Since 1969, the Epilepsy Foundation has celebrated November as National Epilepsy Awareness Month. Over the years, other organizations have joined the Foundation in that month-long recognition. In 2003, Congress passed a formal resolution declaring November as National Epilepsy Awareness Month.
In 2015, the international community, led by the International League Against Epilepsy (ILAE) and International Bureau for Epilepsy (IBE), announced the creation of International Epilepsy Day on the second Monday of February each year. As a member of IBE, the Epilepsy Foundation formally recognizes this day.
Other organizations recognize additional days or periods of time for special epilepsy and seizure awareness initiatives. For example,
- International SCN8A Awareness Day on February 9 - Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott seek to inform affected families about available resources and educate the public about SCN8A epilepsy (a rare, genetic epilepsy). The day's lead organizations join the Epilepsy Foundation as members of the Rare Epilepsy Network (REN).
- Rare Disease Day on the last day of February - EURODIS (Rare Diseases Europe) organizes a day each year to raise awareness about rare diseases and their impact on people's lives. Several types of epilepsy are rare and can be devastating for families.
- Purple Day® on March 26 – the Epilepsy Association of Nova Scotia and The Anita Kaufmann Foundation encourage the epilepsy community to raise awareness by wearing purple on this day.
- International Dravet Syndrome Awareness Day on June 23 - the Dravet Syndrome Foundation, a REN member, leads efforts in the U.S. to raise awareness about Dravet syndrome, a rare genetic form of epilepsy.
- SUDEP Awareness Day on October 23 - the U.K.'s SUDEP Action leads the international epilepsy community in recognizing and raising awareness about sudden unexpected death in epilepsy (SUDEP). The Epilepsy Foundation actively participates in this special day through the SUDEP Institute.
- International LGS Awareness Day on November 1 - the LGS Foundation leads efforts in the U.S. to raise awareness about Lennox-Gastaut syndrome, a rare epilepsy.
- Infantile Spasms Awareness Week during the first week of December - The Child Neurology Foundation and its partners organize awareness efforts about infantile spasms.
Each effort is designed to raise awareness, end fear, fight discrimination, and show support for people impacted by epilepsy and seizures.