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Highlights from the Hill November 19, 2015

Advocacy Victory to Bring New Therapies to Individuals Faster

On Monday, November 16, Congress unanimously passed the Improving Regulatory Transparency for New Medical Therapies Act (H.R. 639). This bill would improve the transparency and consistency of the Drug Enforcement Agency (DEA) review of new Food and Drug Administration (FDA) approved medications and bring these medications to individuals who need them faster.  This legislation was a key priority of the Epilepsy Foundation and would not have been possible without the incredible efforts of our grassroots community, so thank you! Please also take a moment to thank your members of Congress for supporting this important piece of legislation at


I Am Essential Coalition Urges HHS to Better Define Discrimination in ACA Plans

The Epilepsy Foundation, as a leader of the I Am Essential coalition, joined nearly 200 groups in urging the Secretary of the Department of Health and Human Services (HHS), Sylvia Burwell, to better define discriminatory practices when they issue the final rule regarding non-discrimination in health plans offered in the marketplace created by the Affordable Care Act.  Some insurance companies are engaging in practices that impede access to medications and other health care services, negatively impacting many individuals with serious and chronic conditions.  You can read more about the coalition and view the latest letter at


Experiencing Trouble Gaining Access to or Affording Medications and Specialists? Tell Us!

As part of our work with the I Am Essential coalition we are focused on ensuring that individuals with epilepsy can choose the best health plan for themselves.  During this open enrollment season we urge you to look #BeyondPremiums when comparing plans to check that your specialists and medications are covered. If you’ve experienced problems on your current plan, please take a moment to fill out our survey at and let us know.

You can read about what has recently happened in the states by going to the In The States page.