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katiesmom2008

New here

Hi,new here.I have a little 5 year old girl with absence seizures.

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Re: New here

hi! I'm new as well.. My 5 year old son had few seizures.. we still don't know what is happening with him. waiting for tests.

Re: New here

Hi,we had to wait for 2 month for result from EEG.On medication now.And things are getting better.But still a lot to take in.

Re: New here

Hi Katie,
Glad you found us! As you look around for info, try visiting the Parents section - there's lots of information about seizures in children that you may find helpful!

Let us know how else we can help!

Epi_help
Resource Specialist

Re: New here

Hi there. I am new here, my son is 15 and just had a seizure 2 months ago first time ever. I have a question for you, why do you have to wait 2 months for an EEG result? That is unreasonable.

I know that you have to wait for the neuro appointment an average of 2 months, but there is no reason that you have to wait 2 months for the results. On most practices, you can call ahead of the appointment and ASK for the results. Neuros know of the waiting times for appointments and usually have a nurse on call that can tell you the results before the appointment and also answer some questions. Call your practice and ask them, there is really no reason to wait 2 months to know.

Best wishes!

Re: New here

Hi,we had to wait 1 month for EEG and 1 month for the result.And only for our GP and me ringing the hospital a good few times. Thats i guess how things are in ireland. Very slow. My daugther is on medication now and doing better. Did you get a appointment/EGG for your son? Regards

Re: New here

I am in the US. Sorry that it has taken forever, I feel your frustration. I had to wait 2 months to see a neuro for my son. The EEG was done within a few days and I had the results within 2 days. They gave me the results ahead of time over the phone. I guess it is because you are going through a general practitioner and not a neurologist. I guess you will need a referral to see a specialist.

There is a great website in the UK that gives you a detailed list of neurologist in the UK. here: http://www.epilepsy.org.uk/

My son is been on keppra for almost 3 months and doing great, no relapses. We did lifestyle adjustments: diet, dha pills, vitamins, earlier bed time, no staying up late and very little video games. I think all together it has helped. So far so good. I hope your son feels better too. Please know that you are not alone.

best wishes!!!!!!!!!!!!!

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