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November (in what year?)


Does anyone have any knowledge as for what year November was actually declared as the epilepsy awareness month in the United States? I've been spending time searching the Internet for answers to my question, but have not come across anything yet.


Comments

Re: November (in what year?)

Hi Spike,

The quick search results I get ends in "snippet view", but the intermediate result of the google Ngram Viewer for
"Epilepsy Awareness" (case sensitive) gives:

"Working with a team of public health students who are developing an 'Epilepsy Awareness Plan' for the general public, to be implemented in November l977. RESEARCH-ABSTRACTS Information about existing technology is being..." (Plan for nationwide action on epilepsy - Volume 2 - Page 1085 (United States. Commission for the Control of Epilepsy and its Consequences - 1978)).

https://books.google.com/ngrams/graph?content=Epilepsy+Awareness&year_st...

https://www.google.com/search?q=%22epilepsy%20awareness%22&tbs=bks:1,cdr...

Trying to narrow down, mainly more later snippets (except for chance combinations):

https://books.google.com/ngrams/graph?content=Epilepsy+Awareness&year_st...

Tadzio

Re: November (in what year?)

That could have been right but you do need to check out when the EFA got to all the states. Here in Dallas we had DEA and it was in the 1980's that Carol Cervenka went from DEA to the EFA they may have been in DC but I don't think they were in all the states

Re: November (in what year?)

Hi Just_Joe,

Some States' (etc.) posting proceedings to the internet are scattered amongst the nGram returns, such as "Journal of Proceedings of the County Legislature of the County of Rensselaer(NY)":
http://books.google.com/books?id=z-5IAAAAYAAJ&q=%22epilepsy+awareness%22...
Reference sources are 1,900 miles distant here, so snippets the present limit.
( http://www.newspapers.com/newspage/22723226/ requires subscription for me, if that is the source of DEA, April 23, 1973, with earlier use of the word "Awareness" in the slogan).

The earlier citations are better than later citations of citations, with the original source being much better than subsequent citations ("improvements" are often later added that were not in the original source).

The word "Awareness" tweaks my curiosity (types of seizures of epilepsy involving consciousness, i.e., "awareness", and the failed definition of both), and the "chance" return of "teddy bear epilepsy", with those cursed teddy bears being encountered again: "LET ME DIE OF ANYTHING BUT SUFFOCATION BY THE PINK STICKY SENTIMENT EMBODIED IN
THAT TEDDY BEAR": http://archive.bcaction.org/PDF/Harpers.pdf

The Literal War Between:
https://www.google.com/search?q=%22teddy+bear+epilepsy%22&oq=%22teddy+be...
(example: "What a wonderful gift this teddy bear will make! It is LIMITED EDITION and is called the E-Teddy hand made especially in recognition of epilepsy all month long." https://en-gb.facebook.com/permalink.php?story_fbid=10152025874713706&id...

AND

"the 'teddy bear' sign were associated with moderate specificity for PNES"
http://www.ncbi.nlm.nih.gov/pubmed/18617856
versus
"Does the teddy bear sign predict psychogenic nonepileptic seizures?"
http://www.ncbi.nlm.nih.gov/pubmed/23770681

The source/origin of "Breast Cancer Awareness Month", as a model, is very controversial when consciousness raises above
the intoxicating glitz: http://womego.com/articles/news-issues/breaking-news/health/writing-next...

Ehrenreich's "Bright-Sided"/"Smile or Die" also overlaps in cluing to recognizing ACT's faulty concepts of "Clean Epilepsy" versus "Dirty Epilepsy" in epilepsy enhancing and/or ruining many major life activities.

All "Tangled Up In Blue", purple, pink, whatever, ribbons, etc.,

Tadzio

Re: November (in what year?)

As far as the year I can not say. I do know that there werew many different names for agencies, assocoations and foundations back in the 1970's. I live in Dallas and I got assistance from the Dallas Epilepsy Association. The EFA back then was only in one state.

The DEA had been doing walks around WhiteROck Lake for years as a way to get funding. The main person in the DEA went to the EFA back in the early 1980's and the EFA might have had an office in DC but they still hadn't gotten to all the states yet. If they got the National awareness started then it is possiable but it would not really be completely across the country until they get to every state. Why the EFA set up shop in Houston I will not know because it is hours away fron here and their little office that is in this area does not do much to promote awareness.

Awareness has different meanings. I am aware of everything happening around me in my seizures. Does that mean the people around me are aware of epilepsy?

Epilepsy has a stigma which most other issues do not have. How did the stigma get started and what do we do the get rid of that stigma. Hell my PCP did not even know that november was Epilepsy Awareness Month. My neuro did but then a specialist generally knows what happens in his speciality

Joe

Re: November (in what year?)

Thank you for your reply Tadzio. I did some more online searching and quickly found the answer to my question in the very first paragraph of an old.epilepsyfoundation.org PDF file, entitled 'National Epilepsy Awareness Month'.

Background: The first nationwide epilepsy public education campaign was conducted by the Epilepsy Foundation of America in June and July of 1968. In the following year, November was declared National Epilepsy Awareness Month. Since that date the observance has been recognized in most years by a White House message from the President. In 2003, the U.S. Congress passed a formal resolution declaring November as National Epilepsy Awareness Month. Here's the link that showed up in the address bar for the very PDF file that I'm referring to… http://old.epilepsyfoundation.org/newsroom/upload/Epilepsy-Month-Fact-Sheet-NEW.pdf

Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)

Re: November (in what year?)

Hi Spike,

I only find "National Epilepsy Month" and "Epilepsy Month", until Canada's "Epilepsy Awareness Month" in March 1997:

http://news.google.com/newspapers?nid=1499&dat=19701122&id=X8AcAAAAIBAJ&...

http://newspaperarchive.com/lethbridge-herald/1997-02-27/page-12

with "Awareness" available Nov 15, 1998 and, after Canada's month of March, Feb 27, 1997 listing:

http://gonebananas.org/tag/national-epilepsy-awareness-month/

Same for "Epilepsy Month" in White House Messages, first being Carter, then Clinton, on my internet access search.

http://www.epilepsyfoundation.org/resources/newsroom/pressreleases/Epile...

What's the date on Bruce's cited document? I only find the Foundation's earliest as October 22, 2009:
"In 1969, November was declared National Epilepsy Awareness Month as a part of a nationwide epilepsy public education campaign. Since that date, the observance has been recognized in most years by a White House message from the President. In 2003, the U.S. Congress passed a formal resolution declaring November as National Epilepsy Awareness Month."
but, http://ecips.loc.gov/cgi-bin/bdquery/D?d094:704:./list/bss/d094HJ.lst::
then: http://thomas.loc.gov/cgi-bin/query/z?r108:H19NO3-0044:

Tadzio

Re: November (in what year?)

Think there's more attention to "no shave november" in the public eye.