The SUDEP Institute is proud to partner with organizations to ensure accurate information on SUDEP is available. Below are some resources including:
- PAME Coference and Webinar Series
- SUDEP Counseling: Risk Management for Clinicians Webinar
- Epilepsy's Fatal Potential Radio Broadcast
PAME Conference and Webinar Series
The Epilepsy Foundation is a proud partner of Partners Against Mortality in Epilepsy (PAME).
In June 2012, PAME held its first three-day conference. Devoted predominantly to Sudden Unexpected Death In Epilepsy (SUDEP), this conference brought together doctors, scientists, families and advocates from around the world to advance awareness and understanding of epilepsy mortality and SUDEP.
In June 2014 the second the second PAME conference was held in Minneapolis, MN. Read the summary to learn about current research on potential causes of mortality in people with epilepsy, including respiratory issues, sleep, cardiac failure, and genetics.
Below are excellent resources made possible through this partnership.
- View the PAME 2012 and PAME 2014 Conference Materials
- View the PAME webinars
- See The Faces of SUDEP video
SUDEP Counseling: Risk Management for Clinicians - CME and CNE Webinar
Learning objectives for this two‐part webinar:
Counsel patients and families regarding SUDEP as appropriate for the level of risk related to the individual patient's epilepsy, increasing patient and family understanding of the disorder and improving adherence to treatment recommendations.
Incorporate established techniques for counseling patients and families in discussions of epilepsy and its potential consequences, providing opportunities for improved communications and patient/family understanding of risks associated with epilepsy.
A total of 3.5 CNE/CME credits available.
Epilepsy's Fatal Potential Radio Broadcast
On this edition of Iowa Public Radio's River to River, Ben Kieffer talks with one of the Universtity of Iowa's lead SUDEP researchers, Dr. George Richerson, as well as Roxanne Cogil, Director of Iowa Epilepsy Services at the Epilepsy Foundation and Teresa Elliott, who lost her son to SUDEP.