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Highlights from the Hill January 16, 2015

New Congress brings New Opportunities

January 3rd marked the start of the 114th Congress with 73 new Members of Congress coming to D.C.  There are 13 new Senators and 60 new Representatives, which presents a perfect opportunity for the epilepsy community to reach out to share our stories and educate new Members about issues important to those living with epilepsy. To find out who represents you in Congress go to http://capwiz.com/efa/dbq/officials/

Epilepsy Foundation Seeks Greater Protections in ACA Marketplace Plans

As part of the I Am (Still) Essential campaign, the Epilepsy Foundation and 32 affiliates joined nearly 300 national and state patient organizations on a December 19th letter to HHS Secretary Burwell in response in a recently proposed rule for ACA plans. The letter highlights some of the positive changes proposed by HHS and suggests additional patient protections that could improve meaningful access to quality care. The Epilepsy Foundation also submitted a detailed comment letter on the proposed rule. You can view the letters at www.epilepsy.com/aca.

There is Still Time to Enroll in an ACA Marketplace PLan! Look #BeyondPremiums When Considering Plans

The Epilepsy Foundation has been actively advocating with HHS Secretary Burwell and other agency staff about the need to improve access to care in ACA Marketplace plans, especially for people living with chronic conditions like epilepsy.  As we continue to advocate for increased access to care, we want to hear from you about any challenges you’ve faced this year when trying to gain access to and affording the medications and specialists you need. Are your medications covered by your plan? Have you faced high out-of-pocket costs for them? Did you have to switch medications or specialists because they were not covered by your plan? We have created a survey at http://bit.ly/EFSurv to capture this information, which will make it easier for us to raise awareness with federal and state officials about the need to look #BeyondPremiums and improve access to care in ACA Marketplace plans, especially for people living with chronic conditions like epilepsy.

You can also learn more about the I Am (Still) Essential campaign and help us spread the message about looking #BeyondPremiums by visiting and liking the campaign’s Facebook page at http://bit.ly/IAEBP, where the latest news and resources are posted.

 

You can read about what has recently happened in the states by going to the In The States page.

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