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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: stripejellyfish | 2014-08-23 00:34 | 10 Views | 0 Comments

I refuse and pray I never have to go Hospital for seizure ever again most part bad experience with threat of pysch hold and bad treatment for pnes.
Getting there or having to be transported...

Created By: MarlenEllen | 2014-08-22 15:05 | 20 Views | 1 Comment

Hi

I was wondering what symptoms you have experienced /experiences during simple partial seizures and how often?

thanks!

Created By: eastsoccer97@gmail.com | 2014-08-22 14:53 | 11 Views | 0 Comments

Hey Guys,

I don't get on the computer much to keep up with what's going on on this website and others like it.  I was wondering if anyone knew if there was a group for Epilepsy on the App...

Created By: Chelsnory | 2014-08-22 09:00 | 20 Views | 1 Comment

I have woken up out of my sleep quite a few times to have a seizure or maybe it is to finish the seizure I was having in my sleep, I'm not sure. Every time I look for information on this I don't...

Created By: dowh4 | 2014-08-21 23:40 | 21 Views | 1 Comment

Hi,

I have complex partial seizures (5-10/month) with my focal point being left temporal lobe.  I currently take Trileptal (900mg/1200mg), Keppra (1500mg bid), and Lyrica (200mg bid). ...

Created By: solitairemiles@gmail.com | 2014-08-21 21:03 | 28 Views | 0 Comments

I wish that it didn't but pot makes me have more seizures, and really bad ones.  I am controlled by medication, but if I am in a room or near a person smoking pot, I will have biggies.  It makes...

Created By: mikef6322@gmail.com | 2014-08-21 15:54 | 29 Views | 1 Comment

hi.

 

I first had seizures about 8 years ago.  The emergency room at Saint Jude's told me it was because of an overdose of an antidepressant I had been briefly been on.  Now I am...

Created By: alexis00 | 2014-08-21 10:54 | 46 Views | 1 Comment

Started having partial seizures in my teens, with visions, misdiagnosed as panic attacks. They evolved into full on grand mal seizures when I was 26 and a tumor was removed from my temporal lobe...

Created By: laurielynnmu@yahoo.com | 2014-08-20 17:49 | 38 Views | 1 Comment

Hi all,

I was diagnosed with fronto temporal lobe epilepsy since Aug. 2013.  The previous March I started having phantom smells. Also, for years I would wake up and feel like I was choking...

Created By: daisy_jones08@yahoo.com | 2014-08-20 16:49 | 50 Views | 1 Comment

It would be so much easier to give up. I've had grand mal seizures since I was 11 and I'm 24 now.. I've been on all kinds of medications but nothing works.  Come to find out, I have less seizures...

Created By: ryanjosephaz@gmail.com | 2014-08-20 12:29 | 19 Views | 0 Comments

Hello epilepsy forum,

Today, one of my past college friends showed me an indiegogo campaign that is based around helping t...

Created By: nathan.brown@alfalaval.com | 2014-08-18 12:37 | 32 Views | 1 Comment

In doing more research on Photosensitivity Seizures, I find the T8 Florescent Light Bulbs are giving off a high contrast of red spectrum wave length then say T5 LED or good old fashion...

Created By: aviatorsquest4god@gmail.com | 2014-08-17 15:31 | 29 Views | 0 Comments

Service Dogs whether they be owner trained or programed trained can't be trained for protection as its NOT a task. Then again some people do train for shutzhund which is like protection but isnt...

Created By: RI1206 | 2014-08-17 11:28 | 101 Views | 2 Comments

Hi all,

I am new here and diagnosed with temporal lobe epilepsy last September at 25. I had no history of seizures before.  I had another grand mal seizure the following week and was put on...

Created By: brad.r.sutton@gmail.com | 2014-08-16 00:30 | 66 Views | 0 Comments

Hi my name is Brad,

This is my first posting  on this site.  I was first semi diagnosised with a seziure condition 4 years ago.   I was training for a multi sport event (running, canoeing...

Created By: njs14 | 2014-08-15 22:30 | 55 Views | 1 Comment

I'm 25 years old - I've had seizures every year or so since I was a little kid. I've been on sodium valproate (epilim, depakote etc) for the last 4 years, and been seizure-free for the last 2.5...

Created By: Terry 436 | 2014-08-15 16:00 | 90 Views | 5 Comments

My wife has been having seizures for about 3 years now, labeled as 'absent seizures' diagnosed epilepsy of course, initially they presented themselves with hallucinations, crowds of non existent...

Created By: tenmoleyhendens | 2014-08-14 20:47 | 27 Views | 0 Comments

"Trash are only bag proposed to the rejection of thiophene, how can there be to come up with the barrel go down!" Ms. A casual stroll after lunch, but do not want to come to the front of a large...

Created By: aramir50 | 2014-08-14 17:43 | 75 Views | 1 Comment

Hello there.  I'm new to this, my therapist just introduced me to this site.  I need a little assurance and I'm hoping someone can give it to me.  When I was 4-years-old, I was physically...

Created By: lucylou6 | 2014-08-14 13:47 | 52 Views | 1 Comment

I am 27 years old and was diagnosed with JME when I was around 18. I've never had a tonic clonic seizure, only the myoclonic jerks and I haven't had these since I started medicine when I was 18. I...

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