I had a night seizure around 3 AM, and 5 hours later got up to start my
day but realized I had to go back to bed (due to typical post seizure
symptoms for me of extreme fatigue, dizziness/imbalance/lightheadedness,
mild nausea,etc.). While lying there but not yet asleep my upper lip,
nose and head/face from my upper lip upwards felt like it had swelled to
multiple times its actual size and the same sensation was in my right
hand. I started to feel it starting in my left hand along with feeling
like I was being pulled into a void (probably just the fatigue), but
must have fallen asleep.
I have had hallucinations (if that's what these are) a handful of times
before in the three and half years I've had seizures, but also 0-2 times
a year at night throughout my life, but usually the "swelling" is
confined to my head along with a sense of not being where I really am
and feeling like I could be pulled into some void if I didn't focus on
not going there. The sensation would last usually 30-60 seconds.
Can anyone out there say "aha, I've had that", or otherwise know it is seizure
related,or is something else?
If it helps any: My seizures are "nocturnal simple, as well as possibly complex, partial motor seizures" as per the seizure specialist. Am on wait-list for video EEG.