We've joined with CBS Community Partnership to launch the #ShareMySeizure awareness campaign to raise overall epilepsy awareness and invite viewers to understand the spectrum of epilepsy. The launch and pilot phase of the campaign will include a new public service announcement on CBS in Chicago.
November is National Epilepsy Awareness Month!
Watch this special epilepsy awareness message from J.J. Abrams, an advocate for epilepsy awareness and best friend of TalkAboutIt.org founder Greg Grunberg. Abrams is the director of Star Wars: The Force Awakens and Star Trek (2009). He also produced the TV series ALIAS, Lost, Felicity, Person of Interest, and Westworld.
Every year, 1 in 150 people who have uncontrolled seizures dies from sudden unexpected death in epilepsy, known as SUDEP. When people with epilepsy and their caregivers are empowered with information to understand SUDEP, they can take action to reduce risk of harm.
To respond to this urgency, raise awareness, and promote steps that can help prevent SUDEP, this November, we are continuing to focus on how you can #AimForZero seizures by adopting four behaviors:
We recognize that for 3 out of 10 people living with epilepsy, a life without seizures is not within reach right now. However, adopting the four actionable behaviors recommended here, and working towards the best seizure control possible, may help reduce the risk of SUDEP in people living with epilepsy.
Share how you plan to incorporate the four behaviors for seizure management on social media with the #AimForZero hashtag. Also follow along online and share our messages to help everyone with epilepsy #AimForZero.
Find more information that will help you along your journey as you #AimforZero seizures.
#AimForZero Facebook Live Chat November 22nd
The Epilepsy Foundation is hosting an #AimForZero Facebook Live chat on Tuesday, November 22, 2016, from 8:00 p.m. to 8:30 p.m. EST. The Facebook chat will discuss how college students can integrate the four key seizure self-management behaviors featured in #AimForZero. The Facebook live chat will be hosted by:
- Patricia Shafer RN, MN, epilepsy.com Associate Editor and Community Manager and Epilepsy Clinical Nurse Specialist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical Center, in Boston, Massachusetts
- Ryan Brown-Kohalmy, Social Media Coordinator for the Epilepsy Foundation
Join the Facebook Live chat by visiting the Epilepsy Foundation Facebook page on November 22nd.
#AimForZero Twitter Chat November 14th
The Epilepsy Foundation is hosting an #AimForZero Twitter chat on Monday, November 14, 2016, from 2:00-2:30 p.m. EST.
The purpose of this Twitter chat is to encourage conversation and provide advice around epilepsy and seizure management while recognizing National Epilepsy Awareness Month. The participating panel will include:
- Dr. Joseph Sirven, epilepsy.com Editor-in-Chief and Chairman of the Department of Neurology at the Mayo Clinic in Phoenix, Arizona (@jsirven)
- Patricia Shafer RN, MN, epilepsy.com Associate Editor and Community Manager and Epilepsy Clinical Nurse Specialist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical Center, in Boston, Massachusetts (@epihelp)
- Candace Montague, Health Writer for Capital Community News in Washington, D.C. (@urbanbushwoman9)
Please follow the Epilepsy Foundation on Twitter at @EpilepsyFdn! We look forward to your questions and participation.
#Adulting with Epilepsy
Transitioning into adulthood and taking on more responsibilities while managing a health condition can feel overwhelming. Our series of “#Adulting with Epilepsy” messages shares strategies and tips for young adults and millennials living with epilepsy who face these challenges. Share how you “adult” with epilepsy by tagging the Epilepsy Foundation on Twitter or Facebook with the hashtag #adulting and share the messages from our social media guide.
We are your unwavering ally! This month learn about the ways we support people living with epilepsy. Share how the Epilepsy Foundation has helped you or a loved one using the hashtag #UnwaveringAlly.
The Epilepsy Foundation is pleased to partner with Star Trek and Star Wars actor and advocate Greg Grunberg and Sunovion on the #MyEpilepsyHero social media campaign for National Epilepsy Awareness Month. #MyEpilepsyHero invites people impacted by epilepsy to share individuals that made a positive difference in their lives through support or inspiration. These heroes can be a family member, healthcare provider, mentor, or friend.
From now until December 16, we hope you will encourage your community to post a video or photograph of an epilepsy hero using the hashtag #MyEpilepsyHero on Facebook or Twitter. Upon reaching the goal of 500 heroes, Sunovion will donate $10,000 to the Epilepsy Foundation. Learn more at epilepsy.com/whos-your-epilepsy-hero.
Previous National Epilepsy Awareness Months
- 2015: #DareTo Go the Distance and #DareTo Be Seizure Smart
- 2014: What is your #DareTo?
- 2013: Story Days
The Epilepsy Foundation has celebrated National Epilepsy Awareness Month since 1969. In 2003, Congress passed a formal resolution declaring November as National Epilepsy Awareness Month.