoeing...

Created By: njs14 | 2014-08-15 22:30 | 53 Views | 1 Comment

I'm 25 years old - I've had seizures every year or so since I was a little kid. I've been on sodium valproate (epilim, depakote etc) for the last 4 years, and been seizure-free for the last 2.5...

Created By: Terry 436 | 2014-08-15 16:00 | 85 Views | 5 Comments

My wife has been having seizures for about 3 years now, labeled as 'absent seizures' diagnosed epilepsy of course, initially they presented themselves with hallucinations, crowds of non existent...

Created By: tenmoleyhendens | 2014-08-14 20:47 | 26 Views | 0 Comments

"Trash are only bag proposed to the rejection of thiophene, how can there be to come up with the barrel go down!" Ms. A casual stroll after lunch, but do not want to come to the front of a large...

Created By: aramir50 | 2014-08-14 17:43 | 72 Views | 1 Comment

Hello there.  I'm new to this, my therapist just introduced me to this site.  I need a little assurance and I'm hoping someone can give it to me.  When I was 4-years-old, I was physically...

Created By: lucylou6 | 2014-08-14 13:47 | 48 Views | 1 Comment

I am 27 years old and was diagnosed with JME when I was around 18. I've never had a tonic clonic seizure, only the myoclonic jerks and I haven't had these since I started medicine when I was 18. I...

Created By: MartinC | 2014-08-14 03:59 | 52 Views | 1 Comment

Thought I would share my experience with epilepsy. I am a 30 year old Danish man living in Malta. I found this forum to the best out the ones I looked at. Anyway for several years I have been...

Created By: thebec19 | 2014-08-13 16:29 | 92 Views | 1 Comment

I'm newly diagonsed epilespy patient, I was diagonsed December of 2013. The doctors that I have aren't really giving me any advice or much information on this. It's finally starting to sink in on...

Created By: nowyoucanemailpaul@gmail.com | 2014-08-11 17:43 | 82 Views | 2 Comments

Hello all,

My nickname is Paul. My seizures are caused by a scar on my occipital lobe.

A major problem for me, in trying to get medical help, has been that all doctors seem to just...

Created By: Lorikeet | 2014-08-11 07:13 | 176 Views | 7 Comments

I just want to hear from other people about this as I have been brushed off by doctors and don't know what to do.  Sorry, it's long :(

In early July I went to the ED.  I had been at work...

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