Access to Care

The Epilepsy Foundation actively advocates at the state and federal level for public policies that improve access to quality care for people living with epilepsy. 

Timely access to appropriate care and effective coverage for epilepsy medications is a critical concern for people living with epilepsy. Anti-epilepsy drugs (AEDs) are the most common and most cost effective treatment for controlling and/or reducing seizures.

Individuals living with epilepsy who experience a delay in accessing their medication due to prior authorization and step therapy requirements, high cost-sharing, medication substitutions without physician and patient consent, and onerous drug monitoring requirements, are at a high risk for developing breakthrough seizures and related complications, including Sudden Unexpected Death in Epilepsy (SUDEP). 

Access to Care in the States 

Promoting Innovation

About a third of people living with epilepsy suffer from uncontrolled or intractable seizures, despite available treatments. The Epilepsy Foundation supports policies that promote research and innovation into new therapies and devices, as well as proposals to lift barriers to getting new treatments to patients faster.

Improving Access to New Therapies

Access to Care Advocacy CHIP letter