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Fri, 2/3/2012

Welcome to the redesigned epilepsy.com

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The new features include:

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First-Time Visitors

Welcome to epilepsy.com, your online source for information, community and resources aimed at your experience with epilepsy. Our site features information about epilepsy and furthers the vision of the Epilepsy Therapy Project to create a powerful resource for everyone involved in caring for, or treating, those with epilepsy.

Who is epilepsy.com?

The epilepsy.com Editorial Board writes, places, and reviews the content throughout epilepsy.com and epilepsy.com/professionals. This team is proud to provide more than 7,500 pages of in-depth information about epilepsy and seizures to help further the mission of the Epilepsy Therapy Project.

Information For ...

This menu in the top right corner of the screen gives you access to information specific to Kids, Teens, Women, Families & Caregivers, and Seniors. As we continue to learn about how epilepsy affects people of all ages, genders, and ethnicities, we'll continue to add valuable information to these sections.

Resources at the Top of Every Page

Important resources follow you along the top bar on all pages through epilepsy.com. Including this page for First-Time Visitors, a Toolbox including links to Find a Doctor, a Seizure Medicines database, Seizure First Aid, and Animations of a Seizure compliment the tools that help sustain the Epilepsy Therapy Project, including online Donations and Shop.epilepsy.com.

Benefits of Epilepsy.com Membership

Members join a Community of over 23,000 other individuals who listen, share, and engage on epilepsy.com. While all information is available to non-members, benefits of membership include access to participate in Community Forums and Blogs, with the ability to find other users based on interests, location, epilepsy treatments, and more. As a member you can create Groups with other members around your interests, using a buddy list to find and keep in touch with friends. You can save pages, videos, and animations to a "favorites" list, share your experiences and expertise through user-generated content, or stake out your corner of the internet through a Story Webpage. Create a Seizure Diary to track your health, medications, and appointments and receive email notifications when the topics that interest you are updated. In short, free membership on epilepsy.com provides many opportunities to engage and and manage your epilepsy!

In-Depth Information for Epilepsy and Seizures

Over 7,000 pages of content await you through the left-hand navigation of epilepsy.com. Orange header sections include All about Epilepsy & Seizures, Diagnosis, Treatment, Seizure Preparedness, Living with Epilepsy, and Resources. Some of the most popular areas in these sections include Epilepsy 101: The Basics, the Seizure Medicines database, Feature Articles, and the Multimedia Center.

Additional Help is Always Available!

Again, welcome to epilepsy.com. If you ever still have questions as you tour through the site, you have many outlets available. The Help Center includes tutorials through the most popular sections of the website. Consider joining the Chat Room to talk with others in real-time. For specific questions, you can Ask the Resource Specialist, or if help is still needed, consider using the email link at the bottom of the page to contact the owners of this site. Good luck!


This content is user-generated. Content is not monitored nor consistently reviewed by the epilepsy.com Editorial Board. Epilepsy.com therefore cannot guarantee the accuracy of any content edited with the Wiki sections. While epilepsy.com, the Epilepsy Therapy Project, and its partners encourage visitor interaction and publishing within these sections, users should use caution when exploring content, especially as it pertains to health concerns. No content on epilepsy.com is intended to replace the care of a doctor. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy, nor does this Wiki content constitute a recommendation for any diagnosis or treatment options.


Hi my name is Sinead and i live in the UK.  I was first diagnosed when i was 10yrs old and was put on Tegretol.  When i was 20yrs old i had gone 3yrs fit free so my neurologist decided to take me off my meds.

6yrs later i started having seizures again so i had tests done and they diagnosed me with epilpesy again, this time i was put on Lamictal which seemed to work except i was having seizures every 5-6 months and started to suffer with terrible headaches. My neuroloist decided to put me on Keppra last November which has worked wonders for me.

 Im now coming off Lamcital decreasing it by 50mg every 2wks for 4months. Im suffering really bad with headaches, dizzyness and only yesterday i fell and cut my head open.  I would like to hear from anyone that has come off Lamictal to hear their story.



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Title Posted
Anyone experience memory loss?  
tiff_25
Seizures During Sleep  
Morning Sunshine
Lamictal - switch to generic lamotrigine?  
RGbrainstorm
Hair Loss and AEDs!  
suebee27
terrified to get pregnant  
linzysmith323
Newly diagnosed JME  
Jess_sMom
Epilepsy, pregnancy and giving birth  
sonjac1978
Myoclonic jerks occuring in the evening?  
elly
Break Through Seizures on Lamictal??  
Hotwired05
Memory Loss/Side Effects - Lamictal vs. Topomax  
Jenlsb
View all Forums

Title Posted
I'm not getting any better; this sucks. (And hello.)  
57Academics
How long before Keppra (Levetiracetam) leaves blood stream?  
eviesmumma2030
Meds and sex drive  
colamaid09
Reduction in Keppra  
happygirl
Epilepsy or brain tumor?  
aj85
Surgery for a fairly well controlled condition?  
nick714754
Daughter just diagnosed  
lamauld
Do Aus and Abu Dhabi have many special rules regarding drugs  
maticusw
benign rolandic epilepsy  
jdw1343
benign rolandic epilepsy  
jdw1343
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Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
Lamictal generic brand  
EBJ1209
embarrassed and confused about my mycolonic seizures..new to this site  
butterfly123
If I have Generalized Siezures can I still be a Candidate for brain surgery?? PLEASE ANSWER!!  
Syd-Vicious20
A little about...  
jmemama
The blog of a college student  
indyfan
Ohhhhh Baby!  
1sassyhelper
Drum Roll.....  
crashllama
my rash  
tweety 12
Lamictal and late period?  
cleo18
A Diagnosis  
clairecotter
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Title Posted
Know How To Operate Embossing Machine  
davidstewart1127
marijuana  
ccraven
My walk towards surgery  
pfincher
Surgery To Eliminate Epilepsy  
xyz123dpzlis
the life of a Keto mom  
andersonboys3
frequent hot flashes??? at age 25???  
2spacey4me
Today driving  
empery521
My First Seizure  
xyz123dpzlis
my partial complex seizures  
Zanna1211
Getting help that all we need,  
eblack1277
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Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
newborn seizure  
Sunny_80
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Title Posted
Im Sydney Sabrina Gray & This is My Story. /Please Read!!/  
Syd-Vicious20
JME sans J  
bdeck00
fanny  
fanny
My Story  
uncannywriter
My Darling Jennifer  
HerSunshine
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Title Posted
Hello. I'm new to the forum  
Tom S.
Maxx  
MDS2006
Lyme Disease as a cause for seizures  
ssidah
new member  
cricketsgidget
Living with photo-sensitive seizures  
photo-sense_grl
My mom with what I think is partial complex seizures  
rckout1205
Hi New Here and really, really need help. Please!  
mlmetkit
Scared and Worried  
Ashleyy
My Story- Partial Complex Seizures  
w_mirandacruz
My Teenage Daughter was Just Diagnosed With JME  
simon48183
View all Stories