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TAKE CONTROL TODAYWelcome to epilepsy.com, your online source for information, community and resources aimed at your experience with epilepsy. Our site features information about epilepsy and furthers the vision of the Epilepsy Therapy Project to create a powerful resource for everyone involved in caring for, or treating, those with epilepsy.
The epilepsy.com Editorial Board writes, places, and reviews the content throughout epilepsy.com and epilepsy.com/professionals. This team is proud to provide more than 7,500 pages of in-depth information about epilepsy and seizures to help further the mission of the Epilepsy Therapy Project.
This menu in the top right corner of the screen gives you access to information specific to Kids, Teens, Women, Families & Caregivers, and Seniors. As we continue to learn about how epilepsy affects people of all ages, genders, and ethnicities, we'll continue to add valuable information to these sections.
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Members join a Community of over 23,000 other individuals who listen, share, and engage on epilepsy.com. While all information is available to non-members, benefits of membership include access to participate in Community Forums and Blogs, with the ability to find other users based on interests, location, epilepsy treatments, and more. As a member you can create Groups with other members around your interests, using a buddy list to find and keep in touch with friends. You can save pages, videos, and animations to a "favorites" list, share your experiences and expertise through user-generated content, or stake out your corner of the internet through a Story Webpage. Create a Seizure Diary to track your health, medications, and appointments and receive email notifications when the topics that interest you are updated. In short, free membership on epilepsy.com provides many opportunities to engage and and manage your epilepsy!
Over 7,000 pages of content await you through the left-hand navigation of epilepsy.com. Orange header sections include All about Epilepsy & Seizures, Diagnosis, Treatment, Seizure Preparedness, Living with Epilepsy, and Resources. Some of the most popular areas in these sections include Epilepsy 101: The Basics, the Seizure Medicines database, Feature Articles, and the Multimedia Center.
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This content is user-generated. Content is not monitored nor consistently reviewed by the epilepsy.com Editorial Board. Epilepsy.com therefore cannot guarantee the accuracy of any content edited with the Wiki sections. While epilepsy.com, the Epilepsy Therapy Project, and its partners encourage visitor interaction and publishing within these sections, users should use caution when exploring content, especially as it pertains to health concerns. No content on epilepsy.com is intended to replace the care of a doctor. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy, nor does this Wiki content constitute a recommendation for any diagnosis or treatment options.
Hi my name is Sinead and i live in the UK. I was first diagnosed when i was 10yrs old and was put on Tegretol. When i was 20yrs old i had gone 3yrs fit free so my neurologist decided to take me off my meds.
6yrs later i started having seizures again so i had tests done and they diagnosed me with epilpesy again, this time i was put on Lamictal which seemed to work except i was having seizures every 5-6 months and started to suffer with terrible headaches. My neuroloist decided to put me on Keppra last November which has worked wonders for me.
Im now coming off Lamcital decreasing it by 50mg every 2wks for 4months. Im suffering really bad with headaches, dizzyness and only yesterday i fell and cut my head open. I would like to hear from anyone that has come off Lamictal to hear their story.
| Title | Posted | |
|---|---|---|
| Anyone experience memory loss? | Jan 3, 2010 | |
| tiff_25 | ||
| Seizures During Sleep | Dec 29, 2009 | |
| Morning Sunshine | ||
| Lamictal - switch to generic lamotrigine? | Oct 28, 2009 | |
| RGbrainstorm | ||
| Hair Loss and AEDs! | Jan 15, 2010 | |
| suebee27 | ||
| terrified to get pregnant | Nov 30, 2009 | |
| linzysmith323 | ||
| Newly diagnosed JME | Dec 5, 2009 | |
| Jess_sMom | ||
| Epilepsy, pregnancy and giving birth | Dec 23, 2009 | |
| sonjac1978 | ||
| Myoclonic jerks occuring in the evening? | Oct 27, 2009 | |
| elly | ||
| Break Through Seizures on Lamictal?? | Nov 13, 2009 | |
| Hotwired05 | ||
| Memory Loss/Side Effects - Lamictal vs. Topomax | Dec 25, 2009 | |
| Jenlsb | ||
| View all Forums | ||
| Title | Posted | |
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| I'm not getting any better; this sucks. (And hello.) | Feb 3, 2012 | |
| 57Academics | ||
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| eviesmumma2030 | ||
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| happygirl | ||
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| jdw1343 | ||
| benign rolandic epilepsy | Feb 2, 2012 | |
| jdw1343 | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,610 | |
| epi_help | ||
| topamax and weight loss | 19,311 | |
| alexia mom | ||
| kepra | 19,197 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,342 | |
| pdl1 | ||
| How exactly do aura's feel | 13,988 | |
| WendyBendy | ||
| Sexual Side Effects | 13,513 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,427 | |
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| spiz | ||
| electrical shock in head? | 10,072 | |
| Maggie | ||
| Weight Gain and Depakote | 9,005 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Lamictal generic brand | Jan 16, 2010 | |
| EBJ1209 | ||
| embarrassed and confused about my mycolonic seizures..new to this site | Dec 25, 2009 | |
| butterfly123 | ||
| If I have Generalized Siezures can I still be a Candidate for brain surgery?? PLEASE ANSWER!! | Jan 30, 2010 | |
| Syd-Vicious20 | ||
| A little about... | Jan 27, 2010 | |
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| The blog of a college student | Dec 3, 2009 | |
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| Ohhhhh Baby! | Jan 10, 2010 | |
| 1sassyhelper | ||
| Drum Roll..... | Oct 26, 2009 | |
| crashllama | ||
| my rash | Nov 18, 2009 | |
| tweety 12 | ||
| Lamictal and late period? | Jan 9, 2010 | |
| cleo18 | ||
| A Diagnosis | Jan 19, 2010 | |
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| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Know How To Operate Embossing Machine | Feb 3, 2012 | |
| davidstewart1127 | ||
| marijuana | Feb 3, 2012 | |
| ccraven | ||
| My walk towards surgery | Feb 3, 2012 | |
| pfincher | ||
| Surgery To Eliminate Epilepsy | Feb 3, 2012 | |
| xyz123dpzlis | ||
| the life of a Keto mom | Feb 2, 2012 | |
| andersonboys3 | ||
| frequent hot flashes??? at age 25??? | Feb 2, 2012 | |
| 2spacey4me | ||
| Today driving | Feb 2, 2012 | |
| empery521 | ||
| My First Seizure | Feb 2, 2012 | |
| xyz123dpzlis | ||
| my partial complex seizures | Feb 2, 2012 | |
| Zanna1211 | ||
| Getting help that all we need, | Feb 1, 2012 | |
| eblack1277 | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,391 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,780 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,579 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,537 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,211 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,903 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,831 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,710 | |
| teft | ||
| newborn seizure | 2,254 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Bugs Today: epilepsy.com Website Feedback and Architects Group | Apr 15, 2008 | |
| warren7 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| Moms of epileptic toddlers | Jan 24, 2012 | |
| Xaviersmom2 | ||
| Autism | Jan 15, 2012 | |
| Aaron Chan | ||
| brain surgery | Dec 26, 2011 | |
| jen020309 | ||
| People in their 20's with epilepsy | Dec 7, 2011 | |
| Mandy911 | ||
| TEAM ETP | Nov 28, 2011 | |
| krisj | ||
| 24yr old male | Sep 21, 2011 | |
| Dave24 | ||
| Could I be Epileptic | Sep 13, 2011 | |
| kathygardendancer | ||
| Lamotrogine....Severe feelings of detachment, with fear of dying or going insane? | Sep 8, 2011 | |
| DazzlinDessie | ||
| epileptics with a new vns implant so a new lease on life | Aug 31, 2011 | |
| bsloan1 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Im Sydney Sabrina Gray & This is My Story. /Please Read!!/ | Jan 30, 2010 | |
| Syd-Vicious20 | ||
| JME sans J | Nov 2, 2009 | |
| bdeck00 | ||
| fanny | Nov 4, 2009 | |
| fanny | ||
| My Story | Dec 5, 2009 | |
| uncannywriter | ||
| My Darling Jennifer | Jan 21, 2010 | |
| HerSunshine | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| Hello. I'm new to the forum | Feb 3, 2012 | |
| Tom S. | ||
| Maxx | Feb 3, 2012 | |
| MDS2006 | ||
| Lyme Disease as a cause for seizures | Feb 1, 2012 | |
| ssidah | ||
| new member | Jan 31, 2012 | |
| cricketsgidget | ||
| Living with photo-sensitive seizures | Jan 30, 2012 | |
| photo-sense_grl | ||
| My mom with what I think is partial complex seizures | Jan 30, 2012 | |
| rckout1205 | ||
| Hi New Here and really, really need help. Please! | Jan 30, 2012 | |
| mlmetkit | ||
| Scared and Worried | Jan 28, 2012 | |
| Ashleyy | ||
| My Story- Partial Complex Seizures | Jan 28, 2012 | |
| w_mirandacruz | ||
| My Teenage Daughter was Just Diagnosed With JME | Jan 27, 2012 | |
| simon48183 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,412 | |
| kroiz | ||
| my story | 553 | |
| snoby | ||
| Temporal Lobe Epilepsy | 531 | |
| Always Have On Clean Underwear | 499 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 470 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 467 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 418 | |
| javaman | ||
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| Life......... | 371 | |
| dizzygal | ||
| My Daily Philosophy..... | 364 | |
| KatieFerguson88 | ||
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