This is my first post, and I just want to see if anyone is in the same boat as me. I am 31 and was diagnosed with epilepsy when I was 15. I have gone through periods of time when I was driving and years when, for some reason, the seizures were more intrusive in my life. I have tried and failed about 15 different meds, I'm currently having weekly seizures, and my incredible neurologist at Johns Hopkins finally said enough is enough. After undergoing monitoring at the EMU, they have determined that I am a candidate for surgery and that my seizures are coming from the left frontal lobe.
My doctor wants me to do a MEG test in Alabama, although this is considered experimental by my insurance, so they won't approve it. They are going to place grids prior to the focal resection, but he thought the MEG would be an even better way to pinpoint the focus since my seizures generalize so quickly. My biggest fear is that they will place the grids and that they will have to remove them after 2 weeks without finding the focal point of my seizures.
Has anyone had this happen before where they have had grids placed and later removed prior to the surgery without following through on the surgery itself?